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mtran
Member since Dec-12-07
6 posts
Apr-03-08, 08:45 PM (PST)
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"Don't wait on DCA..."
 
   Hello everyone,

I would like to voice my thoughts about DCA... I'm not sure if it should be posted here or the support forum.

My father passed away on March 17th from nsclc. He was diagnosed Stage IV in August and was given 3 months in his prognosis. He was immediately given radiation therapy to combat the aggressive tumours all over his upper body... Brain, shoulder, ribs, neck, lung, knee, inside bones...

He was in terrible shape, and I could have been convinced that he was going to die.

But the radiation revived him and had good results. I started researching about cancer treatments and soon found out about DCA. This was around the end of September...

I knew about DCA since then, but I did not give it to my dad until February. My parents didn't listen to me, they wanted to go along with the Oncologists. They are the "experts" after all, right? I agreed, I was in the mindset that I should just make my dad as happy and comfortable as possible. His only problem was his weight loss and pain. Although, doctors said they do not know how he can still walk, talk, and smile like he does, given how much disease he has in his body.

I was not a doctor... I did not know the horrors of chemotherapy...noone in my family has ever had cancer... But I regret not starting DCA sooner.

With every treatment, my dad became weaker. He is already weak and the chemotherapy and tarceva did not do anything but make him sick when he was already weak.

I went along with the treatments hoping that they would prolong his life and allow his general health to recover, then start DCA...

After the 2nd round of chemo, I felt that it was enough. I finally forced my parents to come with me to Medicor and talk about DCA. this was the beginning of January. I asked the Dr. if he thought it might be too late to start treating my dad, he said no and that he looked very well and is still young. But at that time he was perfectly fine... just some pain. Of course, my father always has a brave face on and it is near impossible to tell when something is wrong with him. We were scheduled to start Tarceva and the Dr. recommended that we try it before starting DCA. I agreed because it made sense to me. My father was a non-smoker, and asian. Statistically, he has a good chance of it helping.

So we started Tarceva... Every day, he got weaker... after 2 weeks, he started having trouble breathing... He could no longer walk short distances... There were no more encouraging results... In desperation, I immediately ordered DCA and started him on it. You can follow testimonial in the testimonials section...

We used it for 2 weeks, with visible/physical reactions. Acute pain in cancerous areas.

After 2 weeks, his lung weakened further and it was no longer reversible. He was admitted into the hospital after not being able to sleep for 2 days. After a week there, he fell into a coma one day and slowly faded away. I've been emotionally scarred from this experience and cannot get over it. I had the "cure" and I did not use it.

In retrospect, I would not have accepted the chemotherapy. I would still have tried Tarceva. However, the main reason we used chemotherapy was because we could not get government coverage of the drug unless we have failed at least one type of chemotherapy (some people must fail 2 different kinds of chemotherapy). Despite the recommendation of our radiation oncologist stating that Tarceva was our only hope due to the blood-brain barrier.

What I'm saying is, you can't be conservative with cancer. You don't know when it will be too late. Seize the opportunity while you are still healthy. Talk to others... Don't try to do it alone like I did...

-Mike


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Sandra
Member since Feb-27-07
746 posts
Apr-04-08, 01:14 AM (PST)
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1. "RE: Don't wait on DCA..."
In response to message #0
 
Mike,

Please don't be sooo hard on yourself. You acted in what you thought was the best interest for your father. Hind sight is always 20/20 - and you couldn't have known how quickly the cancer would take him. Thank you for being brave enough to tell others about your experience - perhaps it will save someone else's life.

My heart goes out to you and your family in your tragic loss...

Hugs,
Sandra


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adminadmin
Member since Feb-7-07
189 posts
Apr-08-08, 10:29 PM (PST)
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2. "RE: Don't wait on DCA..."
In response to message #0
 
LAST EDITED ON Apr-08-08 AT 10:36 PM (PST)
 
Mike,

I am so sorry. I wish I could say something to help. I agree with Sandra, you are very hard on yourself. Just remember that people have passed away on DCA in many circumstances. And it's natural that we often want to do what the doctors recommend first. You did what you did because we always do our best in the situation at hand.
If you so choose, now you can be a voice for others.

You are in our thoughts & hearts.

Heather, Forum Moderator


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Big Daddy
Member since May-1-08
13 posts
May-20-08, 00:36 AM (PST)
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3. "RE: Don't wait on DCA..."
In response to message #2
 
   Mike,Hang in there,I also feel your pain.If you need someone to talk to shoot me an email.God Bless

Big Daddy


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