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Elizabeth1
Member since Oct-2-08
188 posts
Dec-07-08, 04:41 PM (PST)
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"Delayed~Round 3 DCA"
 
Well, I had a nice holiday from the DCA. I was suppose to start back on Nov 12th. Due to some on going liver inflamation (NOT DCA related), I choose to take a break from ALL.
I did carry on with the twice weekly Vitamin C IV therapies @ 50g per IV, and B-12 injections to get by. I kept my diet steady, but there was a 9 day period where by I could NOT eat anything. I believe that I got into that: Cachexia cycle @ that time which in turn started the vicious cycle of: Glouconeogenesis, after reading up on this, I got hubby to FORCE me to start to eat something. Started back with hot vegimite drinks (Australian thing) liken to Maramite

Little by little appetite came back. Still cases of the shakes and NEW: not being able to sleep is the newest thing. I would go one night: 1.5 hours sleep, awake ALL day no naps, go to bed late at night then sleep 2 hours, next night stay awake ALL night, next day no naps. 2 weeks of this caught up with me in the afternoon yesterday. After my sons birthday party I came home freezing, had a tea and was lights out till 8pm, up for an hour (chit chat with a phunnie WORM guy and back to sleep till 2am, awoke cold and went to bed got up @ 9 am today.

So, Tuesday Dec. 9th is start back date. Round 3 DCA Bring it On!
Don't know how it will go, wait n see. Had a CT on Nov 20th, but doctor doesn't have results as yet. Still bleeding (AGAIN, this is "NORMAL" for this cancer!)

Elizabeth

Lets fight together, help each other. I truely believe that we have to be our own health advocat.


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Elizabeth1
Member since Oct-2-08
188 posts
Dec-18-08, 00:04 AM (PST)
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1. "RE: Delayed~Round 3 DCA"
In response to message #0
 

I started back today, with..... so far not bad results. Meaning I can walk.


Lets fight together, help each other. I truely believe that we have to be our own health advocat.


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Elizabeth1
Member since Oct-2-08
188 posts
Dec-22-08, 11:22 AM (PST)
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2. "RE: Delayed~Round 3 DCA"
In response to message #1
 
Well, I've been going for 6 days now. Mostly ok, I did throwup after taking the DCA last night. Just the once. I don't know why.
I am not taking the Vit C IV for the time being. Going to Natropath getting expensive. When Hubby returns to work we'll get back into this.Still having the weird not sleeping thing. Starting to think it may be more of a mental thing..I just really don't feel tired?? In the month off DCA this is when I experienced it the most. I took all sorts to try to sleep. I also experienced some kind of edema in legs from knee down, that lasted a couple of days. Only a little in their now.

For now, I'll stick to the juicing, supplements & DCA.

Elizabeth


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Sandramoderator
Member since Feb-27-07
845 posts
Dec-22-08, 05:18 PM (PST)
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3. "RE: Delayed~Round 3 DCA"
In response to message #2
 
Elizabeth,

For sleep, have you considered taking melatonin

http://www.lef.org/magazine/mag2004/jan2004_report_melatonin_01.htm

and/or Low Dose Naltrexone (LDN)?

http://www.thedcasite.com/Library/Berkson_Rubin_pape_%20pancreatic_cancer.pdf



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Elizabeth1
Member since Oct-2-08
188 posts
Dec-22-08, 09:42 PM (PST)
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6. "RE: Delayed~Round 3 DCA"
In response to message #3
 
Hi,

I do take the melatonin, and I cannot take the Low Dose Ne... I am on Narcotic medications.

THanks


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billn
Member since Apr-27-07
146 posts
Dec-22-08, 08:49 PM (PST)
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4. "RE: Delayed~Round 3 DCA"
In response to message #1
 
Elizabeth,

What are you juicing? There have been concerns about grapefruit juice and possibly orange juice, because they inhibit the P450 cytochrome's and with woman can possibly increase the risk of breast cancer.

Also, because the P450's remove drugs from the body, if you inhibit them while on chemo, you could be causing high levels of chemo drugs to be retained in the body. I presume this could make you feel pretty bad.

Billn


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Elizabeth1
Member since Oct-2-08
188 posts
Dec-22-08, 09:41 PM (PST)
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5. "RE: Delayed~Round 3 DCA"
In response to message #4
 
Hi,

I am juicing: Carrot, apple, ginger, parsley, spinach, celery, beetroot.
I am NOT or have I ever taken chemo/radiation. Yes, I was aware of the grapefruit juice as an interference with several medications.
I dunno what it is, it is only occasional anyway, not to worry I guess. I have tried to take theCA when I eat, after I have eaten, before I have eaten ect ect. I usually only take the DCA with water.

I hear you re: Breast cancer, Mine is @ the other end LOL

Thanks
Elizabeth


Lets fight together, help each other. I truely believe that we have to be our own health advocat.


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Elizabeth1
Member since Oct-2-08
188 posts
Dec-27-08, 03:07 AM (PST)
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7. "RE: Delayed~Round 3 DCA"
In response to message #5
 
This 3rd round of DCA is much more pleasant. Today I had alot of shakes (liken to an alcoholic LOL) I am up and moving around more freely than when I first started on the DCA. For this I am greatfull, especially these last few days with Hubby gone in hospital.

I have to go back to original hospital that did my CT scans, and talk with the radiologist re: #1 & #2 scans. Get him to explain why there is no info on the original tumour. et al.

THanks

Elizabeth


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Elizabeth1
Member since Oct-2-08
188 posts
Jan-01-09, 04:29 AM (PST)
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8. "RE: Delayed~Round 3 DCA"
In response to message #7
 
Ok Ok ok, I have finally found what is making me sick....
Well, I think I have!! Today I was sick again taking the DCA. I ran out of water and had already taken my: Antacid, vits ect.... I wait 20 min half hour then I take the DCA. Today I had eaten those little mandarine oranges and I took the DCA with a drop of the orange juice my son had left in a glass. The other nite I tool it with apple juice.

So, this may be the connection??
Eliz


Lets fight together, help each other. I truely believe that we have to be our own health advocat.


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satx
Member since May-9-07
104 posts
Jan-02-09, 02:28 AM (PST)
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9. "RE: Delayed~Round 3 DCA"
In response to message #8
 
   interactions, postive and negative, are hard to track down when one is taking so much stuff. good luck


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Elizabeth1
Member since Oct-2-08
188 posts
Jan-21-09, 02:03 AM (PST)
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10. "RE: Delayed~Round 3 DCA"
In response to message #8
 
Rounds 3 & 4 done!

I have been in alot of pain.(already on narcotic relievers, not helping) Abdomen when bladder full, between hips and tailbone (this one is a constant) Also noticed last 2 rounds of DCA there is swelling in both of my legs, from knees down only. Back of calfs feel like they have been kicked hard (From online Node pics, it is on the place where the nodes are). The first time I got the swelling, it only lasted a week or so. This one just started. I'll have to assume that the cancer is moving out via the nodes, and this is what is going on. Gonna go to the sauna downtown. I also have not been taking the acid inhibitor. This has NOT cause me any difficulty.


Lets fight together, help each other. I truely believe that we have to be our own health advocat.


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Sandramoderator
Member since Feb-27-07
845 posts
Jan-21-09, 08:16 AM (PST)
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11. "RE: Delayed~Round 3 DCA"
In response to message #10
 
What acid inhibitor were you taking? If it was Tagamet, it might be a good idea to stay on the stuff.

http://www.thedcasite.com/dcaforum/DCForumID10/349.html


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Elizabeth1
Member since Oct-2-08
188 posts
Jan-21-09, 08:50 AM (PST)
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12. "RE: Delayed~Round 3 DCA"
In response to message #11
 
No, actually it wasn't.

Lets fight together, help each other. I truely believe that we have to be our own health advocat.


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algarve7
Member since Aug-8-09
5 posts
Jan-23-10, 11:41 AM (PST)
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13. "RE: Delayed~Round 3 DCA"
In response to message #11
 
   Tagamet tends to increase prolactin, which is something to especially watch out for in estrogen positive breast cancer, but it seems prolactin could have effects in a much higher percentage of bc than was previously thought, maybe as high as 95%. So I think Tagamet is NOT something to take for bc. It's probably a good idea to check Prolactin in a blood test.

Melatonin is supposed to be good for suppressing Prolactin, and there is a drug called Dostinex which is effective.

Quote:
"Monthly blood testing for breast cancer patients is mandatory. Every patient responds differently to both conventional and alternative cancer therapies. The results of blood tests provide critically important data to evaluate the effectiveness of both conventional and alternative therapies. The blood tests commonly used by doctors to evaluate progression or regression of breast cancer are CA 27.29, CA15-3, CEA, prolactin, GGTP and alkaline phosphatase. If, for instance, the CA 27.29 tumor marker were to continue to elevate 30 to 60 days after initiating soy extract supplementation, discontinue its use and seek another therapy immediately."

"Breast cancer patients often have elevated levels of the pituitary hormone prolactin. Abnormally high levels of prolactin can interfere with successful breast cancer therapy. If a blood test reveals elevated prolactin levels, the oncologist should be encouraged to prescribe 1.25 to 2.5 mg of the drug Parlodel, also known as bromocriptine. Parlodel must be taken after meals because severe nausea can occur when it is taken on an empty stomach. A better way to suppress prolactin is with Dostinex/Cabaser (Cabergoline). Just twice-a-week dosing of 0.25 mg to 0.50 mg is needed, and side effects are rare. The objective is to suppress serum prolactin levels to under 3 nanograms per milliliter (3 ng/mL) of blood. Any blood-testing laboratory can arrange to do a prolectin serum level test."

http://www.lef.org/magazine/mag99/jan99-protocols.html

A Role For Prolactin In Breast Cancer
http://www.sciencedaily.com/releases/1998/09/980923073259.htm

Enhancement of the Efficacy of Weekly Low-dose Taxotere by the Long Acting Anti-prolactinemic Drug Cabergoline in Pretreated Metastatic Breast Cancer
http://ar.iiarjournals.org/content/24/6/4223.abstract


I think prolactin would also be a good marker to detect problems early to prevent bc. Do most oncologists know anything about prolactin?


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Sandramoderator
Member since Feb-27-07
845 posts
Jan-24-10, 06:19 PM (PST)
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14. "RE: Delayed~Round 3 DCA"
In response to message #13
 
Hi Algarve,

Elizabeth had cervical cancer, not breast cancer. She unfortunately passed away April of last year.

Maybe you could post this under 'Topics Other than DCA'.

Thanks,
Sandra


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