I would like to add that the right DCA protocol includes lemon juice 10 minutes before every DCA dose and also supplements of coQ10, Acetyl-L-carnitine and R+ Lipoic Acid that boost DCA performance and reduce PN symptoms. Instead of B1 it is better to take 300-1000 mg of the more bioavailable form of B1 Benfotiamine.

I think you should read this thread, about a gal whose husband has taken DCA for over a year for brain cancer. This should encourage you about how effective DCA is!

http://www.thedcasite.com/dcaforum/DCForumID2/225.html

Take care,
Sandra

I'm now taking B-5, Benfotiamine and sublingual (under the tongue) B-12, plus many other supplements. I'd also suggest DHA.

Pantothenic acid 500 mg
http://www.lef.org/newshop/items/item00098.html

Benfotiamine 500 mg
http://www.lef.org/newshop/items/item00925.html

Now brand B-12 Complex Liquid - one dropper-ful per day.
http://www.nowfoods.com/?action=itemdetail&item_id=11375

DHA 2000-3000mg/day
http://www.nordicnaturals.com/en/General_Public/BUY_NOW!/98/?ProdID=1413

How can you order from this company?
I tried to order, but they sell only in USA.

Contact Us: International
Jean-Philippe Sidaner
Phone: 831-724-6200 ext 131
Toll free: 800-662-2544
Fax: 831-724-5263
jpsidaner@nordicnaturals.com

This is the product I use:
http://www.nordicnaturals.com/en/Products/Product_Details/156/?ProdID=1413

http://en.wikipedia.org/wiki/Docosahexaenoic_acid

When selecting a DHA product for anti-cancer, look for the highest ratio of DHA to EPA (another omega-3 FA, useful for health but not specifically for cancer).

Sandra's suggested product is DHA:EPA of 5:1, one of the best ratios.

Source:

http://www.iherb.com/ProductDetails.aspx?c=1&pid=7051

Here's another one with 5:1:

http://www.iherb.com/ProductDetails.aspx?c=1&pid=7070

August has been a bad month. It started with his first ever seizure and a hospital visit. Very scary. In hospital he went down hill, caught an infection as he was in chemo. and next to an infectious person. Anti saeizure medication was changed three times as each new drug resulted in an allergic reaction. We had to wait for a severe reaction as they kept puttinghis neuroligical set backs down to his tumour. He is now home on the some origianl anti seizure drug at a higher dose.

In hospital a cat scan was performed and we were told things had improved and that he has a lot of inflammation. That was terrific to hear. But then they back tracked and said wait for an MRI.

So we went back to losing speech, incontinence and trouble walking. Since then he has been hovering between the various states. Some days I get up to a near normal and other days a stranger talking nonsense or having trouble finding words. I wish there to be a steady improvement or decline not the daily differences that indicate nothing.

Yesterday he had an MRI but the doctor is away till October 6th so have to wait for the results.
Not looking forward to it either.

So I do not know what/ if anything is working. The oncologist says his speech and comprehension is not very good and I do not know when that began.

I am now thinking if the MRI says no improvement do I try something new or let nature take its course. My mother says I should not persist with this. That he would not like it. But what if one year down the track we win and things have all come back? His tumour is 240cm3 volume and not something that will go quietly.

He was give 2 weeks and now we have 7 months but we are all paying a price.

I read the stories and it seems that everyone who gets response has a steady improvement not the oscillating symptoms we run through. He is on an arsenal of things and I do not know what step to take next.

Should I give up?

chrisz

He says Gleevac or Avastin will cost us $10,000 and we do not have that. Maybe TM? But do we have the 6 weeks to get it to take effect?

He says there is a lot of swelling and that the tumour cannot be acurately measured as it is irregular in shape. That the improvements we have seen have only lasted 2 months and also happens with this type of tumour. That things go and come back again.

He was given 2 weeks and we are 7 months but the oncolisigt says it is the 2 surgeries that have kept him alive. That the radiation did not work and neither has Temodal. He is on a lot of known anti cancer medications both off label and prescribed. This damm thing is bloody hard to deal with!

We went to the GP Friday. He gave us the scan. I read it and said it sounds like it is better. WE all read it together and all said this seems better. Whats the problem? It also said there was presence of a brain haemorahage. This would explain the up and downs and that there was lot of swelling.

He said you are changing oncologists. That this one is not fighting for us. So new one next week and the battle continues.

Now the good news. Had a pet scan and most of the tumour is dead. There are 2 spots either side of it to go. All the problems have been bleeding of the tumour and inflammtion.

chrisz

This is really great news! Do not lose hope, keep fighting!
David

Elizabeth

Lets fight together, help each other. I truely believe that we have to be our own health advocat.

Apparently we were too vehement in the attack. By October the tumour had reduced by 80%. We were so happy. Then the oncologist said he was going to get rid of it once and for all so he introduced more chemo.
He was put on Temodal 100g daily, Procarbazine 50 g daily, DCA 16kg dose daily and IV Irinotecan fortnightly. On top of this he was getting LDN, Melantonin,Clomaparine,Vitamin D, Celebrex, Nexium, Benfotiamine, Lippioc Acid, Co-enzyme 10, DHA, Phenobarbitan and Gabapentin for neuraligia.

The Pet Scan said it had reduced further but there were three small bleeds. A follow up MRI confirmed this. Two days after his next IV he lost his mobility, most of his speech, swallowing. The tumour had died further but was bleeding badly. A neurosurgeon said it was too dangerous to tackle and stopped all drugs in the hope it would cease.

He was to be transferred to another hospital, a more acute one but he died that day.

So erring on the side of caution instead of a full on attack would have been better for my husband but how does one know what to do? He was too weak to have such a drug load put in him. He finally had enough and let go.

A friend visited and told him he had to fight this latest thing himself and he said no. He said he was not coming home.

We had reached the point where he wanted no more. I am thankful for the imformation I have obtained on this site. We managed to shrink a tumour that was 6 x 6.1 x 5.4cm to .09cm. Pretty amazing. We gained many many more days and they were a treasure.

I have also made great contacts through this site and will probably continue them. I have made contact with a very special person and her husband and value this most out of the experience.

The bonds made with others in fighting cancer are very special.

You fought the good fight, your friend was right, WE(the cancer patients) have to give it our all too.When the battle rages on day in day out, it just is so hard. You well know these are hards days. You did so very much, now it is time to take care of you! That's what your hubby would want. These words of mine hold no comfort for you, but I feel I should say them anyway. We need to comfort you,and it's so hard from so far away. We are so close on this website,yet still so far away. Here's a big hug, from me a stranger but a comrad noless. Know you did all and THEN some. My heart is with you to help you through........

Elizabeth

"There have been times in my own life when I've had doubts, when I've stumbled over great cracks that appreaed in my world. I've had those times when I climbed into my own bed and wept, crying out to God, just as you have. Such is life, especially when you decide to be real rather than protect some kind of I've got-it-all-together image. In times like that it's comforting to realize: GOD can handle this."

Fear not, for I am with you........
I will uphold you with MY righteous right hand....... I

Lets fight together, help each other. I truely believe that we have to be our own health advocat.

We at the DCA site are sorry for your loss and we hold you in our thoughts and hearts. Thank you for being part of this community. I am glad you have found support here. Please take care of yourself now and for the time to come.

Heather
TheDCASite Forum Moderator

chrisz