If he's in the USA and selling DCA for cancer, aka "unapproved/off-label cancer treatment", the FDA would shut him down if they knew, just as they shut down Jim Tassano.

1. Get Ph Sticks to test Saliva (range 7.5 to 8.0)
Urine (range 6.0 to 6.5)

2. First Aid MCP 500 take 2 to 3 caps 4 times per day

3. Amino 1/2 Grams, ten "snack", twenty "meal"

4. Boswellia Conc. antiinflammatory, one or two caps, 4 times a day

5. Cesium Chloride

6. Alkaline Salt 1/4 to 1/2 tsp four times a day

7. Liv-Phos 8 to 15 drops. 4 times per day

I'm not certain what some of these things are but will research them.

Presently, she's
on Usana Vitamins, daily Multi packs plus
Usana Biomega 3 fish oil supplement
Usana Proflavinol 90
Usana Poly C
Usana Coquinone (co enzyme Q 10)
Usana E Prime (Vit E)

APO-Folic Acid 5mg tablet (from the drugstore)

Thank you Caroline

To replace B-12 loss (from DCA use)
Benfotiamine - 400mg http://www.aor.ca/int/products/benfotiamine.php http://www.benfotiamine.net/
or you can get it in injection form, or sublingual form.

To protect against peripheral neuropathy
R+lipoic Acid - 800mg http://www.r-lipoic.com/ Take in coconut milk or oil, or try this formulation http://www.aor.ca/int/products/r+sr.php
Acety-L-carnitine works synergistically with lipoic acid

Here's a link to all my supplements if you're interested
http://www.thedcasite.com/dcaforum/DCForumID10/32.html

Take care, wish you and your daughter the best,
Sandra

I tried to edit my post because I got a whole lot of new info
on the above regimen today, but my editing job was rejected.
How do I do that?

C.

PROTOCOL FOR SHRINKING TUMOURS IN CONJUNCTION WITH
Na-DCA

1. Get Ph Sticks to test Saliva (range 7.5 to 8.0)
Urine (range 6.0 to 6.5). Take the readings first thing in the a.m. before eating and last thing at night on empty stomach--snack after if you want. The urine sample can be dipped and read immediately. Saliva method: with fresh stick, spit into a small paper medicine cup and work the ph stick around in the saliva for about 1 1/2 mins in order to saturate the chemicals because saliva is more mucousy.
2. As a First Aid measure, use MCP 500 take 2 to 3 caps 4 times per day
3. Amino 1/2 Grams, ten "snack", twenty "meal" (Less is okay)
4. Boswellia Conc. anti-inflammatory, one or two caps, 4 times a day

In order to get the alkalinity of the saliva (blood) into the 7.5 to 8.0 range, use a. and b. (as follows) together and, then, if you still need more assistance, incorporate c.
a. Alkaline Salt 1/4 to 1/2 tsp four times a day (sees if your stomach can take the higher dose and, if it gets upset, cut back to smaller dose). Put it in the same glass of water as the Liv-Phos and drink down.
b. Liv-Phos 8 to 15 drops. 4 times per day. Put drops in an 8 oz glass of water and drink with the Alkaline salt. Don't put directly in the mouth.
c. Cesium Chloride. 1 cap with meals and snack to start. Slowly increase until it causes stomach upset and then pull back slightly. (only use if a and b above are not producing the alkalinity.

Turmeric and Milk Thistle are good for liver support.
Kale and cabbage are good alkalinizing foods.
Vitamin D3 cream can be used for back rubs. Don't apply to palms or soles or hair covered areas.
For bowel disease: take 8 enteric coated Fish Oil caps per day (NEJM study from Italy, 1996) ________________________________________________________________
Re Charlotte, Colon Cancer pelvic tumor.
Presently, she's
on Usana Vitamins, daily Multi packs
PLUS:
Usana Biomega 3 fish oil supplement (will discontinue because it is not enteric coated)
Usana Proflavinol 90
Usana Poly C
Usana Coquinone (co enzyme Q 10)
Usana E Prime (Vit E)
APO-Folic Acid 5mg tablet (from the drugstore)

The ph of her saliva was 7.5 and her urine was 6.5. Will see what it is this a.m. before she eats. I have a whole load of kale from our organic garden so I will be cooking that up into something delicious for her.

Blessings to everyone. Caroline

1. is it to make sure that the Na-DCA isn't over alkalinizing
her blood to dangerous levels?
2. is it to make sure that we're at a high enough alkalinity to be sure the Na-DCA is having an effect? I get the impression that we won't see tumour reduction until the alkalinity is up near 7.0?

3. Should we be testing with the ph strips morning and night at this point when she hasn't reached the 6.5 level yet?

I realized today that I didn't mention one other part of my daughter's daily routine intake. She is on 100 mg of Celebrex to help with pain at the tumour site and reduce inflammation.
She's continuing with her two capsules of Na-DCA (20 mg/Kg) every morning.

Caroline

Since DCA has half-life of only a few hours, you should spread the dosing out, not all in one dose.

Caroline

Heather, Forum Moderator

She has pronounced edema in the legs and vulva region for
the past week. I think it's caused by the pressure from
the growing tumour but it started right after we began the
Na-DCA so I'm reluctant to increase her dose until that
clears up some.

We've been going out for a "sun bath" for an hour each day in the
late afternoon and she enjoys that a lot.
Caroline

Some DCA studies I downloaded from the net indicated that the half life of DCA in the body starts at about 1 hour, but within 5 doses can stretch out to about 12 hours. Children are better at metabolising DCA than adults.

I did some calcs (based on an exponential increase) that indicated a situation where high levels of DCA can be retained in the body un-metabolised (with possible neuropathy side effects).

For this reason, my belief is that 'sipping' is not beneficial - stick to 2 or 3 doses per day.

DCA levels stabalise to reasonably safe levels (minimal or no side effects) on 10 - 15mg/kg/day, so stick to these levels - there is little evidence that higher doses are more beneficial anyway.

Possibly - from experience with my son, don't automatically start taking high levels of Vitamin C supplements, it may be detrimental.

Good luck.

Additional and possibly beneficial supplement is Calcium.

Oracle has also suggested lemon water (presumably lemon juice mixed with water) as the lemon is converted into alkaline by the body.

C.

Lots of twitchy movements, talking in sleep. Eyes rolling
back in head as she struggles to stay conscious. She is so
thin that every bone protrudes in her face, chest, back.
I'm sure that people think she is a severe anorexic.
Not fun to watch, at all. Still religiously taking her two caps
of Na-DCA each day. She had some fluid removed at the
hosp and her belly looks smaller now. It's hard to know
if the Na-DCA is working or not. I've been slack about
giving her the other parts of the regimen and must get
back on board with that. A good friend of my daughter
arrived today from England and her aunt comes in from
Montreal tomorrow. There's a lot of love at our house.
Each breath is precious.

Caroline

The dr has given her Ritalin to counteract the effects of the Methadone. One pharmaceutical chases another and on and on it goes.
I can't believe someone as anti-pharma as me has a daughter on so
many meds.

Caroline

Her appetite is not good and she's very thin. Still taking the Na-DCA but she's on methadone, fentanyl patch and breakthrough morphine so she
is "out of it" a lot of the day. I wake her up to eat, we are massaging and loving her and enjoying every breath she takes but I'm not hopeful
at this point. It sucks.
C.

chrisz

1. re the advice not to give Vit C. Isn't lemon juice in water a
high source of Vitamin C? I know that it is alkalinizing but it is
Vit C rich isn't it?

2. some people on the site talk about putting the Na-DCA directly on
skin surface cancers. My daughter has a nasty place below her stoma
which is open raw and cancerous. Tonight, when we changed her stoma bag, we sprinkled a little Na-DCA directly on the nasty place (powder, and it seemed to hiss a little). We then sprayed liquid bandage on top of that. We'll see what happens next time we change it. Does anyone have a suggestion on how to do it better? I can't
put anything wet on this area or the stoma bag won't adhere.

thanks for input, I've been giving her the lemon water. She went out to a movie today with friends but ate very little all day.
C.

Hi Caroline,

Re: the lemon juice. The amount of Vit C in a few ounces of lemon juice is not that significant as an antioxidant. I think the benefit of getting a higher pH makes it's use worthwhile. Oracle's wife has been using it with great results.

Re: topical application of DCA. Please see this site, not only for a possible alternative (bloodroot) but to see how they bandage (using tegaderm). You can call for more information and literature. They are very helpful. http://www.cancerx.org/ Another site on cancer pastes/salves http://www.cancersalves.com/ I bought her book.

Take care, wish you the best,
Sandra

chrisz

1. take 1/2 tsp. of Na-DCA powder and pass through fine sifter to get
lumps out.
2. sprinkle the 1/2 tsp onto the cancer wound. It stings a little at first
3. spray the Na-DCA powdered area with liquid bandage. Cover the area with a protective wound dressing
4. blot the dressing with more liquid bandage
5. place ostomy pouch device over the whole area.

1/2 tsp gives a very light coating. If anyone knows any other ideas about applying this product to cancer wounds, please let me know. I'm wondering if I should put it on a bit thicker?
Thanks for being there, everyone. She ate a bit better today and went outside in the sun for a brief walk around with her Dad.
C.

I think a DCA break is a good idea. On Medicor Cancer Centre's website they say they give DCA in cycles: i.e. 1 - 3 weeks on and 1 week off. They say it reduces side effects.

I check in every day for updates on your daughter always hoping for a significant improvement in her health. I am so impressed by the battle your family is fighting and pray you will be successful.

Best wishes
Salina

Tonight she was very down. . . thinks we have given up on her and
are just waiting for her to die. She had a good cry and then we
talked about the fact that we would do anything to have her live
but feel like we want her to be as comfortable as possible either way--recovering from cancer or dying. I feel like I'm between a rock and a hard place with feeding her. If I feed her alkalinizing foods she turns her nose up at them. Then, I go into "let's just feed her anything with calories to try to build up her weight a bit" and she thinks I'm feeding her a death diet. Oi vay.

We took her out today in the wheelchair to get the Indian Summer sun that will soon be gone and it just wore her out. She's pretty much confined to the hosp bed we've installed in her bedroom and I think it gets so boring, too. She loves getting deep reflexology on her feet so her Dad and I take turns with that.

She was saying tonight that she thinks she should go in to have some of the fluid drained off her belly again. That might give her a bit more room to eat. Trouble is that the fluid returns pretty quickly.

I appreciate all of you who are rooting for us. C.

Hi ,
I think much of Caroline and wishes her to cure.
In Switzerland,for cancer , we take many vitamins:
- vitamin C
- Multivitamines -
- Vitamin E(after eating)
Excuse-me my english is very bad

We're all here rooting for you and your daughter. Very difficult to give advice on continuously taking DCA, but personally, if there were no obvious side effects, I'd keep on with it.

Questions have previously been raised on the forum as to what happens if DCA switches back on the mitochondria?

Does the cell immediately recognise that there is something amiss and die (apoptosis), with a subsequent rapid shrinkage of the tumour - evidence of success?

or

Does the cell become 'normalised' and start behaving as a normal cell would, stops dividing abnormally and dies off normally? This could mean the tumour becomes benign, but stops growing, or could start to shrink, but only slowly over a period of several months.

If the second option is true, then it would be easy to form the opinion that the DCA is inneffective and give up on using it.

The overall picture is still very blurred.

Starting back on Na-DCA 1000 mg twice a day, after having a one week
rest. When she started the week rest she was extremely tired, sore
and no appetite. Today, she had increased energy---getting up to the kitchen with a spring in her step, watched a couple of movies right through. Not enough to go outside but better and she's eating a bit better,too. I've started giving her a couple of smoothies per day that contain: blueberries, banana, yogurt, hemp protein powder, maple syrup, brown rice milk, and, at the very end, I blend in flax oil. She drinks those down quite easily and I think they are helping to give her some energy.

We're trying to get her into the hosp for a couple of days to get some fluid drained offer her belly (quite useless, really, because it comes right back but gives temporary relief) and we have her dr researching ATP. Hopefully we can get the dr to order a 4 day I.V. treatment with ATP at the hosp at the same time she has the fluid drained.

We'll be doing the Na-DCA for 3 weeks and, then, doing a one week rest starting Oct 8, as per the regimen at the Toronto clinic. Will keep you posted on our progress. Love to all. Caroline

chrisz

We're going into the hosp tomorrow to have a paracentesis (fluid drained off her abdomen). Should only be in about 12 hrs total but that will probably exhaust her. The physician can't give her ATP to
stop her muscle wasting but, instead, offered a synthetic progesterone---aaarrrrggghhhhhh!!! We don't need that. Sometimes it boggles my mind how linked the doctors are to the drug cos.

We'll get an ATP i.v. from our naturopath.

C.

She's been feeling weak and tired for the past few days and has only been taking one capsule per day but we will start 4 capsules (2 twice a day) tomorrow. Her appetite is still quite poor but she will drink a couple of smoothies every day.

C.

Take care, my best to you all,
Sandra

God Bless your sweet girl - my wife had a lot of bad things happening to her and we maintained a lot of her health using the budwig diet - low fat cottage cheese(lots of protein for her and the combo delivers some form of a sulphuric dose to cancer cells based on Dr. Budwigs notes.), flax and flaxseed oils + DHA-organic fish oil, selenium, protien drinks with the works in them. I beleive the nano particle delivery along with working the PH. For DCA to do its thing and not sit in the fat - the alkaline should be high from my understanding but I am obviously not a medical doctor.

We do not take Vit "E" or "C" being its said here somewhere to be counter productive to DCA. We also went to Cancer treatment and wellness center in Seattle washington where they are providing a nano particle system for her.

Please think about calling Dr. Chen or see if you can see him - if your around in the USA. The cottage cheese is one fo the few things my wife could eat at times, and the flax and flaxseeds seemed to really calm her stomach down. We also take a lot of L_glutamine for her nerves to make it through chemo and we do lots of VIT "D" 8 - 10,000 mg per day. We are also on lipoic acid and coQ10 but no big C doses or E doses and its seems to be going very well this way.

God Bless your sweet baby girl and God Bless us all and let us never quit = never ever give up and your baby girl needs to feel her warrior power. Weekly Chemo's is experimental but wow we are kicking cancers butt right now by using these methods of Cancer treatment and welness Center so please have faith and hold her close for all of us as I want her to feel all of us are with her and will not let her go.

I see a light in her belly as I type and its a healing light - dont you see it? can you not see a very white light inside of her expanding outward? this light will soon to help her find warmth and new strength and hope.

She will win this fight - she will win this fight and cancer is on its way out - its history! she WILL WIN!!!!

God Bless

Oracle

We appreciate so much the help we got from this website. We probably started too late and she had a very aggressive cancer. Love to all of you. Caroline

Sooo very sorry for your loss. It seems so unfair and unnatural for a parent to lose a child, but this disease is a monster.

My deepest condolences to you and your family. Thank you for sharing this with all of us.

Take care, hugs,
Sandra

I am so sad to read this news. I have been inspired by your family's dedication & courage in the battle to save your dear daughter. For over 3 years I have been helping my Mom in her fight against Stage IV lung cancer. Some days when I felt exhausted and overwhelmed I would read your posts and be re-energized. Without knowing it, you have helped me many times. I know you are comforted by the knowledge that you did everything in your power to save Charlotte. Sadly, it was not to be. I cannot imagine the agony of losing a child. My deepest sympathy to you and your family.

Sincerely
Salina

I am so extremely sorry. This makes me so sad. I will be keeping you and your family in my thoughts. I hope you know we are all here to support you.
(Sorry I did not write earlier, I don't always see all the new messages right away.)
I wish there was more that I could do. Please take care of yourself.

Heather, Forum Moderator

chris, rosie and the kidz

This a.m. I watched a PBS program called "Family Undertaking" which is a documentary on families who bypass the funeral industry and take on the preparation and burial of their loved ones in the home. Very informative and touching. Watch for it in your local listings and record it for future reference in your families.

We were very fortunate to have a dear friend who researched all the info we needed in order to have an elegant and intimate service and cremation of our daughter. The palliative care unit where she died allowed us as much time as we needed to be with her body (take 24 hours, if you need it) and that made a huge difference. I was able to brush her hair, save some locks, clean her body and really integrate the fact that she no longer inhabited the skin and bones. When we were really ready (about 12 hrs after her death) we left her body, said goodbye and had no need to go back to view her body again. Both her dad and I broke down and cried when we received her cremated remains a week later--we weren't prepared for how it would feel to receive a package with our child in it that weighed about 5 lbs. I was glad we were together when that happened so we could hold each other and let it all out.

It's a strange feeling, missing my daughter like hell, but not missing dealing with cancer one bit. I intend to continue on in my community reaching out to others, sending them to this site, encouraging natural remedies, etc. I am so grateful that we didn't burn up her body with radiation and chemo.

C.