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billn
Member since Apr-27-07
146 posts
Apr-29-07, 10:53 AM (PST)
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"A teenagers story"
 
Billn (Unregistered was 'Billy Bean')

I decided to register as I've just started my son on DCA. Here is a quick resume of his story:

After coming back from a holiday in the States in July 2005, my son started to suffer nights sweats and his neck started to look swollen.

He was booked in to see a specialist but not until the September. It was suspected he might have Glandular fever or cat scratch disease. One Friday he wasn't well so my wife took him to the doctors where he was seen by a Locum. She was immediately suspicious and booked him into hospital as an emergency case.

Shortly afterwards, he was diagnosed as having Hodgkins Lymphoma. He was 17 Years of Age.

Having been told that in 90% of the the cases, a course of chemotherapy would clear it up, he started on an 8 months course of ABVD. Part way through the course, he had problems with the Bleomycin as he got fluid on the lungs and had to stop it.

The ABVD didn't work and in an attempt to control and minimise the Lymphoma prior to possible stem cell or bone marrow transplant, he has been through Eshap and and now Gemcitabine (just come out of being neutropenic).

He had a CT scan on Monday 23rd April and the results show that all the treatments have only held the lymphoma in check and the usefulness of the transplants are now in doubt. He has small nodules in his neck, with large masses in the chest and abdomen.

So, on Thursday 26 April I decided to start him on DCA. I'm not being too fussy about the dosage, which is:

10-15mg/kg/day in water drunk 3 times during the day.

Suppliments: Vitamin C, Calcium, Thiamine, Caffeine.

His weight is 55kg.

I didn't tell him what the effect of the DCA would be, just that it wouldn't taste awful, wouldn't have any major side effects or make him sick (he's currently feeling unwell in the mornings and still in hospital).

This morning 29th April, he rang my wife and told her that yesterday he had a cluster of four nodules on his neck (he hadn't told us about them before).

Today, he says that he can only feel 1 nodule, the others have gone.

It's been a bad week for our family, but perhaps this is a glimmer of hope. In addition, as soon as he's home, he is also going to start on the Dr Bugwig Flaxseed and low fat cottage cheese regime.

I'll update this post weekly or as there are changes.

Bless you all.

Billn


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A teenagers story [View All], billn, 10:53 AM, Apr-29-07, (0)  
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billn
Member since Apr-27-07
146 posts
May-07-07, 08:08 PM (PST)
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1. "A teenagers story: Update Week 1"
In response to message #0
 
MY son now believes the remaining nodule in his neck is smaller than it was last week, so we are staying with the same regime.

Probably a coincidence, but his blood test results from Friday 4th May show the highest platelet count for several months. I'm not linking it to the effect of DCA as it may just be that his body is finally recovering from the last bout of chemotherapy.

As his appetite has recovered (he's back on steroids for this), I will try to get him on Flaxseed Oil and Cottage Cheese (Dr Budwig) tomorrow as.

I'm fairly convinced that Dr Budwig's method works at the cellular membrane level, where of course, DCA works at the mitochondrial level.

I'm hoping that the two methods in combination will be very effective.

Billn


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billn
Member since Apr-27-07
146 posts
May-13-07, 06:09 PM (PST)
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2. "RE: A teenagers story: Update Week 2"
In response to message #1
 
He's now on both regimes,DCA and Dr Budwig.

He's feeling well and has put on weight, which is now 59kg - up from 55kg two weeks ago (the most he has ever weighed).

To date, no sign of any side effcts related to DCA, which is being diluted in water and drunk 3 times daily.

Billn


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oracle
Member since Mar-17-07
194 posts
May-15-07, 02:37 PM (PST)
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3. "RE: A teenagers story: Update Week 2 - Awesome!"
In response to message #2
 
we are working with a naturopath PHD and an oncologist who are the brightest pennies our cancer pockets has ever had in them and they believe in DCA. They also emphasized Vitamin D big time - if you like you can these links:

http://news.bbc.co.uk/1/hi/health/5334534.stm

http://www.canlyme.com/Vitamin_D_2005.html

http://news.independent.co.uk/world/science_technology/article335359.ece

This one ahs some dosage info at the bottom o fthe story:

http://www.newhope.com/nutritionsciencenews/NSN_backs/Mar_00/vitamind.cfm


God Bless!

Oracle

Oracle


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satx
Member since May-9-07
104 posts
May-15-07, 06:16 PM (PST)
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4. "RE: A teenagers story: Update Week 2 - Awesome!"
In response to message #3
 
   An excellent source of cancer-fighting Vit A, D, E as well as Omega-3:

http://www.carlsonlabs.com/product_detail.phtml?prodid=00205&categid=03a9

http://www.carlsonlabs.com/product_detail.phtml?prodid=ecf8a742&categid=03a9


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billn
Member since Apr-27-07
146 posts
May-16-07, 11:30 AM (PST)
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5. "RE: A teenagers story: Update Week 2 - Awesome!"
In response to message #3
 
I'm surprised by a comment in the article on the BBC website regarding calcium:

"However, the researchers found no evidence of a link between risk of the cancer and calcium, or retinol, a vitamin which affects vitamin D's impact on calcium absorption."

If you check Wikepedia,
http://en.wikipedia.org/wiki/Parathyroid_hormone

you'll find detail of Parathyroid Hormone (PTH), which controls the release into the bloodstream of calcium from the bones. Also calcitonin(Thyroid Gland), which suppresses calcium release.

I wonder if any sufferers have had their PTH levels monitored?

When you Google, there is alot of information on th benefits of maintaining good calcium levels.

My son is also taking Vit.D.

Billn


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billn
Member since Apr-27-07
146 posts
May-27-07, 07:52 PM (PST)
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6. "RE: A teenagers story: Update Week 3 3/4"
In response to message #5
 
Running a bit late this week.

My son felt very well last weekend - the best he had felt for ages he said. He was eating well and even exercising, so things were looking good.

He then went into Hospital for a bone marrow harvest on Monday - and promptly went down with an infection, which he is just getting over (he had to stay in hospital).

This means the week has been a little bit cloudy as to the effectiveness of the DCA, but he is still taking it along with the supplements and today (his birthday) came out of Hospital for most of the day. He was a bit tired by the end of the day, but reasonably cheerful.

As before, no DCA side effects at all @ 15mg/kg.

Billn


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Diana
Member since Mar-22-07
4 posts
May-28-07, 02:55 AM (PST)
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7. "RE: Wikipedia"
In response to message #5
 
   Hi,

A note of caution about Wikipedia is that it is banned from being cited as a authoriative sources for Post-Secondary papers or essays. Its been shown that though it is useful, it lacks 100% credibility.

D


>I'm surprised by a comment in the article on the BBC website
>regarding calcium:
>
>"However, the researchers found no evidence of a link
>between risk of the cancer and calcium, or retinol, a
>vitamin which affects vitamin D's impact on calcium
>absorption."
>
>If you check Wikepedia,
>http://en.wikipedia.org/wiki/Parathyroid_hormone
>
>you'll find detail of Parathyroid Hormone (PTH), which
>controls the release into the bloodstream of calcium from
>the bones. Also calcitonin(Thyroid Gland), which suppresses
>calcium release.
>
>I wonder if any sufferers have had their PTH levels
>monitored?
>
>When you Google, there is alot of information on th benefits
>of maintaining good calcium levels.
>
>My son is also taking Vit.D.


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billn
Member since Apr-27-07
146 posts
May-28-07, 07:56 PM (PST)
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8. "RE: Wikipedia"
In response to message #7
 
This particular point was highlighting the biological working of the Parathyroid and Thyroid Glands in controlling the calcium level (and hence the ph) of the blood.

Wikipedia was just a reference that is easily accessible - of which there are probably hundreds.

Billn


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billn
Member since Apr-27-07
146 posts
Jun-17-07, 04:40 PM (PST)
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9. "Update"
In response to message #8
 
Running abit late.

I haven't posted recently, because my son was having major problems with infections.

He had the results of a CT scan last week that showed no improvement of the Hodgkins, in fact there was a slight progression.

I have now upped the DCA dose to 20mg/kg/day and may consider going up to 25mg.

He's currently in chemotherapy on gemcitabine and cystoplatin - no apparent side effects

Billn


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DerekSmith
Member since Mar-30-07
53 posts
Jun-18-07, 10:40 AM (PST)
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10. "RE: Update"
In response to message #9
 
   Hi Billn,

Sounds like your son's system is taking a bit of a kicking..

Consider two things ..

First Candida. It is a little yeast that is always with us, but when we get run down, or use antibiotics, then it quickly gets aggressive. It causes bloating, depressions and damages the immune system. Consider starting a Threelac programme to keep it in check and remove its burden from the equation.

Second Ascorbate. Whenever our systems are under attack, loads of free radicals are released which quickly mop up ascorbate. You have not stated your sons intake level, but it is highly likely that his body demand could be in the 50g per day range or even higher to satisfy the demands of free radical neutralisation and still leave free ascorbate in circulation. A word of caution however. Some cancer therapies rely on free radical production to kill the cancer cells (i.e. radiation therapy). Using ascorbate will simply negate the potential positive effects of the therapy, so ALWAYS discuss its use with your consultants.


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billn
Member since Apr-27-07
146 posts
Jun-18-07, 11:19 AM (PST)
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11. "RE: Update"
In response to message #10
 
Candida was looked into as a possible cause.

50gm seems alot and I'm not aware of anyone taking that amount?

Thanks for the suggestion, I may try building up to it slowly and of course, keeping a very close eye on any side effects.

Thanks.

Billn


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oracle
Member since Mar-17-07
194 posts
Jun-19-07, 03:01 AM (PST)
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12. "RE: Update on Lymphoma's - Dendritic Cells?"
In response to message #11
 
This morning I read that they have already found forms of a high cure rate of Lymphoma some due to findings for AIDS patients using dendretic cell replacment.

See for yourself at the following links below and can anyone tell what this is not fully implemented into treatments all over the world?:


http://ard.bmj.com/cgi/content/extract/60/2/173b
http://cancerres.aacrjournals.org/cgi/content/abstract/65/13/5958?etoc

Oracle


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DerekSmith
Member since Mar-30-07
53 posts
Jun-19-07, 10:28 AM (PST)
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13. "RE: Update"
In response to message #11
 
   Hi Billn

>Candida was looked into as a possible cause.

As a possible cause of what?


>50gm seems a lot and I'm not aware of anyone taking that
>amount?

When you are sick your body uses up (and therefore needs) a lot of ascorbate. For example, a simple cold, when symptoms develop I will take 3g of ascorbic acid dissolved in an 8oz glass of water every 10min to 15min over a period of ca 4hrs -- that's ca 50g to 60g of ascorbic acid in 4hrs and at the end of the 4hs the cold will be gone. Many other diseases challenge our ascorbate residuals in the same way and in order to keep free ascorbate in circulation we have to up our intake. It's trial and error as to when we have taken enough ( bowel loosness once you are taking more than the body needs).

For your sons body weight, keep each drink down to ca 2g max (ca half a level teaspoon)in an 8oz glass of water. If you need more ascorbate then drink it more frequently - do not make the mistake of drinking more in one glass -- little and often is the real guide for ascorbate intake.

However, as I mentioned before, be sure to discuss ascorbate with your sons consultant because it might negate the effectiveness of any conventional therapies they are giving him.


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Sandramoderator
Member since Feb-27-07
880 posts
Jun-19-07, 06:03 PM (PST)
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14. "RE: Update"
In response to message #11
 
Hi Billn,
I was having Vitamin C IV's once or twice a week for many months (until my veins were shot) and each contained 62.5 grams. (IV administration produces a much higher blood level than oral does). Plus I was supplementing with about 12-14 grams orally on my off days.

Here's a buffered vitamin C with 8 different mineral ascorbates:
http://www.aviva.ca/shop/products.asp?itemid=4843&catid=205

Take care,
Sandra


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billn
Member since Apr-27-07
146 posts
Jul-03-07, 07:44 PM (PST)
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15. "Update latest news"
In response to message #14
 
It's been a while since a report, so:

My son finished the course of gemcitabine and cystoplatin and remained on DCA throughout.

Most notably, he has just had the results of a CT scan following the course, which has shown some improvement in the Hodgkins.

As a reminder, when he had a course of gemcitabine and cystoplatin before starting DCA, there was no improvement.

So, this may indicate that DCA and gemcitabine/cystoplatin work beneficially together.

Unfortunately, the only option still available is a Bone Marrow Transplant, which he is having next week. I think he'll have to come off the DCA for a while as he will be in isolation. However, I will start him back on it as soon as possible.

Regards my post 6:

At the start of taking DCA, he was wasn't taking Ascorbate (Vit.C)and he was feeling great.

However, on introducing this into the regime there has been a gradual deterioration in his well being and attitude. He was on several grams per day up until:

Two days ago I told him to totally stop taking Ascorbate. Already, he seems much brighter. Perhaps Hodgkins may be one of those cancers where Ascorbate is not beneficial in conjunction with DCA.


Billn


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Sandramoderator
Member since Feb-27-07
880 posts
Jul-03-07, 08:20 PM (PST)
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16. "RE: Update latest news"
In response to message #15
 
Or it may be that DCA does not work well with antioxidants:
http://www.thedcasite.com/dca_protocols.html


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billn
Member since Apr-27-07
146 posts
Jul-05-07, 12:44 PM (PST)
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17. "RE: Update latest news"
In response to message #16
 
Thanks Sandra,

There is a lot of pushing in the posts towards using large and regular doses of vitamin C as it is beneficial - 'the rats produce lots of their own Ascorbate - so this must be a critical part of the regime as their cancer shrank' belief.

I guess this is a warning then. If you start taking vitamin C with DCA, monitor any change in general well being and be prepared to stop taking it, as it may be counter productive.

Billn


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billn
Member since Apr-27-07
146 posts
Aug-01-07, 09:44 PM (PST)
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18. "RE: Update latest news"
In response to message #17
 
A very brief update,

My son had an unrelated bone marrow transplant 3 weeks ago and is still in isolation. Naturally, his immune system is still hovering around neutropenic, so he has had no DCA since the week before the transplant when he started conditioning chemotherapy.

As soon as he's out and feeling better, I'll discuss with him if he wants to start taking DCA again.

Billn


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oracle
Member since Mar-17-07
194 posts
Aug-04-07, 08:19 PM (PST)
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19. "RE: Update latest news - GOd Bless"
In response to message #18
 
Hey Billn your son is a true warrior so make sure he knows there is a lot of Black Belts on the site keeping a close eye on his warrior spirit and progress. I really like taking the Quecertin manufactured by TWINLABS becuase they load it up with Vitamin C as well so its a really great tasting lemonish drink that takes away the feeling your drinking something that is not just a great healthly sit in the sun lemonade drink

Can you have sun Lamps in a hospital room? Since the body will make its own vitamins and those rooms are not sunny maybe you awesome son could use something to cheer him up like that? not sure if you can have sunlamps in the room but what a spirit booster - no?


My wife also had that dam thing in her Lymphnodes and the big Alliance said she is dead - no chance - well its gone now - Your son will get through this - just stay strong in your determined struggle to find a way.

If you do not get proper results maybe you should think about CTC and if your already with CTC then change to CTC and Wellness Center In Seattle WA. My wife and I moved on 2 times finally transfering from Oklahoma to here and god what a difference it has made in our lives.

Sometimes we feel like chipmunks in winter hunting for acorns but every once in a while we find one and that makes it all worth while.

God Bless You and Your Warrior Son - stay strong and give no quarter -give not one inch man - beat this thing.

For me I am desperate 24X7 so I do not leave DCA as an option for my wife - she takes it or I remind her they told her chemo, radiation and all treatments known to humans will not save her.

Its the truth and sometimes as sad as it is I do and say whatever it takes becuase the reality of it happening is far worse then me saying remember when they told us - you will die in 6 - 8 months with treatment! - well your alive and playing Ping Pong so stay tuned.
This boosts her determination and she always bounces back even sronger with a new vigor and even with song saying I love daddy at times - a cool - weird but its the truth !

Your son is so brave and strong at his age so keep him away from those marine recruiters they like guys like him Your son will beat it! He has a great father with a good mind. He will make it - your son is already defeating it so no mistake and get ready for some good times - better days are ahead!.

God Bless

Oracle


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billn
Member since Apr-27-07
146 posts
Aug-13-07, 11:36 AM (PST)
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20. "RE: Update latest news - GOd Bless"
In response to message #19
 
Oracle,

Thanks to you and everyone else for their kind and supporting words.

Four weeks post Bone Marroww Transplant and finally some good news!

My son had a CT scan last Thursday and over the weekend the results came back showing no sign of the disease, just a 1mm speck in his chest that could just be a fungal infection - at least the doctors aren't worried about it.

This is great news, although I must admit I don't want to get too excited as there is still a long, long haul ahead to full recovery and chance of many pitfalls.

I'm now questioning whether to put him back on DCA at all for the following reasons:

Browsing the net and the science blogs, I've found several that question the differences between acetic acid and NaDCA, primarily that the only difference between acetic acid and DCA chemically seems to be the subsitution of some hydrogen atoms by some chlorine atoms. So, why should DCA be so special? (I'm not a chemist, but I do know that very minor differences in structure between similar molecules can result in major differences in chemical properties).

Now, you have been reporting success using 'lemon water', DCA and Quercitine, so could lemon juice be just as good as DCA in fighting cancer?

Of couse, it sounds ridiculous saying lemon juice can directly fight cancer, because if lemon juice was an effective cancer fighter, it would have been identified years ago?

So. I may be putting my son onto lemon water instead.

Billn


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billn
Member since Apr-27-07
146 posts
Aug-13-07, 07:53 PM (PST)
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21. "RE: Update latest news - GOd Bless"
In response to message #20
 
Sorry, Playing the part of a doughnut today.

Lemon juice is of course Citric Acid - not acetic acid!!

Billn


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satx
Member since May-9-07
104 posts
Aug-14-07, 00:53 AM (PST)
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22. "RE: Update latest news - GOd Bless"
In response to message #20
 
   I think there needs to be some clarification about DCA and concurrent anti-oxidant foods and supplements.

I have a suspicion that anti-oxidants and flavanoids that are so pervasively recommmended for non-cancer, healthy people are counterproductive to DCA and some other cancer treatments.

As always, clear as mud.


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Dave
Member since Mar-5-07
41 posts
Aug-16-07, 01:16 AM (PST)
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23. "RE: Update latest news - GOd Bless"
In response to message #20
 
   Billn:

Congrats on the good news regarding your son.
In response to your thoughts regarding DCA and acetic acid - would a lemon juice, quercetin cocktail washed down with some apple cider vinegar be something to consider ?

Dave


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satx
Member since May-9-07
104 posts
Aug-16-07, 08:26 AM (PST)
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24. "RE: Update latest news - GOd Bless"
In response to message #23
 
   "Quercetin is known as a potent antioxidant that helps fight free radicals that can cause cellular damage."

Oxidative damage is what we are supposed to be causing to cancer cells with DCA.

So isn't supplementing with (strong) anti-oxidants and consuming high anti-oxidant food nullifying DCA?

It seems to me that "eating unhealthy" by minimizing anti-oxidants is how to complement DCA.


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billn
Member since Apr-27-07
146 posts
Aug-16-07, 11:58 AM (PST)
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25. "RE: Update latest news - GOd Bless"
In response to message #24
 
This is the problem,

The benefits or otherwise of anti-oxidants such as Quecertin and Vit.C and their effects on cancer may depend on the individual and the type of cancer.

This is why I took my son off Vit.C. The more I gave him thinking it was beneficial,(in conjunction with DCA), the more he deteriorated.

Billn


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billn
Member since Apr-27-07
146 posts
Nov-27-07, 06:10 PM (PST)
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26. "RE: Update latest news"
In response to message #25
 
I thought it was about time I gave an update.

Good news, following a recent scare, a CT scan has shown that my son is in remission following his bone marrow transplant in July.

He still takes DCA every couple of days, but I'm looking at a long term regime to maintain high ph, not only for him, but the whole family.

I found a product called Alkalirk (just type it into Google), which is basically alkalising water using minerals. It's quite cheap, seeing that the minrals last for 18 to 24 months.

Has anyone had any experience of this product? Apparently it is approved by the FDA.

Billn


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Sandramoderator
Member since Feb-27-07
880 posts
Nov-27-07, 09:57 PM (PST)
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27. "RE: Update latest news"
In response to message #26
 
Awesome news Billn!!

Re: pH and minerals, yes they work to alkalinize, but I think powdered greens are great too, because then you get the added benefit of enzymes.

Here's one I take:
http://www.nationalnutrition.ca/detail.aspx?ID=1967

It doesn't taste as bad as some of the other ones.

Take care,
Sandra


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billn
Member since Apr-27-07
146 posts
Nov-28-07, 09:05 PM (PST)
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28. "RE: Update latest news"
In response to message #27
 
Thanks Sandra,

Yes it was really great news!!

If we had known that my son would have had so have so much chemotherapy(that didn't work), we would have asked about the transplant much, much earlier.

Obviously, a transplant is seen as a final last ditch salvage, but by the time you get to this position, the bone marrow (and your immune system) has taken a severe pounding that actually increases the risk of not surviving. I think BMT should be viewed much earlier as a viable option in those cases where a transplant might be effective, while the persons immune system is still strong (even though it will be destroyed by the process).

Before the transplant, the figures the specialists give you about the survival rate are really quite scary (just from the transplant).

However, having been through it and being in the company of about 10 children and adult who have had a BMT, it's not that bad. My son has suffered far less from the BMT than from some of the chemo he had.

Billn


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Sandramoderator
Member since Feb-27-07
880 posts
Jan-27-08, 05:22 AM (PST)
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29. "RE: A teenagers story"
In response to message #0
 
LAST EDITED ON Feb-05-08 AT 08:44 PM (PST) by admin (admin)
 
Billn,

Did you see this?! http://www.thedcasite.com/dca_tea_caffeine_link.html It appears you might really be onto something with your use of caffeine with DCA.

It appears that Black Tea also alkalinizes, even though it is acidic - just like lemon juice.

Take care,
Sandra


ADMIN UPDATE: That link is:
http://www.thedcasite.com/DCA_protocol/dca_tea_caffeine_link.html


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billn
Member since Apr-27-07
146 posts
Feb-05-08, 01:33 PM (PST)
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30. "RE: A teenagers story"
In response to message #29
 
Hi Sandra,

Yes, very interesting reading. In my (very), un-medical opinion, I believe it is the caffeine that is the key as it stimulates cytochrome c release (part of cell apoptosis)- that's why I had my son on Pro-Plus (Caffeine) tablets with the DCA.

Hopefully, other topics will now start to emerge, such as Petty Spurge (common milkweed) - already highlighted as having cancer curing properties.

And,possibly even Insulin:

http://www.emedicine.com/emerg/topic135.htm

Diabetic Ketoacidosis creates a low PH and giving insulin brings it back up (as does Hyperventilation). I've already mentioned this on one of Oracles postings.

I'm sure there are many links to be made. As has been said many times on the site, an eventual succesful cure/treatment for cancer may be a combination of many different treatments.

My son is now nearly fully recovered, still clear and has re-started his part time job. He's been accepted at University and in September will be off to study Adult Nursing. I have a good idea which area of medicine he wants to focus on in his career!

He still takes DCA occasionally, but as I posted on the site earlier, the whole family now drinks alkalised water. I don't normally promote commercial products, but I bought some minerals from "Alkalark" (search the web) and we leave these in a water jug that we drink from. Very, very cheap (a few dollars or pounds a month) and it's actually approved by the FDA.

I've no idea if all the Alkalark web site's claims are true, but since we started using it, I've lost 7lb without dieting and my wife says she doesn't get the normal pre-menstrual bloating, so perhaps there is a subtle benefit. I think it's worth thinking about, especially in combination with DCA.

I aim to stick around on the site and input where appropriate, after all:

WE ARE A FAMILY!

Best wishes to all

Bill


Billn


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billn
Member since Apr-27-07
146 posts
Apr-15-08, 11:30 AM (PST)
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31. "RE: A teenagers story"
In response to message #30
 
Here is an update on my sons condition:

Wednesday 9th April he went for the results of a routine CT scan, which brought unhappy news of a "4cm abnormality" in his abdomen near to his pancreas, which had not been present on his previous CT scan.

His specialist believes this is related to the Hodgkins and treatable by Radiation/chemotherapy, but he has booked a PET scan to get more data, with a possible biopsy as well. He is also organising a stem cell and lymphocite top up.

I decided not to waste time and on the Thursday 10th stressed to my son the importance of the DCA/caffeine protocol and he is now on:

DCA: 15mg/kg, drunk 3 times daily.
Caffeine: 150mg taken 3 times daily at the same time as the DCA. (Total dose 450mg per day).
Tea - about 3 cups of black tea a day.
No other supplements

Morning of Saturday 12th: He complained of a strong aching in the pancreatic region, enough to make him grimace in pain. This lasted about 2 hours before easing off.

He's still on the protocol, but no other pains, so I'm hoping this was the DCA/caffeine working.

I'll post the results of the PET when I know more.

Billn


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chrisz
Member since Jul-13-07
95 posts
Apr-15-08, 01:33 PM (PST)
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32. "RE: A teenagers story"
In response to message #31
 
   Thanks for the update.
Our prayers and thoughts are with you.


chrisz


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Sandramoderator
Member since Feb-27-07
880 posts
Apr-15-08, 04:21 PM (PST)
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33. "RE: A teenagers story"
In response to message #31
 
If it's any encouragement, it's likely the pain your son felt is a strong indication DCA is doing it's thing! I look forward to good news when he gets that PET scan!

Take care,
Sandra


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billn
Member since Apr-27-07
146 posts
May-01-08, 12:14 PM (PST)
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34. "RE: A teenagers story"
In response to message #33
 
Unfortunately my son contracted a throat infection (tonsilitus most likely) that moved to his ear and became quite severe, paralysing one side of his face and causing hearing loss.

He didn't respond to oral antibiotics, then broke out in spots (yes - Chicken Pox) and had to be admitted to hospital so that the antibiotics could be intraveneously administered, so the PET scan had to be put back.

He was released yesterday and is recovering, but he couldn't follow the caffeine protocol while admitted. Back on it today.

PET scan due next Tuesdy

Billn


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lange leng
Member since Mar-3-08
27 posts
May-01-08, 07:00 PM (PST)
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35. "RE: A teenagers story"
In response to message #34
 
   Hello Billn,

I read your story today and have to tell you that my husband has had an infection witch made him take antibiotics. He didn't get better and after Jim told us to try take MMS we immediatly did. After 2 dosses of 5 drups MMs and 25 drups citric acid he went much better. Today is the second day, of MMS take and things are going fine. Maybe your son can try it to, if he doesn't like the taste and smell of it, then put it in applejuice. You will see that he can swallow it very easely. Hope this was of any help, bless you and your loved ones.

Karin


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billn
Member since Apr-27-07
146 posts
May-20-08, 04:21 PM (PST)
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36. "RE: A teenagers story - and update"
In response to message #35
 
Thanks,

The infections are a real pain - no sooner over his chicken pox and he was back in with another infection. So far, he's been in for a week, but recovering well.

Anyway, some positive news. His PET scan came up good, with a node of 2cm (as compared to the previous CT scan at 4cm). He (and his mother were so relieved that they forgot to mention this to his specialist!

So, it looked like the caffeine DCA protocol is working in his case (but he hasn't been on it for about 3 weeks because of being in hospital).

Briefly: Some things I found: Caffeine and its metabolites Paraxanthine and Theophylline in addition to DCA are all TNF-alpha inhibitors.

http://en.wikipedia.org/wiki/Tumor_necrosis_factor-alpha

The information on the net is ambiguous, sometimes TNF-a production is good for cancer, other times bad....

When TNF-alpha production is suppressed, this leads to increased Cyclic AMP production and cell apoptosis(?), but again, the information is ambiguous.

TNF-a is also involved in inflammation and I've seen on the web that Rose Hip syrup is good for arthritis sufferers because it is anti-inflammatory, so i'm guessing it may also suppress TNF-a.

I'm adding it to the arsenal.

Billn


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chrisz
Member since Jul-13-07
95 posts
May-20-08, 09:22 PM (PST)
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37. "RE: A teenagers story - and update"
In response to message #36
 
   Great News.
i am always inspired when reading posts like yours and oracle's updates on Lien.
it keeps us going.
thanks for the update and info and keep on fighting.
good vibes coming your way

chrisz


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billn
Member since Apr-27-07
146 posts
Jul-30-08, 11:25 AM (PST)
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38. "RE: A teenagers story - and update"
In response to message #37
 
Update from the PET scan results:

Following the result, which showed 'something'in his abdomen, he received a donor lymphocyte top up - and continued with DCA, Vitamin B and Caffeine protocol.

He has since had a CT scan and when he went for his regular checkup, his specialist didn't have the results, so he had to go out and get them.

My son said he came back into the room with a great big smile on his face and told him the scan was completely clear (which he said he hadn't expected).

Great news and perhaps another indication that DCA is good in combination with other therapies.

Billn


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rtshinn
Member since Mar-7-07
136 posts
Jul-30-08, 12:52 PM (PST)
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39. "RE: A teenagers story - and update"
In response to message #38
 
   Fantastic!


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chrisz
Member since Jul-13-07
95 posts
Jul-30-08, 02:29 PM (PST)
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40. "RE: A teenagers story - and update"
In response to message #39
 
   awesome and inspiring for the rest of us here.
keep up the good work and keep us posted.

chrisz


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Sandramoderator
Member since Feb-27-07
880 posts
Jul-30-08, 04:31 PM (PST)
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41. "RE: A teenagers story - and update"
In response to message #38
 
Awesome news Billn!

This has always been my greatest hope for DCA - that it would reduce the suffering and extend the lives of children and young people with cancer.

Congratulations!

Sandra


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lange leng
Member since Mar-3-08
27 posts
Aug-02-08, 11:18 AM (PST)
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42. "RE: A teenagers story - and update"
In response to message #38
 
   Dear Billn,

I'm so happy to hear this news. It gives me the information that what we did in the treatment for Eric was the right thing to do.
For him it was too late to start DCA, we've tried and lost. But to all those who are taking it I'd like to say "keep going you will beat this monster !" Hopefully there will come other messages like yours for everyone.
Thinking of you all, Karin.

Karin


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gece
Member since Jul-23-08
9 posts
Aug-03-08, 09:10 AM (PST)
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43. "RE: A teenagers story"
In response to message #0
 
   That is a good news. I believe your son will be better than before..


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billn
Member since Apr-27-07
146 posts
Nov-01-09, 07:00 AM (PST)
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44. "We lost him"
In response to message #43
 
I have not posted for some time, basically because I had been supporting my son.

Sadly, he started to decline in health in May 2009 and despite all attempts and protocols, chemotherapy, Bone Marrow Transplant, DCA and Caffeine, the Budwig Diet etc he could not win in the end.

He passed away at home on the 25th November, at home with my wife and I by his side.

He battled for over four years against Hodgkins, never ever complained about his lot and he was a very, very brave young man.

His name was Andy and he was 21 years of age when he slipped away.

If you want to know how other people view those who battle on with cancer you can download this radio tribute to Andy - it may not be a top class professional production - but it is all heart.

http://soundcloud.com/ed-liner

Bless us all.

Billn


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Sandramoderator
Member since Feb-27-07
880 posts
Nov-01-09, 07:07 AM (PST)
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45. "RE: We lost him"
In response to message #44
 
Bill,

My heart goes out to you and your family. I have 2 sons (22 and 20) that I try my best to protect from my cancer struggles. I can't fathom the situation in reverse with one of them in my shoes... I'm so very sorry... I don't even have words...

Love and prayers,
Sandra


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chrisz
Member since Jul-13-07
95 posts
Nov-03-09, 01:23 PM (PST)
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46. "RE: We lost him"
In response to message #45
 
   i'm so sorry to hear this news.
your son's fight will live on through us.
Our thoughts and prayers are with you and your family


chrisz


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adminadmin
Member since Feb-7-07
235 posts
Nov-03-09, 04:38 PM (PST)
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47. "RE: We lost him"
In response to message #46
 
Our condolences to you, Billn. We are so very sorry for this great loss. You are in our hearts.

Heather
TheDCASite Forum Moderator


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brad_linda17_20
Member since Jun-1-10
1 posts
Jun-01-10, 02:03 PM (PST)
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49. "RE: We lost him"
In response to message #44
 
Brad, The Champion

Dear Billn and family,
I just joined the DCA forum and am always drawn to those that have lost children. Andy's cancer is parallel to Brad's. Both had Hodgkins
and far too much trust was handed to physicians that I did not realize had so little knowledge about all protocols. To this day I feel that the posion did damage that is a major factor to not surviving. Brad was diagnosed at 15 in 1999, fought for five years and he left us in 2004 at age 20.
Seeing Brad and other children on the pediatric floor of a local children's hospital I vowed it would be my mission to do what I could to see that Alternative protocols are no longer hidden by those that have so much profit to gain that they will stupe to any way to keep us ignorant. Money rules in the USA as we have seen over and over.
I know how you grieve, I am still there after six years.

Linda Brad's Champion
http://www.bradkimball.com


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oracle
Member since Mar-17-07
194 posts
Nov-16-09, 01:49 AM (PST)
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48. "RE: A teenagers story - God Bless Your Amazing Son"
In response to message #0
 
Hey Bill we have talked many times and your very intelligent to read so please just hear me out.

My wife Lien had three big nodules in her neck when she started DCA not to mention bone, liver, both lungs and it has metastasized in her lymphatic system.

She alkalined using "Alka-life" in all her filtered water. She never drank anything under 9.0 or higher alkaline water. She had daily glasses of Lemonade and lots of tea. Black and Green.

She took her DCA along with a mixture of magnesium, Vitamin D (mega doses - about 2400iu's twice a day - and that was mixed in with some Arizona ice tea which completly wiped out any bad taste - better than anything we have tried.

We stopped Vitamin C knowing it fights DCA at the cellular level based on John the chemist observations.

Inside of 5 months she was completely clear of all cancer except for the lungs. She did this with only minimal light dose chemo about every two - three weeks.

We also used on 20 mg dose at night of melatonin.

She kicked that lymphomas behind so I beleive with a tweak here and there your son will be cancer free and then its just maintenance and keeping his system rocking man.

I really appreciate this post Bill becuase it reminds me that my wife has made a lot of progress which is hard to see at times. I cannot imagine what its like to have your baby in trouble but I can say that he could not have picked a better dad to take this challenge with.


Please allow me to humble myself before you as a man and a father and say I pray for your son and for you to stay strong.

also have you checked out Proteolytic Enzymes - google it man its a winner that I am going to start as soon as I can.


God Bless Us All
O

Oracle


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