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dustin
Member since Sep-13-10
26 posts
Nov-05-10, 01:24 AM (PST)
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"Our fight Our Protocol"
 
   July 12, 2010-

Diagnosed with brainstem glioma. Started Dca (16mg/kg) B1 Pomagranate extract "greens" green tea extract (low caffiene) VitC (as per U of A trial instructions). We are not having any Chemo, radiation or surgery...only the protocol listed above!

Diet=NO SUGAR, FRUIT OR CAFFIENE!!

Tumour remained stable until....

Aug 20, 2010-

tumour shrunk by 20% (YAY!!)

Diet = unchanged

Tumour remained stable until...

October 15, 2010-

Little bastard shrunk again by 8% (yay again

Nov 5, 2010-

Tumour is stabale

Diet = unchanged...

*****going to consider adding Q10 to our protocol. Our trial ends in 2 weeks and we have purchased DCA through pharma-DCA.com. When it arrives I will be sending it to an industry contact who works for a very well established analytics firm. Will test for purity, additives and binders. Will post results of the analysis as-well as our progress going forward.


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Our fight Our Protocol [View All], dustin, 01:24 AM, Nov-05-10, (0)  
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robmx
Member since May-25-09
63 posts
Nov-07-10, 11:12 PM (PST)
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1. "RE: Our fight Our Protocol"
In response to message #0
 
   When you say it shrank by 20% are you talking about one linear measurement or the volume?


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dustin
Member since Sep-13-10
26 posts
Nov-09-10, 10:33 PM (PST)
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2. "RE: Our fight Our Protocol"
In response to message #1
 
   CORRECTION......NO B1!

Total volume I do believe.


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dustin
Member since Sep-13-10
26 posts
Nov-09-10, 10:33 PM (PST)
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3. "RE: Our fight Our Protocol"
In response to message #1
 
   Update:

We spoke to our doctor and we asked about including "coenzyme Q10" into our protocol and he said it was a great idea as it should help the cells start using O2 (rather than glucose) when they try and "flip the switch" in regards to the mitocondria. Kind of like a kick in the ass!


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dustin
Member since Sep-13-10
26 posts
Nov-24-10, 10:54 PM (PST)
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4. "RE: Our fight Our Protocol"
In response to message #3
 
   Since my last post it has shrunk another 6%! It seems as though her symptoms get worse right before we get news that its shrinking?! I've read other posts that claim the same. But, its still hard because you just cant know until the PET scan comes back!

Almost two weeks with NO symptoms, until today (yesterday we heard it has shrunk). Not sure if her symptoms coming back means its shrinking more....sure hope so though!!

*****Diet is still unchanged****


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dustin
Member since Sep-13-10
26 posts
Dec-01-10, 00:37 AM (PST)
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5. "RE: Our fight Our Protocol"
In response to message #4
 
   We went for our exit interview from the U of A trial and we were extended another month due to how well she is responding to the DCA.

We were told that if we see another regression than we can continue until the DCA stops showing positive results. At that time we wil be sent for more standard therapy.

Recieved my order of DCA from pharma-dca.com today (for when the trial ends).

Keeping smashing these lil bastards everyone!!


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oracle
Member since Mar-17-07
417 posts
Dec-09-10, 11:20 PM (PST)
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6. "RE: Our fight Our Protocol"
In response to message #5
 
WOW your doing very well and obviously on to what works!
Keep it up and keep us informed. I can attest to coQ10 becuase when Lien was on it she really had great response to her protocols - amazing results when she moved to the budwig protocol, coQ10, alkalining her system,DCA and she drank a lot of tea, Green mostly but black tea once a day to kick the DCA up a bit. You should check out lemon drop for a sweetener that really hits the spot for lemonade. Its sweetened with stevia and wow its perfect for delicious lemonade. We found lemonade was a great taste even in her most ill state good old lemonade still made things easier after a chemo.

Something interesting to always think about and thats each person has a unique response to these different methods. I can say it really is an amazing feeling to know that your beating it.

God Bless Us All
O

Oracle


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dustin
Member since Sep-13-10
26 posts
Dec-29-10, 10:24 PM (PST)
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7. "RE: Our fight Our Protocol"
In response to message #6
 
   Thank you Oracle!

Sounds strange...but I've read alot of your post and they helped me be strong and help her...so thank you for that! Funny about the stevia...I've done some trial and error (mostly error...lol) and I have learnt to make a pretty decent hot chocolate with it!

We did just learn that her tumour has broke down too fast and is now collecting in the kidney. She made the choice to stay on high doses of DCA for an additional month (ending mid Jan) than we'll get another full body scan to see what's going on. We're thinking it is just TLS and not metasis....hope so!! Either way we're to going to take the fight to the disease and smash it!!

Good to meet you Oracle...you've done lot's man....hope you realize this?!

Dustin


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zehra
Member since Jul-25-09
38 posts
Dec-30-10, 08:30 AM (PST)
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8. "RE: Our fight Our Protocol"
In response to message #7
 
  
Hi Dustin,

let me remind you that TLS can be very very very dangerous syndrome, and should be managed by a professional care.
best wishes to all,


WE SHALL OVERCOME!!!


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oracle
Member since Mar-17-07
417 posts
Feb-28-11, 09:37 PM (PST)
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9. "RE: Our fight Our Protocol"
In response to message #0
 
If one has a weak immune system or wants a strong one I highly recommend it based on its amazing effects on Lien. Of course Im not a doctor so its just an observation - but it really helped us.

God Bless
O

Oracle


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jalosins
Member since Oct-14-11
1 posts
Oct-14-11, 01:36 AM (PST)
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10. "RE: Our fight Our Protocol"
In response to message #0
 
   Are you from Edmonton?? How is the progress so far?


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