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robinson
unregistered user
Mar-27-07, 03:16 PM (PST)
 
"Re: DCA sideeffects"
 
   I began using DCA for Stage IV breast cancer, mets to bone, lung and lier, 19 days ago. We tried several MDs but no one would prescribe or be responsible for monitoring so we're on our own. I'm taking 25 mg/kg. At the same time, I began a course of essential oils and am trying to sort out what may be reactions from oils and what might be from DCA. Has anyone had stomach upset or just general tiredness/malaise? How common are tremors? Does anyone feel more pain at tumor sites? My whole hope in this pursuit of DCA is not to feel as though I'm on chemo and the longer I take it, the more generally tired and yucky I feel.


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Jeff
unregistered user
Mar-27-07, 04:31 PM (PST)
 
1. "RE: Re: DCA sideeffects"
In response to message #0
 
   Unfortunately, it looks like you're not the only one.

Look at squareb's comments, among others.

I was excited about DCA, but I'm seeing more and more side effects on this board and no real evidence of tumor regression.

If you're getting these side effects already, I consider stopping DCA. Maybe it works, but we have not seen solid evidence of that yet.

Too many poorly understood side effects...I'm wondering if these freelance trials have served their purpose, and are now diminishing the possibility of real clinical trials rather than encouraging them.


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st10
unregistered user
Mar-27-07, 08:29 PM (PST)
 
5. "RE: Re: DCA sideeffects"
In response to message #1
 
   Jeff,
I was wondering if you are a patient, a doctor, or otherwise in the medical field. What would you use or suggest that would have less of a side effect for a patient in this condition? Chemo? Which chemo? If not DCA, is there anything else out there that would offer hope? I am eager to hear your response. I think though that your opinion about DCA maybe a little bit premature at this point.
ST


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Willis
Member since Feb-16-07
17 posts
Mar-27-07, 08:43 PM (PST)
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6. "RE: Re: DCA sideeffects"
In response to message #5
 
   There is still the question of whether it works at all in people. I won't be drawn into an exchange with you ST10, so this will be all you get: we need less of the cheerleading attitude you bring and more answers. You are not helping, only making DCA look like a cult. We all hope that it works, and the purpose of this board is to try to find out not let you rail against chemotherapy (which frankly was a non sequitur to the thread anyway).


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st10
unregistered user
Mar-29-07, 00:44 AM (PST)
 
10. "RE: Re: DCA sideeffects"
In response to message #6
 
   Willis,
I don't know you and I am not a cheerleader for anything. Your reply to my simple post and question is amazing. The fact that you are willing to attack without provocation shows a strange fear of even the possibility that DCA might work.
I am a caregiver for a cancer patient. I guess that you are affiliated with the medical industry. The same industry that after decades of research and spending billions of dollars has little to show for it. Why don't you guys come off your high horses and feel the pain of cancer sufferers. Instead of organizing attacks on cancer patients and their caregivers, encourage your industry to spend its billions on important things such as quickly initiating trials for DCA.
ST10


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Tony
unregistered user
Apr-21-07, 02:58 PM (PST)
 
37. "RE: Re: DCA sideeffects"
In response to message #5
 
   I would suggest bloodroot, macrobiotic diet and mega doses of enzymes. These are the only products I have found that have had a positive effect on my prostate canceer. However, I continue to explore other options, thus, my reason for taking DCA.


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Aurora
unregistered user
Apr-16-07, 08:09 AM (PST)
 
35. "RE: Re: DCA sideeffects"
In response to message #1
 
   I believe that the SDCA should be taken by low dosages over long period of time to see results.
Chemotherapy has TREMENDOUS side effects for week or two and your body rejuvenates, so I think little tiredness after taking DCA may be just in conjunction to your poor diet.
I would rather take SDCA than chemo! Would you not? so please be very clear how you describe your side effects and why they are happening you have to remember that DCA kills your cancer cells and your liver must process the dead cells so thats why you maybe tired.
Having cancer itself makes me tired a lot.
Good luck to you. Aurora.


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oracle
Member since Mar-17-07
137 posts
Aug-11-07, 04:35 PM (PST)
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44. "RE: Re: DCA sideeffects - HUH!"
In response to message #1
 
This is a scary road we travel but make no mistake about it - the people here just need to find the right dosage and natural combinations - maybe a trip to medicore in Toronto would help with that issue? They obviously are getting great results daily and even stated they are so that is where I will go with my little warrior if its required to do so. My wife has had an upset tummy using 3/8th of a teaspoon in 6 - 8 ounces of water but she did not when using DCA in a larger container over longer periods of consumption. We will move her back to a larger amount of water to dilute the DCA in to level off her queezy tummy.

God Bless you and Never stop believing in your intelligence.

PS


no evidence man somebody is definately not reading or simply not open to proof or evidence shown on this site!

My god did someone not read the testimonies that matched the clinical studies to a "T" stage IV lung cancer tumors no longer visible on an xray. What about the pictures of the dissapearing growths? are my posts fake? is my wife who is supposed to be dead an illusion? Like the rest of us are doing Jeff needs to spend less time on what he thinks he knows and more on what he does not understand or see - open the mind up because this is happening whether you see it or not.

You see baby powder is one of the latest FDA approved Finds - wow baby powder now thats novel and high tech stuff! Does anyone actually believe the FDA after seeing how many people are dying for big PHARMA - baby powder and a few extra months of life - thats what is being offered to lung cancer patients. They told me my wife would be dead by now and they also said no one has "EVER" lived 12 months - "EVER" with her form of agressive cancer and where it was located.

This means DCA works since one of her cancers "IS" clear and the other is over 50% reduced - not only is she not dead or dying she does not even have a headache! dam I have headaches! We are people seeking not only hope but an encouraging constructive form of feedback and we should all try to answer the questions - not simply poke our opinions into each others drive. Saying no evidence - no proof of hope etc - wow is that a sponsored cancer care alliance statement or what

My wife and I know that DCA has extended and prolonged my wifes life. It has cleared her cancer from all parts of her body and taken her impossible to cure lung her tumor down over 50% in 3 months! 3 months Jeff! I challenge any oncology team to review my wifes progress - I want to put it right in their face and make it clear they are wrong and stage IV patients are only dying because of big money and FDA corruption - "not" because cancer is incurable. Incurable - BUNK - sorry sell that to the ignorant but not to me or my wife we dont purchase squirrel nuts


Rock on and God Bless

O

Oracle


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Sandra
Member since Feb-27-07
419 posts
Mar-27-07, 04:45 PM (PST)
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2. "RE: Re: DCA sideeffects"
In response to message #0
 
Robinson,
I'm seeing my MD this afternoon. I will ask him if he has any ideas about what you're describing. I would suggest trying to take DCA with food, and eat small meals more often to maintain a higher blood sugar. I also plan on asking about the amount of sodium in NaDCA and whether or not that could be contributing to any of your symptoms.

When Squareb quit, I talked to my pharmacist about it, and he thought this is a drug that one should taper off gradually, rather then stop abruptly. Given that the half life in the human body changes from 1 hour, to 7 hours over a period of about 3 months,(that would make the drug active for a much longer time) I'm wondering if a lower dose would reduce the side effects and still be effective against the cancer.


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DerekSmith
Member since Mar-30-07
61 posts
Mar-30-07, 04:12 PM (PST)
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20. "RE: Re: DCA sideeffects"
In response to message #2
 
   Salt i.e. sidium chloride is roughly 40% sodium

Sodium Dichloroacetate is only ca 15% sodium.

So 1g of NaDCA is roughly equivalent to 0.4g of salt in terms of sodium content. That's not very much salt.

If you have a sodium intollerance, then try replacing some of the NaDCA with Potasium DCA.


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agaribal
Member since Mar-5-07
4 posts
Mar-27-07, 05:03 PM (PST)
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3. "RE: Re: DCA sideeffects"
In response to message #0
 
   If you search for the posts by eitek1
on this forum you will note that eitek1 experienced similar pain at the tumor site.


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Sandra
Member since Feb-27-07
419 posts
Mar-27-07, 05:22 PM (PST)
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4. "RE: Re: DCA sideeffects"
In response to message #0
 
Robinson,
You may also want to add R+lipoic acid. It acts in a manner similar to DCA, it inhibits pyruvate dehydrogenase kinase E2 - the specific type found in cancer cells!

I'm taking 600mg/day - it is important to get the R+ type (rather than just alpha lipoic acid) as this is better used by the body.

Take care, hang in there,
Sandra

http://taylorandfrancis.metapress.com/content/mgumy91davq2e99a/


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robinson
unregistered user
Mar-27-07, 09:10 PM (PST)
 
7. "RE: Re: DCA sideeffects"
In response to message #4
 
   Thanks, All. I was hoping there were others taking DCA hanging out in the wings as I have been doing. Sandra, I'm taking lipoic acid but not the R. Will look into that. Humans are much larger than rats and it just may take more time. My goal is to be as alert and active as possible to be an ungrouchy mom to my eight year old daughter. So far, DCA hasn't affected that. I have a PET/CT scan April 5 and will hang in at a lower dosage until then. This forum helps a lot because so much is unknown. I'd appreciate knowing about any more side affects and ways to work with them. Robinson


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Sandra
Member since Feb-27-07
419 posts
Mar-28-07, 00:16 AM (PST)
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8. "RE: Re: DCA sideeffects"
In response to message #7
 
Hi Robinson,
Hang in there! I'm not being a cheerleader, I'm just saying I know what it's like to feel like you're doing this on your own with no medical support. My choice to forgo chemo has for the most part, shut me out of the conventional medical system - no diagnostic testing. I did get bloodwork done today, results in a few days, to check my liver function, protein levels and a few other general health items.

It is of course, each person's choice whether or not to take DCA, or to continue or discontinue with it. I just think it would be a shame if everyone quit at 3-4 weeks, when the drug is likely to become very effective after 3 months, once the half-life has increased.

Robinson, feel free to email me if you want to talk,
Take care,
Sandra


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Robinson
unregistered user
Mar-30-07, 02:40 PM (PST)
 
19. "RE: Re: DCA sideeffects"
In response to message #8
 
   Sandra, How do I e-mail you? Robinson


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Sandra
Member since Feb-27-07
419 posts
Mar-31-07, 06:04 PM (PST)
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23. "RE: Re: DCA sideeffects"
In response to message #19
 
Click the little envelope in the upper right corner of my posts.


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Geri
Member since May-20-07
13 posts
Aug-08-07, 08:43 PM (PST)
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39. "RE: Re: DCA sideeffects"
In response to message #8
 
   Dear Sandra!
It is very encouraging to me to know that one may expect positive results from DCA after 3-month use. My mom has taken it for 2 months by now and I dare say no obvious results. I have explained my mom's situation: breast cancer with liver metastases provoquing liquid in her stomach. She has tried many chemo therapies, including Xeloda but it doesn't work well, either. We are desperately looking for something else-a medicine or some alternative methods or whatsoever which might help. any shared advice would be greately appreciated.


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Sandra
Member since Feb-27-07
419 posts
Aug-08-07, 08:59 PM (PST)
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40. "RE: Re: DCA sideeffects"
In response to message #39
 
>Dear Sandra!
>It is very encouraging to me to know that one may expect
>positive results from DCA after 3-month use. My mom has
>taken it for 2 months by now and I dare say no obvious
>results. I have explained my mom's situation: breast cancer
>with liver metastases provoquing liquid in her stomach. She
>has tried many chemo therapies, including Xeloda but it
>doesn't work well, either. We are desperately looking for
>something else-a medicine or some alternative methods or
>whatsoever which might help. any shared advice would be
>greately appreciated.

Hi Geri,
I've been taking DCA for 5+ months now. I've reduced my dosage to about 14mg/kg/day because of slight tremors in my hands. What I believe DCA is doing now is just keeping a lid on my cancer, but even that is fantastic. I just can't seem to maintain a higher dose, so I'm tinkering with my supplements and implementing many of Jim's suggestions (see DCA protocol page http://www.thedcasite.com/dca_protocols.html). I've deleted high dose vitamin C and added DHA. I also think it's important to take silymarin, R+ lipoic acid, folic acid and B-12 (either injection, liquid, or subligual for bioavailability). I've found New Chapter makes curcumin (great against cancer) in olive oil which should also increase absorption. And slightly outdated list of my supplements is here: http://www.thedcasite.com/dcaforum/DCForumID10/32.html I've also recently started doing biofeedback, but it will be a month or more before I know if it is working or not.

Take care, wish you all the best,
Sandra


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DerekSmith
Member since Mar-30-07
61 posts
Aug-08-07, 10:29 PM (PST)
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41. "RE: Re: DCA sideeffects"
In response to message #40
 
   Hi Sandra,

I am interested that you have dropped out high dose Vit C. Could I ask what has led you to take this move and what you were calling 'high dose'. I know you are a very logical individual, so your view on this is valuable.

Derek


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Sandra
Member since Feb-27-07
419 posts
Aug-08-07, 11:28 PM (PST)
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42. "RE: Re: DCA sideeffects"
In response to message #41
 
Hi Derek,

I based my decision on Jim's research of how DCA works - see link to Jim's DCA protocol in above post.

Thanks,
Sandra


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VitaminBoss
unregistered user
Mar-29-07, 05:35 AM (PST)
 
11. "RE: Re: DCA sideeffects"
In response to message #4
 
   Sandra,

R-Lipoic Acid will also sensitize cells to insulin and enhance glucose uptake. Here is a quote from a site detailing R-lipoic Acid:

"RLA was more effective than SLA in enhancing insulin-stimulated glucose transport and metabolism in insulin-resistant rat skeletal muscle."

You'll be doing a great job at giving the cancer cells a sugary feast with this.. I would not mix this with DCA since it will enhance the side effect of hypglycemia.. Sure hypoglycemia doesn't sound as harsh as chemo side effects, up until you pass out peacefully and end up in a diabetic coma.. Would that be a better way to die? I think not.. Lets pay more attention to IN VIVO testing and reactions than basic biochem logic..


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Sandra
Member since Feb-27-07
419 posts
Mar-29-07, 07:07 AM (PST)
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12. "RE: Re: DCA sideeffects"
In response to message #11
 
VitaminBoss
Here is a patent that showed DCA used with lipoic acid where the DCA doubled the rate of tumor kill.
United States Patent 6,331,559
Bingham , et al. December 18, 2001

Lipoic acid derivatives and their use in treatment of disease
"... This second reagent is preferably an inhibitor of mitochondria energy metabolism and/or one that induces apoptosis. Such reagents include metabolism inhibitory reagents. Many such reagents are known in the art. One particularly preferred reagent is dichloroacetate. This second reagent may be administered sequentially, simultaneously or separately, so as to amplify patient response to said treatment method."


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VitaminBoss
unregistered user
Mar-29-07, 02:02 PM (PST)
 
14. "RE: Re: DCA sideeffects"
In response to message #12
 
   Sandra,

All I can say is that with all the stuff you are taking, I'm glad your body has such a resilient homeostatic mechanism (unlike many others). Other individuals may be MUCH more sensitive to such a mix of supplements in addition to DCA, especially with the hypoglycemic effects of the combined compounds.

Just goes to show that a strong nervous and endocrine system is really the foundation to a resilient body. (central control mechanisms ie; hypothalamus, pitutitary, adrenal).


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Sandra
Member since Feb-27-07
419 posts
Mar-29-07, 04:37 PM (PST)
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16. "RE: Re: DCA sideeffects"
In response to message #14
 
Vitamin Boss,
Thanks, when I posted the list of what I'm taking (under 'Topics other than DCA), it was only because someone asked me, not because I'm advocating that others should necessarily follow what I'm doing. I'm still 'tinkering' with the mix as I learn more and much of what I'm taking is specific to my ER+ BC. My advise is that others find a competent naturopath(ND) and MD. (MY ND has a degree in electrical engineering as well - I know he is very grounded in his thinking - no pun intended!)


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DerekSmith
Member since Mar-30-07
61 posts
Mar-31-07, 01:32 PM (PST)
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22. "RE: Re: DCA sideeffects"
In response to message #12
 
   >VitaminBoss
>Here is a patent that showed DCA used with lipoic acid where
>the DCA doubled the rate of tumor kill.
>United States Patent 6,331,559
>Bingham , et al. December 18, 2001
>
>Lipoic acid derivatives and their use in treatment of
>disease
>"... This second reagent is preferably an inhibitor of
>mitochondria energy metabolism and/or one that induces
>apoptosis. Such reagents include metabolism inhibitory
>reagents. Many such reagents are known in the art. One
>particularly preferred reagent is dichloroacetate. This
>second reagent may be administered sequentially,
>simultaneously or separately, so as to amplify patient
>response to said treatment method."

Sandra, this is now the second reference I have read that claims that apoptosis is induced by mitochondrial inhibition, the other being a paper that promoted the antcancer properties of capsiasins. Yet both of these are in contradiction with the DCA work which claims apoptosis through reactivation of the mitochondria.

What is your take on this disparity?


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Sandra
Member since Feb-27-07
419 posts
Mar-31-07, 06:23 PM (PST)
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25. "RE: Re: DCA sideeffects"
In response to message #22
 
>Sandra, this is now the second reference I have read that
>claims that apoptosis is induced by mitochondrial
>inhibition, the other being a paper that promoted the
>antcancer properties of capsiasins. Yet both of these are
>in contradiction with the DCA work which claims apoptosis
>through reactivation of the mitochondria.
>
>What is your take on this disparity?

I have an engineering background, not a science one. Perhaps if I beat this disease I'll go back to school. At this point, it's more important to me that something work, rather than understand every intricacy of how it works.


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Ceefer
unregistered user
Mar-28-07, 01:26 AM (PST)
 
9. "RE: Re: DCA sideeffects"
In response to message #0
 
   >I began using DCA for Stage IV breast cancer, mets to bone,
>lung and lier, 19 days ago. We tried several MDs but no one
>would prescribe or be responsible for monitoring so we're on
>our own. I'm taking 25 mg/kg. At the same time, I began a
>course of essential oils and am trying to sort out what may
>be reactions from oils and what might be from DCA. Has
>anyone had stomach upset or just general tiredness/malaise?
>How common are tremors? Does anyone feel more pain at tumor
>sites? My whole hope in this pursuit of DCA is not to feel
>as though I'm on chemo and the longer I take it, the more
>generally tired and yucky I feel.

What I just can't figure out is why people are starting with so much DCA? I did some calculations on the amount that must have been used in the Michaelis study and this is what I calculated:

Typical rat will drink 2 oz of water a day that comes out to 120 mL of water. 75 mg/L of dose is what they received in their drinking water and this amounts to 9 mg of DCA. When you take into account a typical rat weight of 600 grams that equals about 15 mg of DCA per mg of body weight. So the dose that produced the effects in the study was about 15 mg/kg at the top side. Yet I am seeing people take upwards 50 mg/kg/day? Also, the pharmacology and toxicology clearly indicates that people taking 25 mg/kg will cause peripheral neuropathy.

I know people are just experimenting, but it is vital that you do so as carefully as possible. PLEASE think about what you are doing! Start at LOW doses first, well below the NOEL of 8 mg/kg just to see if you are sensitive to it. Nobody knows if there aren't some people allergic to this material. Go for a week at 10 mg/kg, then GRADUALLY go up to 15 mg/kg. Don't go over 25 mg/kg because there are high indications of problems up there.

Just my 2 cents worth, but I am really worried about some of the people out there really pushing the limits on this medication. AND remember only 5% of drugs that look good in the test tube and in animals pan out to work in humans. As the caretaker of someone who has highly aggressive melanoma (stage IV -- my wife ) I understand the fear of death. I have also considered all ends of this and I absolutely think this material is worth trying and safe to use PROVIDED you are extremely careful about dosage and VERY observant of side effects.



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jan
unregistered user
Mar-29-07, 07:53 AM (PST)
 
13. "RE: Re: DCA sideeffects"
In response to message #9
 
   Dear,

I would not recoment trying different treatment option at the same time, as these can interfere with each other. I have studied drug development and combinatorial drug use is not always effecttive. In essential oils there are lots of components which can cause inhibition of any drug.
I will not recoment the use of unapproved drug, but i can understand why you are doing it. And please do it save.

sincerely,
jan


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Anechoic
unregistered user
Mar-29-07, 04:08 PM (PST)
 
15. "RE: Re: DCA sideeffects"
In response to message #0
 
   Hello,

I just want to share another testimonial and to confirm that the stomach upsets, hearthburns, is being experienced by my brother who is taking the same dosage as you (23mg/kg split in two caps a day).

He has stage 4 pancreatic cancer with large metastased tumors in the liver. Diagnosed on the 14th of dec he was administered the Genzar chemo (6 treatments) which did not work and is now on the 5fluo chemo which is still being administered on a weekly basis, although his last treatment was skipped (too weak). He is taking DCA since the 21rst of March.

He is also weak and experiencing fatigue as well as a loss of apetite. However he has been overdoing it a bit the last few days (got married, visited his cottage). Still when asked I suggested he hold off DCA for now, as the pain and side effects are quite severe and hampering his uptake of food.

Its his decision mind you but I am not in his shoes, and cannot know what and how he is feeling.

So squareb is quite right, there are certainly some interactions with other medications and or treatments which can create some bad side effects.

I am sure that when trials are done a lot of this information will be used to better monitor the results (good or bad) of DCA.

I will soon post all the details I still need to get from him on the regimen he is on.

Good luck and be careful,

Anechoic


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robinson
unregistered user
Mar-29-07, 07:27 PM (PST)
 
17. "RE: Re: DCA sideeffects"
In response to message #15
 
   Anechoic, Do I understand your posting that your brother got married? Wow, go, boy, go. I appreciate your information re: sideeffects and am sure he appreciates your understanding that the decisions are his. I stopped DCA for just a few days to sort out what could be essential oils and what could be DCA. The tiredness, tremors and sick stomach are most likely DCA. The pain at the tumor sites remains. I know mixing modalities is unknown but the oils help a lot with pain and energy. And basically work by bringing oxygen into the body which shouldn't interfere with DCA's work. But I'm no chemist or doctor. I don't think any of this is doing harm but is it helping is the question. Out on the edges of cancer treatment, it's all risky. best of luck and much strength to all, robinson


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Anechoic
unregistered user
Apr-02-07, 02:47 PM (PST)
 
33. "RE: Re: DCA sideeffects"
In response to message #17
 
   Good morning,

Yes he indeed got married 9 days ago. It was a wonderful moving day and was done thoughtfully at his home in the company of immediate familly and friends. I was the videographer.

I saw him this past week-end and he told me that he had halved the DCA to 12.5 mg/kg per day the last few days although he skipped the last day I saw him (saturday). His apetite is better and no longuer has too severe stomach pains.

He is currently in paliative care as the doctors are adjusting his pain control medication. He does not know when he will be released and has been there since last thuesday.

We managed to get him outside to take in some sun and he was in good spirits. Considering the circumstances it was a great visit.

It is hard to say if DCA has helped other than give him hope and that in itself is important and might be enough. At this point it just looks like DCA on its own will not be the magic bullet we are all hoping for.

Keep the faith,

Anechoic


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PIM
unregistered user
Mar-29-07, 11:28 PM (PST)
 
18. "RE: Re: DCA sideeffects"
In response to message #0
 
   All of you here should be taking colonics EVERY WEEK if not several times a week. You should be having enemas every day. If you are killing off the cancer and shrinking tumours, your system is being overwhelmed by dead matter. You have to detox. You have to constantly get the bad stuff out.

See Dr. Lorraine Day's website regarding detoxification. http://www.drday.com/

Get rid of your mercury fillings. They are poisoning you every day of your life. Make sure you get a dentist who uses special equipment because other wise you will be poisoned very badly as the fillings are removed.

Cancer patients have to stop grovelling to "Cancer societies" and start organizing to stop the chemical and heavy metal pollution which is causing this epidemic.


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Eric Eden
Member since Mar-29-07
27 posts
Mar-31-07, 12:51 PM (PST)
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21. "RE: Re: DCA sideeffects"
In response to message #0
 
   I must agree with Ceefer, 15mg/kg/day should be the maximum taken.

Sandra, the issue with intake of that many supplements it will be near imposssible to establish a baseline for a NaDCA dosage model.

Impossible to tell results either way.


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Sandra
Member since Feb-27-07
419 posts
Mar-31-07, 06:11 PM (PST)
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24. "RE: Re: DCA sideeffects"
In response to message #21
 
I have been taking most of those supplements for 8-10 months now. I'm adding DCA as the 'straw to break the camel's back'. I'm doing all this to try to hit the cancer on as many levels as I can. I recognize I may not be the best 'test subject'. I just want to beat it, that's all.


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Eric Eden
Member since Mar-29-07
27 posts
Mar-31-07, 08:25 PM (PST)
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26. "RE: Re: DCA sideeffects"
In response to message #24
 
   That´s well understood of course and cannot be argued with.

Have you considered however to stop all supplements (but for Vitamin C maybe) and doing just NaDCA?


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Sandra
Member since Feb-27-07
419 posts
Apr-01-07, 01:14 AM (PST)
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28. "RE: Re: DCA sideeffects"
In response to message #26
 
>Have you considered however to stop all supplements (but for
>Vitamin C maybe) and doing just NaDCA?

Until I'm sure that DCA works, no I wouldn't consider stopping the supplements. Even then I won't drop them all, just maybe trim the list.


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Doug Nixon
unregistered user
Apr-01-07, 06:36 PM (PST)
 
29. "RE: Re: DCA sideeffects"
In response to message #28
 
   I am a journalist in Canada, who would like to humbly suggest to all of those trying DCA or assisting a friend or relative with its application, that it is you who in actual fact are bravely participating in the first human trials.
And even though Dr. Michelakis and his research team wishes you weren't, he and they would still derive enormous value from your cancer data, drug interactions, DCA dosages and physical experiences.
In theory, they should be the ones best able to make use of it, and may even do you the medical courtesy of warning you of a potentially negative drug interaction situation that you should be made aware of.
So please, make a little medical history and e-mail the University of Alberta reseachers whatever info you can pull together and best of luck -- you are all heros in my mind.



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ConnieinReno
unregistered user
Apr-01-07, 06:53 PM (PST)
 
30. "RE: Re: DCA sideeffects"
In response to message #29
 
   Thank you, Doug, for putting this in terms we all feel. I've just posted a couple of replies to the post made under "Putting DCA to the test" that you might be interested in reading (2nd one especially).

There are more pieces to the cancer puzzle that folks need to be aware of - seems as though governments of the developed world are not very eager to make the public aware of the impact that phytonutrients can have to keep our bodies in a healthy state.

Were it really understood by the general public that daily required nutrients = healthy bodies = no disease and therefore means bye bye to the pharmaceutical companies, you can imagine why these governments are not very anxious to share this information publicly.

FOOD FOR THOUGHT!!


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RJason
Member since Mar-15-07
79 posts
Apr-01-07, 01:02 AM (PST)
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27. "RE: Re: DCA sideeffects"
In response to message #0
 
There is a link here about the side effects of DCA. The report is in a pdf file.

http://www.dichloroacetate.org/viewtopic.php?t=9

Good luck and best wishes,

RJ

“Knowledge is Power”


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squareb
Member since Feb-26-07
50 posts
Apr-01-07, 08:40 PM (PST)
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31. "RE: Re: DCA side effects"
In response to message #27
 
   I too had some gastritis. I never had gastritis in my life before. It was probably due to DCA, though I was also taking 5mg/kg thiamine per day. I actually saw the gastritis on PET before I felt it about a week after stopping DCA. The symptom was occasional mild left upper quadrant pain that was worse hours after eating, and relieved by eating food. The symptom now is resolved.


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RJason
Member since Mar-15-07
79 posts
Apr-02-07, 00:00 AM (PST)
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32. "RE: Re: DCA side effects"
In response to message #31
 
Could have been the DCA was not buffered enough, just a thought.

Definition: Gastritis is an inflammation of the lining of the stomach.

Causes, incidence, and risk factors

There are many causes of gastritis.

The most common are:

Medications (such as aspirin or anti-inflammatory drugs)
Alcohol
Smoking
Infection of the stomach with Helicobacter pylori bacteria
Erosion (loss) of the protective layer of the stomach lining
Less common causes are:

Eating or drinking caustic or corrosive substances (such as poisons)
Backflow of bile into the stomach (bile reflux)
Autoimmune disorders (such as pernicious anemia)
Excess gastric acid secretion (such as from stress)
Viral infection, especially in people with a weak immune system
Gastritis can occur suddenly (acute gastritis) or gradually (chronic gastritis).

Symptoms

abdominal pain
abdominal indigestion
loss of appetite
nausea
vomiting
vomiting blood or coffee-ground like material
dark stools
Signs and tests

Tests vary depending on the specific cause. An upper GI X-ray, EGD, or other tests may be advised.

Treatment

Treatment depends on the specific cause. Some of the causes will resolve over time. Medications to decrease stomach acid secretion may be recommended.

Expectations (prognosis)

The outlook depends on the cause, but is usually good.

Complications

See the specific types of gastritis.

Calling your health care provider

Call for an appointment with your health care provider if you develop gastritis symptoms.

Prevention

Avoid long-term use of irritants (such as aspirin, anti-inflammatory drugs, or alcohol).


Update Date: 2/14/2005

Updated by: Christian Stone, M.D., Division of Gastroenterology, Washington University in St. Louis School of Medicine, St. Louis, MO. Review provided by VeriMed Healthcare Network.

“Knowledge is Power”


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squareb
Member since Feb-26-07
50 posts
Apr-02-07, 03:24 PM (PST)
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34. "RE: Re: DCA side effects"
In response to message #32
 
   The Sodium DCA solution was tested. It was near neutral pH.


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Tony
unregistered user
Apr-21-07, 02:54 PM (PST)
 
36. "RE: Re: DCA sideeffects"
In response to message #0
 
   I can tell you that I have experienced more sensations at the locations of cancer. From a burning, warm sensation to aching and pain. I have been taking 1 gram of DCA perday and have prostate cancer. My body haas shown signs of weakness and mental confusion, mostly my inablitity to remain focused. However, these are minor issues form me. Today I feel a little weakness as I do most days, but my mental focus seems to be resolving. Today I don't feel any sensations , but it is early in the day.


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satx
Member since May-9-07
104 posts
May-21-07, 12:58 PM (PST)
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38. "RE: Re: DCA sideeffects"
In response to message #36
 
   Tony,

I'd like to hear how bloodroot has affected you PCa. product? source? dosage? Effect on PSA? I'm registered here so you can email me.

Len


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carolyncheetham
Member since Aug-11-07
4 posts
Aug-11-07, 12:29 PM (PST)
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43. "RE: Re: DCA sideeffects"
In response to message #0
 
   hi there-
Iam a GP doctor aged 51 with stage IV breast cancer to bones and nodes in axilla. I have been taking DCA for 4 days at about 11mg/kg- I think that it is a mild gastric irritant and suggest that the dose you are taking- according to the research papers is more than you need to take for any effect- I suggest that you reduce the dosage to 10-13mg /kg per day- also try taking it with food- halfway through the meal.
If the drug is working you will get some degree of tiredness as your body gets rid of the dying cancer cells- I have been more tired and have had to have a sleep in the afternoon. I have also been more thirsty- water is best as there is a risk of raising your potassium with the DCA so don't go mad on fruit and fruit juices.
The pain in my lumbar spine was getting severe again which is why I started the DCA- rather than go back on opiates- the pain is vey miuch better already( was within 24 hours)
There is also a risk of low calcium if you are on zolendronate or other bisphosphonate for bone secondaries- so take calcium tablets in a higher dose if you get symptoms of muscle twitching, tingling in your tongue , fingers and toes and general weakness.I would stop the DCA for about 4 days if I were you as the half life of DCA is 24 hours- then when you feel better restart it at about 10-13mg/kg daily

best wishes


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baker2007
Member since Aug-26-07
1 posts
Aug-26-07, 08:32 PM (PST)
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45. "RE: Re: DCA sideeffects"
In response to message #43
 
   Hello, I saw that you are a doctor---I was just wondering how you get your US doctors to talk to you about meds from another Country and subscribe them to you if you are interested. All of our experience has been negative. The doctors in the US actually get upset if you ask them about something that is not FDA approved.
Where can we go?
Who can we talk to?
At this point we are willing to try anything..
Responses are greatly appreciated.
Darrell

baker2007


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chrisz
Member since Jul-13-07
12 posts
Aug-27-07, 03:24 AM (PST)
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46. "RE: Re: DCA sideeffects"
In response to message #45
 
   hi, same here. negative response from doctors.
we will be in Toronto on the 30th(thur) at medicor.
my wife is breast,mets to spine. allot of lumbar pain.
doctors wanted nothing to do with DCA.
were going anyway.
this site has been a great help to us.
keeping up on the side effects and kinda preparing us for what's to come.
thanks to everyone here.
we will keep you posted.

chrisz


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oracle
Member since Mar-17-07
137 posts
Aug-28-07, 04:42 PM (PST)
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48. "RE: Re: DCA sideeffects"
In response to message #46
 
Hey amigo just remember PH PH PH PH and see you soon man - this will be such an inspiring experience for you warriors and so god bless.

God Bless

Oracle


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oracle
Member since Mar-17-07
137 posts
Aug-28-07, 04:38 PM (PST)
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47. "DCA side effects - What meds are you on for breast"
In response to message #0
 
I read everything you posted here but could not see what your treatment is so it could be that your actually experiencing issues from that and mistaking it for DCA so a Naturopath Dr with a passion to specialize in saving cancer patients from CTC and wellness Center in Seattle wa could really get you on track. I love our Dr. Chen(although he will not subscribe/prescribe DCA) and think he is most likely one of the most intuitive oncologists in the world - we had chemo response issues and he resolved them fast and immediate and we never had to look back and we never had issues after that - like failures. Thats why I say intuitive wow! is that good service or what - I mean its not like we are talking about a cab ride or room service '-)

My wife for instance had tiredness a similar symptoms like numbness and tinglies in the fingers etc and his response actually blew us away and tuned us in making us realize it was not what we thought it was. It turned out to have nothing to do with DCA and everything to do with a side effect of chemo and Abraxane. We could have stopped our life saver for nothing so its very very critical to speak - as Sandra said to a all possible medical and natural cancer specialists first. L - Glutamine in failry large doses took care of that pretty fast and we got to continue at a higher dosage regimen.

Also if you have breast cancer ABRAXANE is in trials for that and its worked wonders for my wife and all those nasty side effects she was getting. I would ask you doctor about it and there is no harm in asking. Things are not always what they seem when your in this arena.

God Bless and remember DCA is working great for my wife and my friend so when folks say "DCA does not work" then put the ball in their court and ask them to PROVE IT! Its funny that some of these people are always going from the cup being half empty instead of half full. For me Im convinced obviously.

They always tell us to prove it works well why dont they prove to us it does not.

PH PH PH PH PH

God Bless

Oracle


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mrsnasir
Member since Feb-13-07
8 posts
Aug-28-07, 07:23 PM (PST)
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49. "RE: Re: DCA sideeffects"
In response to message #0
 
   hey,

i am a distrubtor for the essential oils...Frankenscense is a good one for cancer used it on my mother in law..and for the pain we also use peppermint, and panaway which relieved alot of her pains. purification is great for not catching any viruses..It has worked great with the dca and lavender great for relaxing and sleeping..and it has no side effects with the dca...

shirley


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