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Vladimir
Member since Jan-8-10
9 posts
Jan-08-10, 05:28 PM (PST)
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"NSCLC with metastasis on spine"
 
   Hello everyone!

I was a silent reader for few months, since my father (age 64) learned that his pain and swelling in his right arm and shoulder was probably a cancer. Doctors saw kind of scar on his right lung, but even with bronchoscopic biopsy, they could not confirm anything. They knew it’s in there, shoulder area, and that’s why decided to start with radiotherapy.

I was already in panic, and start searching for something alternative. Somehow, I found this website and ordered DCA right away.

10 days ago (December 29, 2009), father was diagnosed with primary lung cancer (planocelulare) with metastasis on spine, not sure about the stage. As far as I understand, this is Non small cell lung cancer (NSCLC).

So, he started with DCA, caffeine and B1 protocol.

First he started with 15mg/kg, and after three days he starts feeling severe pain in cancer area. I was little afraid of Tumor Lysis Syndrome and lower his dosage to 10mg/kg. Pain is still there after 20 minutes of taking it but with less tension.

His day looks like this:

Morning
• 1 x vitamin B1 250mg
• 1 x Alpha Lipoic Acid 300mg
• 1 x Caffeine 200mg
• 1 x Co Enzyme Q10 100mg
• 1 x EGCG 725mg
• 1 x Fish Oil 1200mg with omega 3
• 1 x Calcium 1000mg Magnesium 500mg
• DCA 10mg/kg

Afternoon
• 1 x Benfotiamine 250mg
• 1 x Vitamin B17 500mg
• 1 x Cink 50mg
• 1 x Fish Oil 1200mg with omega 3

I’m also thinking of implementing sort of diet, something like “Gerson Therapy”.

Any changes or additions!?Anyone, please!?

This Tuesday, January 12, 2010, he has to see his doctor for further therapy. I guess they’ll offer him some chemotherapy. I don’t know if he should accept it or just take the DCA course and make another scan in 3-4 weeks.

I would really appreciate your suggestions.

Thank you and God bless you all.

Vladimir

I’ll keep you posted!!!


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oracle
Member since Mar-17-07
193 posts
Jan-11-10, 02:11 AM (PST)
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1. "RE: NSCLC with metastasis on spine"
In response to message #0
 
HI and wow your really doing a great protocol. My wife Lien was the very first person to use dca with a chemo like Cisplatin or any of them years back when all this started so if you have not tried it you might find where chemo fails it actually keeps working as long as you do dca with it. We stop chemos to change side effects not because the chemo drug is failing with dca.

Anyway I am not a medical doctor but I am a total freak on two things - alkalining the body and the budwig diet - not full diet but flax is hard to overdose or get sick from and I beleive it saves lives. I like to think it makes things so slippery inside the cancer cells slip right off then they try a new step

low fat cottage cheese blended with 3 - 5 tablespoons of cold pressed flax. Mix with a bit of strawberry and use lemon drop oil with stevia as a sweetener.

This rocks if you can handle the regimen. also if you think about what is providing the fluids to your tissues and ask yourself is it acidic water or alkaline water. We spend so much time on vitamins and forget what we water our cells with.


Our water for tea - anything is 9.0 and it seems to work since the ph usually drops in most soups etc. We use Alka-Life to get it up there but I am sure there are others just as good.


God Bless Us All

O

Oracle


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Vladimir
Member since Jan-8-10
9 posts
Jan-11-10, 04:41 PM (PST)
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2. "RE: NSCLC with metastasis on spine"
In response to message #1
 
   Oracle, thank you so much for your support and advise on alkalining the body.

We’ll definitely go with flax seed and cottage cheese.

The only thing that bothers me its severe pain the he has after taking DCA. I see on this forum that its normal thing, but I don’t know for how long pain is going to last? As long as he’s taking DCA or till the cancer shrinks completely!?

I am afraid he is going to give up on DCA because of pain. He is taking really strong pain killer, but its not working well. I am trying to explain him that it is a normal thing due to DCA action on cancer cells.

Anything to prevent this pain?

Best

Vladimir


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Aviv
Member since Jan-11-10
1 posts
Jan-11-10, 02:02 AM (PST)
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3. "RE: NSCLC with metastasis on spine"
In response to message #2
 
   For pain, I believe reiki can help. Another alternative is acupuncture.
Wellness centers and wellness-oriented bulletins and magazines are likely to have listings of reiki practitioners and or acupuncturists. Reiki and or acupuncture is also beneficial for caregivers--it's a way to relieve the stress and anxiety. I used reiki to that end and it was very helpful. I wish you all the very best. Aviv


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oracle
Member since Mar-17-07
193 posts
Jan-15-10, 05:11 AM (PST)
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6. "RE: NSCLC with metastasis on spine - Pain"
In response to message #2
 
Hello Vladimir

God Bless your father and you. Being a care giver is a very hard road but at the same time so easy to do for those you love. I cannot give much advise on the pain issue becuase is three years Lien has never had to really deal with pain at her cancer sites. She had some discomfort at first in her neck and her lung but after she kicked in the protocols that went away almost inside the amount of time it takes to get a prescription.

It might be something to investigate as to why she has not had heavy pain in that regard with the exception of when she got the swine flu a couple months back and she was coughing like mad for a month. That had us on a medicated cough syrup with an allergy application and then one time more after a fumes in the house issue.

Lien takes the following with her DCA so maybe the mushroom is the difference - she has always been on it.

DCA 1/8th teaspoon, maitake (liquid ), Agaricus Mushroom (one every two days), Vitamin D (liquid - 2000 iu a drop times 8 - 12 per day)WOW!

L_GLUTAMINE - 4200 mg

all mixed together in a couple ounces of sweet Arizona black tea.

I hope this helps with something and I am sad I could not help more with the pain issue. I really have not heard in all the three years here that DCA causes severe pain on tumor sites but do think if there is serious acidic condition in the tissues when the tumor is injured there could be pain from that.

The environment where the tissue sits just like DCA pulling the acidic condition away from the cells so they reconnect could play a large roll in what a person feels when the tumor breaks.


God Bless Us ALL
O

>Oracle, thank you so much for your support and advise on
>alkalining the body.
>
>We’ll definitely go with flax seed and cottage cheese.
>
>The only thing that bothers me its severe pain the he has
>after taking DCA. I see on this forum that its normal thing,
>but I don’t know for how long pain is going to last? As long
>as he’s taking DCA or till the cancer shrinks completely!?
>
>I am afraid he is going to give up on DCA because of pain.
>He is taking really strong pain killer, but its not working
>well. I am trying to explain him that it is a normal thing
>due to DCA action on cancer cells.
>
>Anything to prevent this pain?
>
>Best
>
>Vladimir

Oracle


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zehra
Member since Jul-25-09
31 posts
Jan-12-10, 02:02 PM (PST)
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4. "RE: NSCLC with metastasis on spine"
In response to message #0
 
   hi Vladimir,

I am very sorry to hear your father diagnosed NSCLC. and I understand what you mean by 'panic' as I felt the same 7 months ago. MY father also diagnosed NSCLC-squamous cell c. he was on chemo and radiotherapy. I barely stand remembering those days but in my opinion it is a must for lung cancer patients to get at least the standard chemo-radiotherapy. but this is just my opinion and one should make his own mind about this. As I said my father got chemo-radiotherapy and DCA concurrently. DCA as far as I know is sinergistic with most chemo drugs and radiotherapy as well. MY fathers tumours, although he has a squamous cell cancer which is not responding well to DCA alone, shrunk dramatically from about 4 cm to 1 cm. After his treatment he had a chance for surgery (sleeve lobectomy), 5 days ago and at hospital right now. he is doing very well, eating well, exercising etc.
We can not say for sure that this responce of my fathers tumour was due to chemo or DCA, but my opinion is that DCA helped him a lot. I saw doctors surprise when he checked fathers CT scan. Before the treatment, doctors were sure that father could never have a chance for surgery. but he did.

As for supplements you may think about adding,
-beta-glucans (mushrooms)
-I3C indole 3 carbinole ( eliminates resistance to DCA)
-vanadyl sulfate (read theDCAsite related articles)
-l carnitine
-melatonin
-LDN

may god help you and your father,
best wishes.


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zehra
Member since Jul-25-09
31 posts
Jan-12-10, 02:02 PM (PST)
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5. "RE: NSCLC with metastasis on spine"
In response to message #0
 
   hi vladimir,

I want to add that artemisinin is another alternative for your father
here is a link about it;

http://artemisinin.pbworks.com/FrontPage

vitD is another supplement which is very important for cancer patients. read the posts of Sandra, she is a very good source of knowledge about supplemets, as I learnt a lot from her

best wishes


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david987
Member since Jan-23-10
7 posts
Jan-25-10, 07:33 AM (PST)
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7. "RE: NSCLC with metastasis on spine"
In response to message #5
 
   I HOPE EVERYTHING IS GOING WELL
MY WIFE HAS LUNG CANCER. YHEY SAID IT WAS SMALL CELL AND TREATED IT WITH CHEMO FOR TWO SESSIONS AND NOW THEY THINK IT IS NON SMALL CELL.
THERE IS ONLY A 15% TO 25% CHANCE IT WILL WORK. I WANT TO BUY SOME DCA.
COULD YOU TELL ME THE BEST PLACE TO BUY AND IF IT IS A TABLET OR POWDER. THANK YOU AND LUCK. I'M NOT SURE IF I AM ALLOWED TO GIVE MY E-MAIL ADDRESS, SO I WILL CHECK BACK.

david987


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zehra
Member since Jul-25-09
31 posts
Jan-29-10, 02:10 PM (PST)
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8. "RE: NSCLC with metastasis on spine"
In response to message #7
 
  
www.buydca.com
or
www.pharmadca.com

it is powder.
best wishes.


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BOBBY
Member since May-14-08
17 posts
Jan-30-10, 07:29 AM (PST)
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9. "RE: NSCLC with metastasis on spine"
In response to message #8
 
   Try

www.pharma-dca.com

Bobby


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Vladimir
Member since Jan-8-10
9 posts
Jan-31-10, 11:13 AM (PST)
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10. "RE: NSCLC with metastasis on spine"
In response to message #7
 
   I’m sorry to hear bad news about your wife.

The things with my father are pretty bad. He feels worse and worse. Today, he was vomiting, and the pain in his shoulder is devastating. Even with a strong narcotic pain killer, he can’t sleep, and I don’t know what to do any more.

I’ve purchased DCA through www.buydca.com , and it came as powder.

I am sending my love to you and your wife.

God bless you all.


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Vladimir
Member since Jan-8-10
9 posts
Jan-31-10, 10:21 PM (PST)
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11. "RE: NSCLC with metastasis on spine"
In response to message #5
 
   Update regarding to my father.

On January 12, he had an appointment with doctors. They said cancer on his lung had shrunk, but on spine no changes. They said chemo is not going to help, because of its position, and do not recommend any chemo or radiotherapy. My mom said if cancer is there, they should do something (anything), and because of her (screaming on them) they decided to go with 10 more radiotherapy.

Even that my father is taking DCA (for a month, around 10mg/kg)) with the supplements I mentioned above, he feels no difference. It is getting even worse. Pain is extraordinary bad, I guess cancer is pushing nerves around vertebra so he feels his right arm heavy like concrete. He sleeps in upright position and looks like he is in hell. Today, he was vomiting (hope not DCA side effect), and the pain in his shoulder is devastating. Should we stop using DCA or keep going!?

Less than year ago, we were at the car show in NYC, and today he is fighting for his life. What a life!?

Now, I wanna thank you all (Oracle, Zehra, Aviv) for support and new ideas. I will implement all supplements you recommended. Never heard of Reiki, but I’ll definitely look for it.

Should I go with more DCA (currently 10mg/kg) or lower the dose? He said that the pain is more severe when he takes DCA. After a month of taking, if its working for him I believe he should feel less pain.
Do not know what to do

I’ll keep you updated.

Wish you all the very best.

Vladimir


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adminadmin
Member since Feb-7-07
232 posts
Feb-01-10, 01:52 PM (PST)
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12. "RE: NSCLC with metastasis on spine"
In response to message #11
 
Hang in there Vladimir. Sometimes you have it hit illness with everything possible. The body has been out of balance for so long, to create illness, that it takes big life changes to shift it back into health.
Read as much as you can about healing, as much as possible. I know people who have been cured because they did the right thing. It's all you can hope for.

Heather
TheDCASite Forum Moderator


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dimitriskmoderator
Member since Mar-19-08
231 posts
Feb-01-10, 11:32 PM (PST)
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13. "RE: NSCLC with metastasis on spine"
In response to message #11
 
   From our experience, 10mg/Kg is too low. My sister observed benefits, (in the form of rapid marker drop), after she raised her dose to 25mg/Kg. At some point desease had started progressing very fast and DCA seemed not working. She raised dose, and added 2gr/day of I3C. After that markers went down again very fast. She had also two rounds of regional chemo and now she is stable and in very good physical condition.

Now she takes DCA 40mg/Kg 7 days on 3 days off, 2gr of I3C, 300mg benfotiamin, 6gr DHA, LDN, artesunate and some more supplements. She tolerates DCA very well and has never experienced any side effects.

Before I3C she had tried verapamil for 3 months, but we didn't see any benefits.


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Vladimir
Member since Jan-8-10
9 posts
Mar-21-10, 05:42 AM (PST)
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14. "RE: NSCLC with metastasis on spine"
In response to message #0
 
   Hello guys,

Haven’t post anything recently. My father still fights this evil disease. Today he is in greatest pain (lung cancer with bone metastasis), and I’m in greatest depression.

He got back from second round of radiotherapy (month ago), and I’ve changed his therapy with new supplements. I have many more on side, but do not know when to use or should I use them at all, so please help me tweaking them in a proper way.

Here is what he is taking now:

DCA is increased on 15mg/kg per day. Sunday and Wednesday off.

In the morning on empty stomach

7.5mg/kg DCA in black tea with lemon
1 x Benfotiamine 250mg
1 x Alpha Lipoic Acid 300 mg
1 x Germanium 150mg
1 x L-Carnitin 588mg
1 x Omega 3 1000mg
1 x Cod Liver Oil 1000mg
Vitamin D3 2 x drops (2000IU each) in orange juice (freshly squeezed)

After breakfast:

1 x MSM 1500mg
1 x Blue-Green Algae 500mg
1 x Indole-3-Carbinol with Broccoli 200mg
1 x IP6 Gold 800mg
1 x Zinc 25mg
1 x B17 500mg

After lunch:

1 x Selenium 200mcg
1 x Super Curcumin 800mg
1 x IP 6 Gold 800mg
1 x Mushroom Immune Defense (Agaricus blazei, shiitake, reishi, maitake)
1 x CoQ10 100mg
1 x Multivitamin “Life Force Multiple – no Iron”


Before Dinner:

7.5mg/kg DCA in black tea with lemon
1x Benfotiamine 250mg
1 x R-Lipoic Acid 300 mg
1 x Germanium 150mg
1 x Fish Oil 1200mg
1 x DHA 450mg
Vitamin D3 2 x drops (2000IU each) in orange juice (freshly squeezed)


Bed time:

2 x Melatonin 3mg


He uses Flax Seed oil with cottage cheese and I do alkaline every single drink with alkaline drops, to keep his PH over 7.

However, I have more supplements, but not sure when or if he should use:

•Longevinex – Resveratrol
•MMS
•Turmeric Force
•Vitamin C
•Super Arteimisinin (just got back from radiotherapy and this could cause a problem)
•LDN (problem is morphine that he is taking for pain)
•L-Glutamine
•EGCG
•Liquid Zeolite-DHQ
•Essiac Tea


Please, any comment, or any change!?

Thank you and God bless you all.

Vladimir


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dimitriskmoderator
Member since Mar-19-08
231 posts
Mar-21-10, 06:10 AM (PST)
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15. "RE: NSCLC with metastasis on spine"
In response to message #14
 
   My suggestion is to increase DCA. Try to work his dose up to 35mg/Kg. If he observes side effects, do a break for 2-3 weeks and start again at a lower dose.

It would be a good thing to have tumor markers to watch. In that case, you can see if increased DCA dose helps your father or not. Also, increase I3C dose to 2-3 gr/day. This is the ammount I had calculated to be beneficial acording to this study: http://cancerres.aacrjournals.org/cgi/content/abstract/56/3/574

In my sister's case, we observed rapid drop of markers using DCA at 40mg/Kg and I3C at 2gr. My sister fights a TNBC with lung mets, but I think I3C would work as well in most cases.

Also, he'd better take melatonin at 20-30mg/day, Omega3 at 8-10 gr/day,
quercetin at 2gr/day (6 caps of this one http://www.iherb.com/Source-Naturals-Activated-Quercetin-200-Capsules/1011?at=0) and 2-3 capsules of B complex (http://www.iherb.com/Life-Extension-Complete-B-Complex-180-Capsules/3980?at=0)

Opioids is a bad choice for pain control, because they suppress immune system, and also because the body get used to them and stop working after some time. However, I have no suggestion on this issue.


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aurora
Member since Feb-22-10
14 posts
Mar-21-10, 06:47 AM (PST)
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16. "RE: NSCLC with metastasis on spine"
In response to message #14
 
   I am not sure why B17 500mg is given after breakfast. Is it a suggestion from a physician who is familiar with your father's disease? If you google around the B17 protocol, you will find the tablet B17 normally is taken with empty stomach, and with the presence of Vitamin C and Pancreatic Enzyme, etc.

I am a newbie here, have no clue of NSCLC and its symptoms.

Best wishes, Aurora


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Vladimir
Member since Jan-8-10
9 posts
Mar-21-10, 01:10 AM (PST)
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17. "RE: NSCLC with metastasis on spine"
In response to message #16
 
   Thank you for suggestions.

Will increase DCA to 20mg/kg this week, to see his reaction and Indole 3-Carbinol.

Good to know about B17 taking. Honestly, I didn’t know about taking it on empty stomach. I’ll change that. He is disgusted of taking so many pills, and I had to split them in many parts and equal amounts.

In theory, everything sounds so clear, but when you have to force somebody to change habits after so many years, it’s totally different story. Like I said, he is disgusted about taking so many pills, and when he feels bad or feels any pain he blames me and my supplements. He would rather go and have a cigarette, than glass of orange juice. It’s so hard to deal with some people like he is.

He is my father and I’m here to help.

Thanks and best to you all.

Vladimir


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aurora
Member since Feb-22-10
14 posts
Mar-22-10, 07:25 AM (PST)
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18. "RE: NSCLC with metastasis on spine"
In response to message #17
 
   Actually I was trying to say, if I don't know what a drug is, don't know how to use it, then maybe I will just drop it and start with something easy and simple first, then combine with other stuff afterwards gradually.

All the best, Aurora



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Vladimir
Member since Jan-8-10
9 posts
Mar-24-10, 02:36 PM (PST)
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19. "RE: NSCLC with metastasis on spine"
In response to message #18
 
   Last week, CT showed that cancer is shrinking in his shoulder, but bone metastasis is still a big problem. He is in great pain.

Today we got blood test and I’ve noticed that his ALP (alkaline phosphatase) is extremely high, 308. ALP is elevated due to his bone metastasis and calcification of vertebras, but do not know what to do. I guess that even there is calcification, his spine and vertebras are weaker. Does he have to take calcium, magnesium, strontium or something else? He takes around 10,000UI of vitamin D, but don’t know if there is there anything else he can use or eat to decrease ALP?

Any ideas please!

Best

Vladimir


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Sandramoderator
Member since Feb-27-07
875 posts
Mar-24-10, 02:38 PM (PST)
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20. "RE: NSCLC with metastasis on spine"
In response to message #19
 
LAST EDITED ON Mar-24-10 AT 02:41 PM (PST)
 
Hi Vladimir,

You may want to discuss Zometa with your father's doctor. Here is some information...

http://www.aetna.com/cpb/medical/data/500_599/0524.html

http://www.zometa.com/index.jsp


And here is some info on Strontium

http://www.aor.ca/assets/Research/pdf/Advances6_Strontium_Q_and_A.pdf

http://www.aor.ca/assets/Research/pdf/Strontium_winter_03.pdf

Take care,
Sandra


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KylieOz
Member since Nov-23-09
18 posts
Mar-24-10, 00:32 AM (PST)
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21. "RE: NSCLC with metastasis on spine"
In response to message #20
 
   Hi Vladimir

I noticed in your protocol you state your father's DCA dose is in black tea with lemon.

On the DCA site home page (at the top) you'll see a warning that it should not be used in hot or warm beverages. I'm not sure if anyone else has pointed this out to you, perhaps they have.

Just thought I'd mention it, in case it affects the efficacy of the DCA (I don't know if it does).

Wishing you and your father the very best of wishes - good luck with his treatment.

Kind regards
Kylie


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Vladimir
Member since Jan-8-10
9 posts
May-01-10, 11:07 AM (PST)
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22. "RE: NSCLC with metastasis on spine"
In response to message #21
 
   Guys thank you all for suggestions.

He is taking DCA with cold Black tea. I was aware that DCA is unstable with warm beverages.

Sandra you are the QUEEN of this forum.

Million thanks for idea about Zometa.

Three weeks ago, he got the first one, and it looks like he takes less of his morphine. Next week, his is getting another one, and we’ll see how he reacts. The doctor never mentioned anything about this medication. Do not know why!? I’ve learned more on this forum than from any doctor!!!

Now, after two months of radio therapy, he is ready for Super Arteimisinin.

Guys do you know what would be the best way to implement Arteimisinin with DCA therapy!?

God bless you all,

Vladimir


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parachute
Member since Mar-20-07
64 posts
May-01-10, 12:28 PM (PST)
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23. "RE: NSCLC with metastasis on spine"
In response to message #22
 
   Hi Vladimir,

I have noticed a temporary increase in pain in response to some drugs that have been effective for my prostate cancer with bone metastases to hips and spine, including DCA and artemisinin compounds.

You don't say what pain killers your dad is employing, but it may be worth mentioning that Ultram (generic: Tramadol) is an opiate receptor agonist. Ultram acts differently than the morphine analgesics in that it has the added benefit of starving the cancer. I find it exceptionally helpful with bone pain but others report that it is not effective for them. Your dad's physician may be able to advise further.

Best wishes to you and your dad,

Randy


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Sandramoderator
Member since Feb-27-07
875 posts
May-13-10, 05:15 PM (PST)
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24. "RE: NSCLC with metastasis on spine"
In response to message #22
 
So glad your father is improving Vladimir!

I'd suggest you try 2 weeks of DCA and then 1 week of Super Artemisinin.

http://artemisinin.pbworks.com/FrontPage

Best wishes,
Sandra


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