the DCA site - Updating you on DCA and Cancer

DCA Discussion Forum

Subject: "Latest on my metastatic colon cancer"     Previous Topic | Next Topic
Printer-friendly copy     Email this topic to a friend    
Conferences Testimonials ONLY Topic #283
Reading Topic #283
robmx
Member since May-25-09
59 posts
Oct-04-09, 08:32 AM (PST)
Click to EMail robmx Click to send private message to robmx Click to add this user to your buddy list  
"Latest on my metastatic colon cancer"
 
   I reported back in May that I might have lung cancer and later that I had a recurrence of my colon cancer from an earlier diagnosis and removal of colon cancer in 2006. I now have metastatic colon cancer in my hylar area and a nodule in the upper right lung that was diagnosed late April 2009.

I then reported here that after taking DCA from May 21st till July 13th I had a CT scan that showed I had a significant reduction in my primary tumor of 30-35%. I stopped taking DCA on July 18th because of neuropathy. I had not taken any B1 for the last 8-10 days of taking 2 gms per day of DCA and I attribute my neuropathy to that mistake.

I had avoided regular chemo during this time and in anticipation of starting chemo and having a scheduled CT scan for September 22nd I started taking DCA again on September 10th at one gm per day with lots of B1 and ALA.

Saw my primary oncologist on the 30th and another oncologist at a major NYC cancer hospital on the 31st. Both were amazed at my condition. No symptoms, good health and again a "significant reduction in tumor size".

I had put off the start of regular chemo before this news till Oct 22nd and now I was told that they wanted to cancel any chemo and have me return for another CT scan in two months.

And they had been against any thought of surgery since I was metastatic but now wanted to schedule an appointment with a thoracic surgeon.

I also was told for the first time that my initial hylar tumor was very large to begin with. Had not heard that before.

So initially having been told that I had six months to a year to live with no chemo, five plus months in I am told that since my tumors are shrinking that chemo is not warranted at the moment.

DCA is the only thing that I credit this for.

I have been taking this regimen for the last few months and restarted DCA at 1 gm per day on September 10th increasing to 2 gm per day on the 27th. My neuropathy is getting better every day while taking the DCA.

2 gm DCA (Sodium Dichloroacetate)
1 400 mg EGCG with 4 mg caffeine
3 100 mg Chlorophylinn
3 Kirkland Daily Multi Vitamin
2 Super B complex Naturemade
4 150 mg Benfotiamine Synthetic B1
2 395 mg B1
1 500 mg Curcumin with Bioperine
11 Kirkland Omega 3 1000 mg with 300 mg Omega 3
2 Alpha Lipoic Acid 300 mg
2 baby aspirin

I would like to add

1 gm Ribavirin
4.5 mg Naltrexone
some low dose of Metformin

What most amazes me is that I only took DCA 18 days between CT scans on July 13th and September 22nd. I did not take DCA for 10 weeks.


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top

Latest on my metastatic colon cancer [View All], robmx, 08:32 AM, Oct-04-09, (0)  
Conferences | Topics | Previous Topic | Next Topic
robmx
Member since May-25-09
59 posts
Oct-22-09, 10:17 PM (PST)
Click to EMail robmx Click to send private message to robmx Click to add this user to your buddy list  
1. "RE: Latest on my metastatic colon cancer"
In response to message #0
 
   I need to find a doctor who will listen to my arguments, to give me a hearing, on why I should/should not take Ribavirin to fight my colon cancer and if so to give me a prescription for same. Had a long talk with a scientist in Canada who had run a clinical trial using Ribavirin with cancer and had very good results including remissions. I know the Medicor clinic in Toronto uses it.

It is legal for a doctor, AFAIK, to prescribe any FDA approved drug for any off label use. What are the other considerations?

Anyone have any idea on how to find such a doctor?


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
michele lee
Member since May-26-09
124 posts
Oct-28-09, 10:33 AM (PST)
Click to EMail michele%20lee Click to send private message to michele%20lee Click to view user profileClick to add this user to your buddy list  
2. "RE: Latest on my metastatic colon cancer"
In response to message #1
 
   You have to doctor shop. Tell them why you need the script and present them the scientific studies on how it works. Other wise you can buy it from sites on the internet.
http://www.quality-rx.com/prescriptions/copegus/?fid=1067&cid=126


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
robmx
Member since May-25-09
59 posts
Dec-07-09, 08:37 PM (PST)
Click to EMail robmx Click to send private message to robmx Click to add this user to your buddy list  
3. "RE: Latest on my metastatic colon cancer"
In response to message #2
 
   Thanks Michelle Lee for your post.

I had a CT scan on December 1, 2009.

My tumors stayed the same for the last 12 weeks since September 22nd.

My CEA went from 6 to 13. After having two CT scan in which the tumors shrank and my CEA levels were around 6 this was not good news especially since I had taken more DCA over this period than the last.


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
Sandramoderator
Member since Feb-27-07
887 posts
Dec-07-09, 08:50 PM (PST)
Click to EMail Sandra Click to send private message to Sandra Click to view user profileClick to add this user to your buddy list  
4. "RE: Latest on my metastatic colon cancer"
In response to message #3
 
Robmx,

Have you been taking any time off DCA? You may need to take up to a week off to clear metabolites of it from your system. I'm also wondering if you have changed anything in your protocol, from when you got the good scan results compared to the present results?

Best wishes,
Sandra


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
robmx
Member since May-25-09
59 posts
Dec-08-09, 07:55 AM (PST)
Click to EMail robmx Click to send private message to robmx Click to add this user to your buddy list  
5. "RE: Latest on my metastatic colon cancer"
In response to message #4
 
   The only thing I changed from the last, better, CT scan was the amount and timing of my DCA. Between the first and second, both positive, CT scans I took 2 grams of DCA a day for the first five days and then got neuropathy and stopped DCA for 9 weeks after which I took ONE gram a day for 11 days just before the CT scan. I was amazed that I had positive results and so did a lot more DCA in the twelve weeks before the December 1st scan.

I did stop DCA for two weeks in that period.

I also started taking Metformin. 500 mg for three days and 250 mg for two days before the last scan. My brother takes 2250 mg a day for his diabetes so my dosages seem small.

Did you see my post about Mitaplatin?


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
robmx
Member since May-25-09
59 posts
Dec-08-09, 09:49 AM (PST)
Click to EMail robmx Click to send private message to robmx Click to add this user to your buddy list  
6. "RE: Latest on my metastatic colon cancer"
In response to message #4
 
   Here is my use of DCA during the last twelve week period starting with September 23rd.

110022200022222220020020020020000000000020000022220002222222x2x2x022x2x000000.

The last zero is December 1st. A bit scattershot. The x's represent when I ALSO took Metformin.

I feel fine, no symptoms and will be off DCA for at least the next five weeks trying to get my neuropathy down. I have been off DCA for 13 days already.

I read somewhere, maybe here but can't find it, a theory that if you go off DCA for 8 weeks after it stopped working that the reason it stopped would be countered and that DCA would start working again. Wish I could find that article. The researcher had a specific finding that led he/she to posit the theory.

You think that a week might be enough in the case of neuropathy? I stopped using DCA after the first good CT scan because of that article even though DCA had not stopped working for me AFAIK AND to counter the neuropathy.

From my results I can determine nothing but I am going to try to copy the second good CT scan results by doing the same thing I did between the first and second CT scan for this 12 week period before my next CT scan.

My oncologist was not so impressed with my results this time and somewhat quizzical about my reason for trying DCA. She tells me she thinks I would have done better with standard FDA approved chemo. She has suggested that I consider a clinical trial for CT-011 a hormonal antibody. I may though only 50% will receive CT-011 and I may not get it and the trial last 76 weeks.

Any comment about CT-011 from anyone would be appreciated.


Thanks for your imput.


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
Sandramoderator
Member since Feb-27-07
887 posts
Dec-11-09, 09:11 AM (PST)
Click to EMail Sandra Click to send private message to Sandra Click to view user profileClick to add this user to your buddy list  
7. "RE: Latest on my metastatic colon cancer"
In response to message #6
 
Hi robmx,

I had to go off DCA at times too because of neuropathy. Now I'm cycling between artemisinin (three weeks out of a month) and DCA (one week out of a month). I'm basically using Protocol A here, http://artemisinin.pbworks.com/FrontPage with a few other things like lymphasol, vitamin D3, melatonin, LDN...

I wondered if you are using Tagamet? It is supposed to work well against colon cancer.

Take care,
Sandra

(Yes I saw your post on MITaplatin. Knew someone would find a way to make $$$$ off DCA. Too bad they chose such a toxic substance to link it to. There are also now clinical trials underway for DCA against BC and NSCLC)

http://clinicaltrialsfeeds.org/clinical-trials/show/NCT01029925


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
robmx
Member since May-25-09
59 posts
Dec-11-09, 01:48 PM (PST)
Click to EMail robmx Click to send private message to robmx Click to add this user to your buddy list  
8. "RE: Latest on my metastatic colon cancer"
In response to message #7
 
   I will look into that, I am not taking it. Neuropathy scared me the first time and again the second time, now.

Hope it is right that it will go away with time. My oncologist warns me that it might reduce to levels always higher than previous low levels and leave me with permanent damage.

Of course permanent is a relative term when you don't know how much time you may have.

My cancer Bookmarks is getting pretty long. I was thinking of putting it up here. What do you think?


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
robmx
Member since May-25-09
59 posts
Jan-12-10, 08:34 AM (PST)
Click to EMail robmx Click to send private message to robmx Click to add this user to your buddy list  
9. "RE: Latest on my metastatic colon cancer"
In response to message #7
 
   Sandra,

Are you familiar with this company?

http://www.artbiomedical.com/images/ART_GI50_Breast_Sep-09.pdf

Their data says that Artesunate would do better than Artimisinin.

Do I need a prescription? Where can I buy either?


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
robmx
Member since May-25-09
59 posts
Mar-08-10, 01:38 PM (PST)
Click to EMail robmx Click to send private message to robmx Click to add this user to your buddy list  
10. "RE: Latest on my metastatic colon cancer"
In response to message #7
 
   Sandra,

Took your advice on Artemisinin. Taking 500 mg plus Butyrex daily and will up it to a full gm.

I now have had two CT scans where the tumors reduced and the latest two CT scans where they stayed the same over an 11 month period. Next one is in April.

I am sort of doing what you are, DCA on and off.

Things are getting interesting. My oncologist has now set up a meet with a surgeon and he thinks it may be possible that my Hylar tumor may not be cancer while my lung tumor definitely is. I will get an biopsy of the Hylar tumor now. If it is not cancer he will operate on the lung. Up till now everyone had been telling be that an operation was out of the question.

Had an appointment at John Hopkins last week and they also suggested looking into surgery. I was there looking to get in a Phase One trial of G-202 also called 12ADT and Thapsigargin. I think that this drug is on thedcasite somewhere but I can't find it.

What I find surprisisng is that Thapsigargin is sort of a sister drug to Artemisinin.

http://en.wikipedia.org/wiki/Thapsigargin

They both being sesquiterpene lactone. Anyway this drug kills cancer cells by drowning them in calcium. And at the same time this protocol will be dismantling both new and old blood vessels that feed the tumors. Avastin only kills off new blood vessels I think.

Anyway they thought I had a good chance of getting in the trial.

Also found another DCA, deoxycholic acid, which "induces apoptosis via the mitochondrial pathway by triggering the release of mitochondrial factors such as cytochrome c." And is being studied here in conjunction with Thapsigargin.

"the tumor necrosis factor-related apoptosis-inducing ligand, thapsigargin"
http://www.britannica.com/bps/additionalcontent/18/31561424/Deoxycholic-Acid-Can-Induce-Apoptosis-in-the-Human-Colon-Cancer-Cell-Line-HCT116-in-the-Absence-of-Bax

Too many coincidences.

Hope you are doing well and thanks for all your information.


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
Sandramoderator
Member since Feb-27-07
887 posts
Mar-08-10, 04:03 PM (PST)
Click to EMail Sandra Click to send private message to Sandra Click to view user profileClick to add this user to your buddy list  
11. "RE: Latest on my metastatic colon cancer"
In response to message #10
 
Hi robmx,

Thanks for the info. Glad you seem to be doing well.

If oral artemisinin seems to lose efficacy, there is an injectable artesunate available from All Day Chemist.
https://www.alldaychemist.com/search.php?search_query=artesunate

I'd suggest you add Germanium Sesquioxide for your lung mets (2-3 grams a day). There is info here on it if you scroll down:

http://artemisinin.pbworks.com/FrontPage


more here:

http://www.designednutritional.com/Info%20sheets/GermaniumSesq.html

http://www.designednutritional.com/Header%20Side%20Door/Germanium%20Sesquioxide%20101.html

http://www.vrp.com/articles.aspx?ProdID=783

Best of luck to you,
Sandra


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
robmx
Member since May-25-09
59 posts
Mar-08-10, 08:38 PM (PST)
Click to EMail robmx Click to send private message to robmx Click to add this user to your buddy list  
12. "RE: Latest on my metastatic colon cancer"
In response to message #11
 
   Do I need a prescription? Any doctor that would give such a prescription?

Injection! Needle! Me!! How do you learn to do that?


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
Sandramoderator
Member since Feb-27-07
887 posts
Mar-08-10, 08:49 PM (PST)
Click to EMail Sandra Click to send private message to Sandra Click to view user profileClick to add this user to your buddy list  
13. "RE: Latest on my metastatic colon cancer"
In response to message #12
 
You don't need a prescription to order it. Here is a case study using it:

http://www.rrpwebsite.org/index.cfm?fuseaction=feature.display&feature_id=38

http://www.doiserbia.nbs.bg.ac.yu/(A(qC0sQZBnyAEkAAAAZmVmYzI5NjItZDc2YS00N2M5LWE0MWItNzRhZGIxY2IzNDQ3SHvS3GNiR7JBfjrQCJ8SOgXsdrU1))/img/doi/0354-7310/2002/0354-73100204279S.pdf (copy/paste this entire link into your browser).

And if you can't get a doctor's help, you can go on www.youtube.com and search for "intramuscular injection" for videos on how to do the injection. There are nursing videos and military ones.

If DCA and oral artemisinin are working for you though, I'd just suggest you keep cycling between them.

Best wishes,
Sandra


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
robmx
Member since May-25-09
59 posts
Mar-11-10, 10:53 AM (PST)
Click to EMail robmx Click to send private message to robmx Click to add this user to your buddy list  
14. "RE: Latest on my metastatic colon cancer"
In response to message #13
 
   I was thinking intravenous injection which would be harder.

Artesunate does not require a prescription?

I have read the article. In fact I have talked to Professor Singh a couple of times. He is the one who sent me to a place to buy Artemisinin. He recommends that I just use Artemisinin. Seemed to say that Artesunate was hard to get into the country and that I could not use it for long periods while I could use Artemisinin that way.

Do you have a source for Artesunate? Best I have found is a company in China that wants to sell me 500 grams for $400 something.

I am off all supplements and DCA. Everything for a week. Have a biopsy of my Hylar tumor to see if it is cancer next week. If so I may have surgery on my lung tumor that is colon cancer. Surgeon says if done I would have a 25% chance of being cured.

That is if my Hylar tumor is not cancer, maybe a 5% chance, then I have a 25% chance of cure. What does that work out to chance wise?


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
Sandramoderator
Member since Feb-27-07
887 posts
Mar-11-10, 01:35 PM (PST)
Click to EMail Sandra Click to send private message to Sandra Click to view user profileClick to add this user to your buddy list  
15. "RE: Latest on my metastatic colon cancer"
In response to message #14
 
Here is a source for oral artesunate.

http://www.hepalin.com/hepasunate50.htm

It is the most active form, but also has the shortest half-life in the body. I'd suggest you add Super Artemisinin. Also, be sure to use 3-4 grams each of EPA and DHA omega 3 fish oil.

http://www.iherb.com/Allergy-Research-Group-Nutricology-Super-Artemisinin-60-Veggie-Caps/3484

Best of luck,
Sandra


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
aurora
Member since Feb-22-10
14 posts
Mar-14-10, 01:33 PM (PST)
Click to EMail aurora Click to send private message to aurora Click to view user profileClick to add this user to your buddy list  
16. "RE: Latest on my metastatic colon cancer"
In response to message #15
 
   Hi, Sandra,

You are showing us an interesting protocol, thanks! But why don't you take ART together with DCA? They will counteract each other?

Aurora


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
Sandramoderator
Member since Feb-27-07
887 posts
Mar-14-10, 01:39 PM (PST)
Click to EMail Sandra Click to send private message to Sandra Click to view user profileClick to add this user to your buddy list  
17. "RE: Latest on my metastatic colon cancer"
In response to message #16
 
Both Artemisinin and DCA require 'time-off' to maintain efficacy. That is why it is better to cycle between the two. Also, DCA use causes build up of 5-ALA (part of what causes peripheral neuropathy) and Artemisinin uses 5-ALA because it is a heme precursor. It takes about a week to clear the enzyme that causes artemisinin autoinduction, so I'm suggesting using DCA for 1-2 weeks, and artemisinin for 1 week - for people who find that both work for them. But each person will need to find what works best for THEM.

Best wishes,
Sandra


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
aurora
Member since Feb-22-10
14 posts
Mar-16-10, 12:38 PM (PST)
Click to EMail aurora Click to send private message to aurora Click to view user profileClick to add this user to your buddy list  
18. "RE: Latest on my metastatic colon cancer"
In response to message #17
 
   thanks for your reply, Sandra.

In another post you mentioned "I'm going to suggest that people taking artemisinin also be sure to add vitamin B-6, B-12 and folic acid." I wonder if this is still valid for ART protocol, because it is not listed in your ATR protocol webpage.

Any thing for me to read about?

Best regards, Aurora


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
Sandramoderator
Member since Feb-27-07
887 posts
Mar-16-10, 02:45 PM (PST)
Click to EMail Sandra Click to send private message to Sandra Click to view user profileClick to add this user to your buddy list  
19. "RE: Latest on my metastatic colon cancer"
In response to message #18
 
I believe that post was advice to someone who was also experiencing PN from DCA use. It is not part of the artemisinin protocol.

Sandra


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
aurora
Member since Feb-22-10
14 posts
Mar-17-10, 10:38 AM (PST)
Click to EMail aurora Click to send private message to aurora Click to view user profileClick to add this user to your buddy list  
20. "RE: Latest on my metastatic colon cancer"
In response to message #19
 
   >I believe that post was advice to someone who was also
>experiencing PN from DCA use. It is not part of the
>artemisinin protocol.
>
>Sandra


Ok, I found the original thread again, you know as a new comer, I have to read many threads, but it looks like there is NO SEARCH function in this forum!? Or can somebody please tell me how to do "search by words, by author", etc?

http://www.thedcasite.com/cgi/dcboard.cgi?az=show_thread&om=129&forum=DCForumID3&viewmode=all

I am interested in your DCA+ART protocol, since you said you were anemic, and wanted to suggest people to add B6,B12,folic acid and Floradix when taking art, I'd like to know the theory behind this, maybe you were trying to increase your iron level?


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
Sandramoderator
Member since Feb-27-07
887 posts
Mar-22-10, 02:00 PM (PST)
Click to EMail Sandra Click to send private message to Sandra Click to view user profileClick to add this user to your buddy list  
22. "RE: Latest on my metastatic colon cancer"
In response to message #20
 
Yes, that post does refer to my blood work showing me as slightly anemic. I wrote to Dr. Hoang about this and he recommends http://www.goutwell.com/Minecel.html . Again, B-6, B-12, folic acid, etc aren't part of the artemisinin protocol.

Sandra


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
aurora
Member since Feb-22-10
14 posts
Mar-23-10, 04:46 AM (PST)
Click to EMail aurora Click to send private message to aurora Click to view user profileClick to add this user to your buddy list  
23. "RE: Latest on my metastatic colon cancer"
In response to message #22
 
   Thanks for the reply, Sandra.

We are taking another product

http://www.allstarhealth.com/f/sun_chlorella-sun_chlorella.htm

And I just read a new paper about Artesunate in vivo, FYI.

++++++++++++++++++

Int J Cancer. 2010 Mar 15.
First evidence that the anti-malarial drug Artesunate inhibits invasion and in vivo metastasis in lung cancer by targeting essential extracellular proteases.

Rasheed SA, Efferth T, Asangani IA, Allgayer H.
Department of Experimental Surgery and Molecular Oncology of Solid Tumors, Medical Faculty Mannheim, University of Heidelberg, and German Cancer Research Center (DKFZ)- Heidelberg, Mannheim, Germany.
Despite progress in treatment, progressive non-small cell lung cancer (NSCLC) still limits survival dramatically, and novel therapeutic compounds are needed. Initial investigations suggest that Artesunate (ART), an anti-malarial drug, has anti-proliferative capacities. However, anti-invasive and anti-metastatic properties of ART in cancer have never been explored. Therefore, this first study was performed to (1) investigate if ART is able to inhibit invasion and metastasis in NSCLC, and (2) to identify first molecular targets and mechanisms mediating this ability. ART significantly impaired matrigel invasion of 6 NSCLC cell lines, and inhibited urokinase-type plasminogen activator (u-PA) activity, -protein and -mRNA-expression. Furthermore, in a PCR-metastasis array, ART inhibited the expression of several matrix metallo-proteinases (MMPs), especially MMP-2 and MMP-7 mRNA/-protein. In luciferase reporter assays, ART downregulated MMP-2-, MMP-7-, and u-PA-promoter/-enhancer activity, in parallel to AP-1- and NF-kB-transactivation. Si-RNA knockdown of u-PA, MMP-2 and MMP-7 abolished ART's ability to inhibit invasion, confirming their role as essential mediators. In vivo, ART significantly impaired primary tumor growth and metastasis in the chicken embryo metastasis (CAM) model. In conclusion, this is the first study to show that ART considerably suppresses invasion and metastasis in NSCLC, specifically targeting transcription of u-PA, MMP-2 and MMP-7, prompting immediate studies on Artesunate as a novel therapeutic in NSCLC. (c) 2010 UICC.

PMID: 20232396

++++++++++++++++++++++

Best wishes to you, Aurora


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
aurora
Member since Feb-22-10
14 posts
Mar-17-10, 10:38 AM (PST)
Click to EMail aurora Click to send private message to aurora Click to view user profileClick to add this user to your buddy list  
21. "RE: Latest on my metastatic colon cancer"
In response to message #19
 
   Oops! Apparently I can do search by words, it is not always shown on top though. Still now quite sure if it works the same for User Name search. OK please just forget it.


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
robmx
Member since May-25-09
59 posts
Apr-06-10, 12:58 PM (PST)
Click to EMail robmx Click to send private message to robmx Click to add this user to your buddy list  
24. "RE: Latest on my metastatic colon cancer"
In response to message #14
 
   The latest.

Have been taking a gram of Artemisinin per day sort of. Went through three bottles of 60 100 mg capsules in the last few weeks. Have ordered 5 more bottles. Started with one capsule a day, went to five and then ten per day. Took 2 grams of DCA for 12 days starting on February 3rd and another stint of 15 days starting on March 16th. Along with the regular stuff.

Still feel fine, no symptoms of my metastatic colon cancer in Hylar region and upper right lung. Last four CT scans showed reduction, reduction, stable and stable. That was on DCA, Curcumin, Fish Oil, D3, and the last scan, February 2nd, included Metformin.

Had CT scan on April 5th and will know results on Thursday. Hope the Artemisinin did something.

Had a biopsy of my Hylar tumor, the larger one, on March 15th. This was done because a surgeon thought that since it had not grown it may not be cancer. The node in my upper right lung had been biopsied in May 2009 and was metastatic colon cancer.

No luck, my Hylar tumor is also cancer.


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
robmx
Member since May-25-09
59 posts
Apr-09-10, 00:51 AM (PST)
Click to EMail robmx Click to send private message to robmx Click to add this user to your buddy list  
25. "RE: Latest on my metastatic colon cancer"
In response to message #24
 
   Result of my April 5th CT scan.

No change in my Tumor size.

Oncologist says that my decision to stay away from chemo is a valid one still. Have had CT scans every two months. She now says we can go to every 2.5 months.

Feel fine, no symptoms, it will be a year since I was diagnosed with metastatic colon cancer later this month.

I am thinking of upping the dose of DCA from 2 grams to 3 grams per day and upping my dose of Artemisinin from 1 gram to 1.5 grams.

Hoping to get reduction in tumor size like in the beginning instead of stable.

I am on a list for a targeted delivery mono therapy Phase 1 trial. Looking for a home run. My oncologist does not agree with this.

The trick is to get in a later cohort but not too late or they will have ended the trial. I want the higher dosage of the later cohorts where there might be some efficacy.

She says I am more interested in uncertainty than certainty. I agree. I would rather go with the unknown possible home run that the palliative chemo.


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
robmx
Member since May-25-09
59 posts
Jun-22-10, 09:18 AM (PST)
Click to EMail robmx Click to send private message to robmx Click to add this user to your buddy list  
26. "RE: Latest on my metastatic colon cancer"
In response to message #24
 
   Had a visit to the emergency room and they gave me a CT scan. Got the results yesterday. No change in my tumors. Next regular scan has now been put off till end of July.

It has been 14 months since I was diagnosed with metastatic colon cancer and I feel fine, no symptoms. Only thing that I am taking that I know is working is DCA. No other chemo. Have been taking, recently 500 mg of Artemisinin and 100 mg or Artesunate per day plus the usual stuff.

1 gm of DCA a day, half in morning half at night. Take a day off every two days then on three on then off a day.

I think DCA is working for me.

The reality is that I have only taken 150 grams of DCA total since I started. Went off for two two month periods and have had numerous different plans but in total only have used 150 grams.

Starting to get serious now. Sort of following the dosage that they used in Alberta I think and will stick with it till end of July. Maybe I will get a reduction in tumor size, something I have not had since the first two months. If I stick with a gram a day it will be more on average than I have taken since the first two months.

Funny since in the Alberta trial they say that they did not get blood levels of DCA that were working for the first three months. My results were the best in the first two months???


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
rtshinn
Member since Mar-7-07
139 posts
Jun-22-10, 02:29 PM (PST)
Click to EMail rtshinn Click to send private message to rtshinn Click to view user profileClick to add this user to your buddy list  
27. "RE: Latest on my metastatic colon cancer"
In response to message #26
 
   Excellent news, Robmx!


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
chrisz
Member since Jul-13-07
98 posts
Jun-23-10, 02:15 PM (PST)
Click to EMail chrisz Click to send private message to chrisz Click to view user profileClick to add this user to your buddy list  
28. "RE: Latest on my metastatic colon cancer"
In response to message #27
 
   great news.
keep it up.
sending you prayers and big energy.

chrisz


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
robmx
Member since May-25-09
59 posts
Aug-05-10, 01:05 AM (PST)
Click to EMail robmx Click to send private message to robmx Click to add this user to your buddy list  
29. "RE: Latest on my metastatic colon cancer"
In response to message #28
 
   Had my latest CT scan Aug 3 and results today. No change in tumor size.
This started May 21 2009, taking DCA. Next scan 11/11 at 11 am. Will try for same date in 2011.

My CEA has gone up to 20 from 6 in the early days however.

No chemo yet.

No symptoms feel great


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
chrisz
Member since Jul-13-07
98 posts
Aug-06-10, 06:34 AM (PST)
Click to EMail chrisz Click to send private message to chrisz Click to view user profileClick to add this user to your buddy list  
30. "RE: Latest on my metastatic colon cancer"
In response to message #29
 
   Wonderful news.
Great that your feeling well. And No Chemo....Great
Keep it up and my prayers are with you

chris z


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
robmx
Member since May-25-09
59 posts
Nov-11-10, 00:06 AM (PST)
Click to EMail robmx Click to send private message to robmx Click to add this user to your buddy list  
31. "RE: Latest on my metastatic colon cancer"
In response to message #30
 
   Not so wonderful news. Got the results of my latest CT scan today.

Have a Hylar mass that stayed the same but the tumor in my right lung increased from 2.5 x 2.9 cm to 3.1 x 3.3 cm. This tumor had stayed the same for 16 months and has now increased for the first time in the last three.

Last year in the first three months I took DCA my Hylar tumor decreased by 50% and since then all my tumors had remained the same till now.

What was different? My DCA was getting near its expiration date. I stopped taking fish oil, had been taking as much as 10-15 grams a day. Increased my Metformin from 200 mg to 300 mg. Started taking Tagamet or Cimetidine at a gram a day the last two weeks and I had skipped everything but aspirin for a month of the last three. DCA for an extra week.

Whatever I now have to consider chemo for the first time. My oncologist says the sooner the better.


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top
joeyooser
Member since Feb-5-10
12 posts
Nov-24-10, 10:54 PM (PST)
Click to EMail joeyooser Click to send private message to joeyooser Click to view user profileClick to add this user to your buddy list  
32. "RE: Latest on my metastatic colon cancer"
In response to message #31
 
   Thanks for the update, Rob. It sounds like it held it at bay for a long time and this is such a small change, it's hard to know if it's significant.

I was Stage III colon cancer and took DCA on the "off" week of folfox and now my colon cancer has come back a year later in a very bad way. I'm not sure if I should attempt more DCA or just rely on the mainstream chemos only.


  Alert | IP Printer-friendly page | Edit | Reply | Reply With Quote | Top

Conferences | Topics | Previous Topic | Next Topic