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haidagwaii
Member since Oct-7-08
3 posts
Nov-16-08, 07:16 PM (PST)
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"Clear Cell Sarcoma + DCA with side effects"
 
   Thought I would share my DCA experience. I am a 44 year old male. Excellent health, except for the cancer. I decided to go on to DCA despite the lack of efficacy on Sarcoma's. Anyone else trying things out there? I was misdiagnosed with melanoma and three years later left with the dilemma of what to do. The cancer agency did not want anything to do with DCA and gave me no other options.
DCA is available locally in Vancouver BC. And I started up with the assistance of a friend that was a doctor. I started taking DCA in early August using the recommended supplements to increase effectiveness, and soon after that I had a side effect of Severe neck pain and numbness in the side of my head. Not a common effect for most. I endured the pain and discomfort but after eliminating other possibilities for the cause of the pain, I discontinued the DCA at the end of september. Slowly my neck has gotten better. I would describe it as a muscular inflammation or possible nerve sensitivity- a really stiff neck. It was difficult to stop the DCA, because I had great hopes in it helping my cancer control. Really pissed me off to be diagnosed with a rare relatively un-researched type of cancer. But I have a few other things that I am including in my personal treatment regime that I hold hope in solving my health issues.
At this moment I am using the Rife machine and mushroom mix as well as the regular supplements to boost immune system. I feel real healthy, despite the loss of 30 pounds-I hope is due to elimination of all sugars from my diet.
To date I have had 4 surgeries. 2surgeries 3 years ago and two this summer to remove affected lymph nodes in my leg. The Cancer agency will only cut and remove. I have had radiation in the area of my hip where one tumor was located. Other than that they say there is nothing they can do, or will do until the tumors come back. My surgeon told me to expect that in the future. I figure I am at stage 3 right now, and consider myself really lucky it is not worse.
This summer I did a crap load of homework. I had to decide to trust in the Cancer agency or go it on my own. " But when you get answers like -I don't know"from the doctors you are left with little choice. I am going it on my own, taking my health into my own hands. I would encourage everyone else to seriously consider the same, educate to ask questions of your doctors. I have lots of information that I would share with anyone who is interested. But you have to make the decision and believe in options other than the professional health care industry.
I am always willing to help and share information with other cancer patients especially if you are a sarcoma victim.
please feel free to email me
Marty Basso
haidagwaii at shaw dot ca


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Clear Cell Sarcoma + DCA with side effects [View All], haidagwaii, 07:16 PM, Nov-16-08, (0)  
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Elizabeth1
Member since Oct-2-08
188 posts
Nov-17-08, 03:14 AM (PST)
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1. "RE: Clear Cell Sarcoma + DCA with side effects"
In response to message #0
 

Hey Marty,

Welcome, sorry to see you here... My name is Elizabeth, not same cancer. I am typing verticaly so forgive spelling. How's good old Van these days<??? I'm a Toronto girl,(Better than a Surrey Girl eh LOL ) Although, I left Toronto for ALaska in 95 and "LANDED" in Salmon Arm er broke down in SA LOL.. number of months later ended up in Vancouver!!!! Now I LOVE that town LOL Granville Island SAILING!!!out to the Charlottes n Taxada Island..mmmm I can smell the ocean breezes n rowing to shore to collect fresh oysters..... Ahhhhh water taxi to gastown n a show @ the IMAX....
Now back to cancer WOW!

YOU CAN see doctors when u not tqakin treatment???? WOW livin the high life!! LOL NOT in Ontario. not very well today, so I won't stay long saw ya here wanted to say HELLO.

I too no "Treatment" but NOW no help... On a DCA break now,

OOOO I gotta go., This is not werkin tonite

Speak wit ya sooner'
Elizabeth
Lets fight together, help each other. I truely believe that we have to be our own health advocat.


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Elizabeth1
Member since Oct-2-08
188 posts
Nov-17-08, 12:08 PM (PST)
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2. "RE: Clear Cell Sarcoma + DCA with side effects"
In response to message #0
 
Mornin Marty.

Ok not such a retard this am. Back on my seat~Vertical LOL.
I have had the same experiences as you as far as the medical community is concerned. I almost bleed to death @ emerg. due to them not wanting to treat me!!!! Got her fixed up, and MAY have a source for some help. I will not push my luck though. If they find out dhe will help, they may shun her if she doesn't dump me.

I was dx with Aug 11th/08: Advanced/Invasive Squamous cervical Cancer Stage 3B with abdomen & para-aortic lymph nodes involved....Inoperable (too big~deep)they offered me: Internal High dose radiation & external beam radiation (from lower sternum to Vag. & from hip to hip) add chemo, and we'll kill u B4 Christmas.... SIGN HERE! this giving me with "Treatment" a WHOPPING 10% chance of survival there is more, but won't add ...... Just I did the same as you, I went home and did homework fo9r like 2 weeks, 16 to 20 hours a day. Devised a list and had a RELUCTANT radiology oncoligist answer all questions. HE did not want to. I had the onfo and he HAD to answer me. So with his answers I knew there was NO WAY I could do that to myself. Now when I try to get help, I am paying the price for going against them.

ANyway, welcome look forward to talking with you sharing with you too!!
I am intreguied re: Machine u used???? Mushrooms good for my cancer too!! I do the Vitamin C IV therapy 50g 2 x's per week and need to take alot of B-12 due to chronic anemia and continual blood loss. (LOL can't get a transfusion NOT worth it!) A whole host of supplements, DCA Juicing ect. must run shower son to school n NEW snow!!
Best Elizabeth


Lets fight together, help each other. I truely believe that we have to be our own health advocat.


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haidagwaii
Member since Oct-7-08
3 posts
Nov-30-08, 10:14 PM (PST)
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3. "RE: Clear Cell Sarcoma + DCA with side effects"
In response to message #0
 
   Just to update.
Not sure if DCA was responsible for the pain in the neck. I think it might be something else I am taking causing the problem. I have discontinued DCA and have had a flare up with my neck. Therefore, I think DCA is not the cause. More time will tell.
Just wanted to let you guys know
thanks
Marty


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Elizabeth1
Member since Oct-2-08
188 posts
Nov-30-08, 10:27 PM (PST)
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4. "RE: Clear Cell Sarcoma + DCA with side effects"
In response to message #3
 
Hiya,

YES, sometimes this can be the DCA working..... I get em in my nodes too. Remember, we have garbage inside, and we send in workers to REMOVE it, it's gonna hurt a little.

How are you taking the DCA?? Capsules? WHEN I was @ Medicor in Toronto, they tell most to go on DCA 2 weeks ON 1 week off, @ 23 to 25mg PER 1kg of body weight.

Others are taking different doses according to, well I am not sure>???

Elizabeth
Lets fight together, help each other. I truely believe that we have to be our own health advocat.


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haidagwaii
Member since Oct-7-08
3 posts
Dec-06-08, 02:43 AM (PST)
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5. "RE: Clear Cell Sarcoma + DCA with side effects"
In response to message #0
 
   Marty
Had an X ray the other day and neck indicates tumor has destroyed bone.
CT scan upcoming will determine if surgery is an option. or Surgery and radiation.
My side effects was pain in the neck and I attributed it to some of the items I was taking, including DCA. One can never be sure with these things but here are my thoughts.
Tumor has been there for at least 3 months. During this time on at least two occasions I had a sharp increase in discomfort and pain. Mushroom matrix was one of the products I was taking as well as DCA.
Perhaps these two or one or both had an effect on the tumor and this caused the increase pain. My guess and hope is that the DCA was improving or fighting the cancer.
I will consider trying DCA again as long as CT results do not indicate that removal of tumor via DCA will compromise my spinal cord.
Big dilemma and tough battle ahead for me.
Guess we really need a miracle.

thanks
Marty


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Elizabeth1
Member since Oct-2-08
188 posts
Dec-06-08, 04:02 AM (PST)
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6. "RE: Clear Cell Sarcoma + DCA with side effects"
In response to message #5
 
Hey Marty,

Hang in there. It probably was the DCA and the shrooms, working on the tumor. IT is tough for all, this is a "Make it up as we go along" kinda treatment yhou know...No matter if you have: cervical, prostate, brain, breast, lung ect ect.... We are all experimenting with it.

FOr the most, it is having pos. effects. Good with the bad. NO pain No gain.... I figure that when the DCA finds what it went in there for, it just goes to town. Each of us has different things/side efects of what happens when the cycle begins with the DCA. I am on 2 weeks on 1 week of. MAN, when I start the first day back on>>> I plan to be on the couch for a few @ least. IT starts to work right away. Leaves me: in a SEVERE flu like state where I can hardly walk, sleep ALL DAY/night crawling to the bathroom, legs are jello. I figure that this is doing it's job. I pretty well have the last stage cancer in my group PLUS lymph nodes involved. It's gotta lot garbage to take out! It's gonna be worth it for you to carry on, keep in touch and let us know waazzz up.

We are all here one way er another

Best Elizabeth


Lets fight together, help each other. I truely believe that we have to be our own health advocat.


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jamesawick
Member since Dec-6-07
13 posts
Dec-07-08, 04:37 AM (PST)
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7. "RE: Clear Cell Sarcoma + DCA with side effects"
In response to message #6
 
   hi marty
welcome to the forum. we are all amateur doctors treating
ourselves. this is a great site for info on DCA and cancer.
from what i read of your post, you have read much of the
forum. i just want to say that in my amateur opinion,
dont give up on DCA. it may not be working as well as
others but it may be working.
wish you the best.
jamesa

JAW's


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lsk5689
Member since Mar-31-08
8 posts
Apr-06-09, 07:39 PM (PST)
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9. "RE: Clear Cell Sarcoma + DCA with side effects"
In response to message #6
 
   elizabeth,

In an earlier reply to Marty you spoke of flu-like symptoms.

I started taking 800 mg DCA for 3 straight days. --- nausea, chills, sweating, fainting. ended up in ER.

started up again 4 days later - same result but managed to stay out of hospital.

now I am on 2 days - off 2 days. I feel miserable - light-headed, loss of appetite, weak, sleepy, tired. Too early to tell if new schedule is sufficient to do the job. Afraid to take DCA 3 days in a row.

Perhaps you can describe your schedule and symptoms more fully. Do symptoms get worse on the 3rd, 4th, 5th ... day on the DCA? Or do they peak and just stay level?
Do you take with food? How much caffeine? B1?
Taking anything else?

Thanks and regards. Good luck.
Larry

larry


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rose254u
Member since Feb-19-09
12 posts
Sep-06-09, 03:27 PM (PST)
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10. "RE: Clear Cell Sarcoma + DCA with side effects"
In response to message #5
 
   please update us on ur health so far using dca?


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rose254u
Member since Feb-19-09
12 posts
Mar-18-09, 02:02 PM (PST)
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8. "RE: Clear Cell Sarcoma + DCA with side effects"
In response to message #0
 
   Dear haidagwaii

have you heard a breaking news?

New Cancer Treatment Stops Aggressive Sarcomas
February 25, 2009
http://www.zampbioworld.org/bionews/index.php/2009/02/25/17807
http://www.bio-medicine.org/medicine-technology-1/New-Cancer-Treatment-Stops-Aggressive-Sarcomas-3901-1/
http://health.einnews.com/article.php?nid=605478

regimen of low-dose interferon with lovastatin, sarcoma tumors have begun regressing.


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waterlily
Member since Sep-27-10
1 posts
Sep-27-10, 01:52 AM (PST)
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11. "RE: Clear Cell Sarcoma + DCA with side effects"
In response to message #8
 
   On a search on Marty's name, came across this post. Marty died last year (May 2009) and it is truly a tragedy.


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