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Omega3
Member since Feb-15-07
15 posts
Feb-16-07, 06:35 AM (PST)
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"Intial DCA use"
 
   This will be my first post an I hope to give a update to this post after taking Sodium DCA for several week. I am 46 year old with metastatic Protsate Ca. I have aquired a supply of DCA through a pharmaceutical supply company here in the USA ,as of now the supply of DCA is back order so it may be more difficult to get a supply for at least a month. I attend to take 12.5mg per kg twice a day. I believe this will limit the degree of potential side effects from the DCA, I will be also be using thiamine 400mg or Benfotiamine 600mg day which according to studies reduce the PN down significantly. For individual dealing with stage 4 cancer I can't see the down side of trying this relatively safe drug when compared to conventional chemo. You just must understand that many promising treatments throughout the years melted tumors in rats to then show minimal efficacy in humans. If this treatment translate over to humans I believe a new era in the treatment of Cancer shall begin and the signficance of the Warburg effect will be validated. God bless to all whom try this for if there is no hope then what do we have.

Allyn


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George
unregistered user
Feb-16-07, 01:40 PM (PST)
 
1. "RE: Intial DCA use"
In response to message #0
 
   Allyn-

I just want to pray for your healing and to applaud your generous spirit for letting us learn from your experience.

George


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Melissa Cameron
unregistered user
Feb-16-07, 04:47 PM (PST)
 
2. "RE: Intial DCA use"
In response to message #0
 
   My heart and prayers are with you. Good Luck on your journey. I truely hope this is a great outcome for you. I can only imagine what is in your thoughts, But HEY I AM CHEERING FOR YOU BABE!!! I will think of you every day and continue to check on this forum for your updates. You will be in my thoughts and prayers and I already have the names of several people(first names of course)from this website and I am starting a prayer chain, so with meds and prayers I and all my prayer warriors will help you and another buddy I have met here name Loni who is battling Breast Cancer, win this war. You guys are gonna make it. Go Allyn!! Go!! Prayer Team up and Cheering!!! Godspeed and God Bless you.
Melissa Cameron


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Omega3
unregistered user
Feb-17-07, 04:48 AM (PST)
 
4. "RE: Intial DCA use"
In response to message #3
 
   Follow up post-
I would first like to tell everyone that you will be very hard pressed to find a Doctor whom knows anything about DCA and how to get hold of any. DCA is not listed in the PDR (physician desk reference) and its use has been very limited since the patient population of individuals whom have mitochondrial disorders leading to congenital Lactic Acidosis for whom this drug was initially prescribed for is extremely small. The process has been easier for me to obtain DCA since I am in the medical field.
I have received my order of Sodium DCA from a US medical research supply company this week and the order had been reduced in size since the demand for DCA exploded after the release of the University of Alberta paper. You have both cancer researchers and cancer patients seeking DCA. I have obtained the DCA for personal use since I have Prostate Ca. I can truely understand the frustration of not being able to get hold of this possible new cancer treatment.

The dose that I will be using is 12.5mg per Kilogram divided into two doses.This comes from previous human use studies. Which for my weight comes out to 1000mg twice a day. I had the Sodium Dichloroacetate powder made into 500mg capsule. I will be taking them on a full stomach and with approximately 16 oz. of water. In order to lower the risk of side effects it has been suggested in some research studies that “ DCA can cause a reversible peripheral neuropathy that may be related to thiamine deficiency and may be ameliorated or prevented with thiamine supplementation. “ (1) The use of thiamine 100mg or more should be used concomittantly with the DCA. I personal am thinking of using Benofotiamine a fat-soluble and more bioavailable and physiologically active form of thiamine. (2)Benofotiamine has been shown to be an effective treatment for patients with diabetic perpherial neuropathy. Though we really don't know what efffect the use of thiamine will have on the Cancer Cell assuming that DCA has any effect on cancer in humans.

After reviewing the research I think that Dr. Michelakis played down adverse effects of DCA. Know doubt DCA has way less adverse effects then conventional cyto-toxic chemotherapy but this drug is not completely benign. Apparently doses greater the 25mg per Kilogram increase the risk of these side effects. One other sugestion would be making sure you have a recent liver function test which you can then follow up after being on the DCA for a week or two. Since DCA can rise liver enzymes.

Remember all this information is just extrapolation of data and no one has the answer till studies are done.

If DCA research translates over to humans this will be a great step forward in cancer treatment.

For those whom can’t wait for human research studies to become available. I wish you the best and never give up hope

And thanks for the kind words.

Blessings,

Omega3


(1) Metabolism. 1989 Nov;38(11):1124-44
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed&cmd=Retrieve&dopt=AbstractPlus&list_uids=2554095&query_hl=1&itool=pubmed_docsum

(2) Altern Med Rev. 2006 Sept;11(3):238-242
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed&cmd=Retrieve&dopt=AbstractPlus&list_uids=17217325&query_hl=7&itool=pubmed_docsum


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MarkW
Member since Feb-12-07
33 posts
Feb-17-07, 01:12 PM (PST)
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5. "RE: Intial DCA use"
In response to message #4
 
   >Follow up post-

>I have received my order of Sodium DCA from a US medical
>research supply company this week and the order had been
>reduced in size since the demand for DCA exploded after the
>release of the University of Alberta paper. You have both
>cancer researchers and cancer patients seeking DCA. I have
>obtained the DCA for personal use since I have Prostate Ca.
>I can truely understand the frustration of not being able to
>get hold of this possible new cancer treatment.
>
>The dose that I will be using is 12.5mg per Kilogram divided
>into two doses.This comes from previous human use studies.
>Which for my weight comes out to 1000mg twice a day. I had
>the Sodium Dichloroacetate powder made into 500mg capsule. I
>will be taking them on a full stomach and with approximately
>16 oz. of water. In order to lower the risk of side effects
>it has been suggested in some research studies that “ DCA
>can cause a reversible peripheral neuropathy that may be
>related to thiamine deficiency and may be ameliorated or
>prevented with thiamine supplementation. “ (1) The use of
>thiamine 100mg or more should be used concomittantly with
>the DCA. I personal am thinking of using Benofotiamine a
>fat-soluble and more bioavailable and physiologically active
>form of thiamine. (2)Benofotiamine has been shown to be an
>effective treatment for patients with diabetic perpherial
>neuropathy. Though we really don't know what efffect the use
>of thiamine will have on the Cancer Cell assuming that DCA
>has any effect on cancer in humans.

Sounds like you have done a lot of research, as many of us have, on the use of Sodium DCA.

So, here starts "The Open Source DCA Trials"

I wish you success on fighting this cancer. We all are crossing our fingers with hope.


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cjnbeato
Member since Feb-17-07
3 posts
Feb-17-07, 02:35 PM (PST)
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6. "RE: Intial DCA use"
In response to message #0
 
   Where can I get DCA in south east of the USA?


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Diana
unregistered user
Feb-17-07, 09:07 PM (PST)
 
7. "RE: Intial DCA use"
In response to message #6
 
   Where can I get DCA in British Columbia, Canada?

g_generis@hotmail.com


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flumango
unregistered user
Feb-17-07, 10:22 PM (PST)
 
9. "Use of DCA in metastasized colon cancer"
In response to message #0
 
   We hope to help people in the same situation by shearing our experience with DCA.

We prepared a 12.5 gr Sodium dichloroacteta/100ml in pure water.
My wive (with metastasized colon cancer) took 4.5 ml (in a glas of water) twice daily (25 mg/kg/day). After 4 days she feels nauseous and she stopped after 6 days due to bad feeling. Now I think the problem was first due to the bad constitution of my wife (45 kg) and second we didn't take care of vitamines and carbonhydrates. Both are very important by the fact that DCA stimulates the pyruvat dehydrogenase complex and by this a lot of vitamin B1 is used. We will try to give glucose as a carbonhydrat source half an our before DCA and daily vitamine B1 (thiamin).

Could measuring of lactat in blood be a good marker to find the best dose for DCA?

We are hopeful to that last chance and hope!


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adminadmin
Member since Feb-7-07
149 posts
Feb-18-07, 04:14 AM (PST)
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10. "RE: Use of DCA in metastasized colon cancer"
In response to message #9
 
LAST EDITED ON Jul-06-07 AT 10:50 PM (PST)
 
Flumango,

Thanks for posting your wife's experience. This information is so valuable to all of us and much appreciated. Please keep us posted and good luck.

Best to you both.

Heather
TheDCASite Admin & Moderator


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Sandra
unregistered user
Feb-18-07, 08:35 AM (PST)
 
11. "RE: Use of DCA in metastasized colon cancer"
In response to message #9
 
   Rather than putting DCA into water, try purchasing some capsules and filling them - some health food stores sell them. That way the lining of the throat is protected, and the nausea shouldn't be as bad.


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Rich
Member since Feb-19-07
5 posts
Feb-19-07, 09:35 PM (PST)
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13. "RE: Use of DCA in metastasized colon cancer"
In response to message #11
 
   You say that health food stores sell DCA.

Is it in power form? ... as sodium dichloroacetate?

Can you name the health food stores that sell it?

It it sold under some trade name?

In short, where and how can I get my hands on it?


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markoos
unregistered user
Feb-19-07, 09:51 PM (PST)
 
14. "RE: Use of DCA in metastasized colon cancer"
In response to message #13
 
   FAO Rich - health stores don't sell DCA (well, at least they don't here in the UK) - I think what was meant was that the DCA should be put into the small capsules that other drugs and remedies come in, and that these empty capsules can be bought in health stores.

Its worth reading everything on this site Rich, as apparently its illegal to sell DCA to people for cancer treatment - but its not illegal to sell it to people who want to treat animals with the types of cancer that people get.

So in other words, if you wanted to buy DCA to treat a very close or much loved animal, then keep checking this site as there may be a link in the near future which will help people find what they are looking for.

Good Luck (I'm in the same position, I really need to access this drug too).


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Rich
Member since Feb-19-07
5 posts
Feb-19-07, 10:28 PM (PST)
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16. "RE: Use of DCA in metastasized colon cancer"
In response to message #14
 
   Yes. I understood my confusion about your posting ... almost immediately AFTER I hit the Post Message button.

Thanks for the response.


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Diana
unregistered user
Feb-25-07, 04:36 AM (PST)
 
30. "RE: Use of DCA in metastasized colon cancer"
In response to message #14
 
   Hi Rich,

I apologize for asking about animals. My dog just suddenly got sick with Histiocytic Sarcoma. I came to this site to find DCA for my mother for her Advanced NSC lung cancer. She is anxiously waiting and so am I. I am so grateful to you Heahter for your emails, your forum and support. Its amazing.

So I am asking about DCA for dogs. Can it be prescribed for cancer treatment for dogs? Is it the vet who prescribes it? Or a Vet onocologist? What is the chance of a vet prescribing and giving dca?

After today's meeting with my dog's vet, he isn't recommending anything, preferring comfort. I wasn't ready to give up for my mom's sake, and now I am being asked to do just that with my dog without even a little fight. This world is crazy. Patents, Money, illness - its like one forgets what its like to live a day without thinking and researching cancer.

Diana
g_generis@hotmail.com

1>FAO Rich - health stores don't sell DCA (well, at least they
>don't here in the UK) - I think what was meant was that the
>DCA should be put into the small capsules that other drugs
>and remedies come in, and that these empty capsules can be
>bought in health stores.
>
>Its worth reading everything on this site Rich, as
>apparently its illegal to sell DCA to people for cancer
>treatment - but its not illegal to sell it to people who
>want to treat animals with the types of cancer that people
>get.
>
>So in other words, if you wanted to buy DCA to treat a very
>close or much loved animal, then keep checking this site as
>there may be a link in the near future which will help
>people find what they are looking for.
>
>Good Luck (I'm in the same position, I really need to access
>this drug too).


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Diana
unregistered user
Feb-19-07, 10:18 PM (PST)
 
15. "RE: Use of DCA in metastasized colon cancer"
In response to message #11
 
   Does DCA cause naseau?


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flumango
unregistered user
Feb-20-07, 10:23 PM (PST)
 
21. "RE: Use of DCA in metastasized colon cancer"
In response to message #9
 
   Day 14 after treatment start:

as you know my wife took DCA for 6 Days and then stopped taking it.
It will be very difficult that she can take it anymore due to less energy, mental and physical. We don't think that here constitution is due to the use of DCA, rather it is the advanced cancer blocking her lymph nodes. At my wifes situation it's very difficult to restart taking DCA.

She is still hoping although the physician are not!
Nevertheless we will post our experience as long we can.


I hope I can help with some details:

The source of sodium DCA:
http://www.sigmaaldrich.com/catalog/search/ProductDetail/ALDRICH/347795

Sigma provides a sodium salt. After disolving in water a lightly acid solution of pH 5 results.

The dose we used (25 mg/kg/day) was described in lactacidose treatment in children up to 19 years. (http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_uids=16651305)

More about clinical toxicology of DCA you will find here:
http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=9703483


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mrsnasir
Member since Feb-13-07
4 posts
Feb-20-07, 11:21 PM (PST)
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22. "RE: Use of DCA in metastasized colon cancer"
In response to message #21
 
   mrsnasir I am so sorry about your wife..But i dont understand how u got the dca..I looked at the applications and it ask your field and stuff what do you do about that


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JudyDowell
Member since Apr-6-08
2 posts
Apr-10-08, 03:56 PM (PST)
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71. "RE: Use of DCA in metastasized colon cancer"
In response to message #9
 
   With colon cancer, it is possible to kill many of any internal cancer cells by injesting Curcumin (a substance found in Turmeric) however the molecular size of the curcumin is too great to "seep through" to other parts of the body, but it helps with stomache, colon and intestinal cancer cells, and is totally harmless. It comes in capsule form, Extremely cheep from any GNC, Puritan's Pride, etc. This would be an added benefit for your wife. I know of one case, female, who took this and on her following CT scan, her colon cancer was gone (or so small it was undetectable). I hope this helps you.
Judy

Judy


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Rich
Member since Feb-19-07
5 posts
Feb-19-07, 09:31 PM (PST)
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12. "RE: Intial DCA use"
In response to message #0
 
   I've been beating my head on a stone wall trying to get sodium dichloroacetate. I've located a source in the USA, but they will not ship it to a pharmacy without an "IND" number ... which I think means Investigational New Drug number.

My oncologist has been trying for weeks to get sodium DCA for me and a number of other patients. Two pharmacies have tried and so far failed to get their hands on the sodium form of DCA.

How did you manage to get DCA?
And, where did you go to get it?
Did you have to resort to an international source?


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Omega3
unregistered user
Feb-20-07, 01:46 AM (PST)
 
17. "RE: Intial DCA use"
In response to message #12
 
   I am very saddened by the difficulty that everyone is having in obtaining DCA. But the use should really be restricted to individuals, which have no other alternatives cancer treatments left. Remember that there is still no confirmed evidence that the results from mice will translate over to humans. Also we don't really know how long treatment should be continued 1 month, 4 months, 6 month or forever. We don't even know what the ideal dose Dr. Michelakis in his filed use patent give a dosage range between 10-100 mg per kilogram of bodyweight. What will be the ideal dose?? How severe will the side effects manifest i.e. peripheral neuropathy, disturbed gait, and elevated liver functions and possible carcinogenicity. What reaction will this drug have on any other medication you are currently on? Many, many questions with no clear answer but a definite reason for hope. This new treatment may prove to be an effective way of treating various cancers and may become part of a new class of anticancer drugs based on the inhibition of tumor metabolism.

That being said I can truly empathize with you since I am in the same position of many of you reading this message for yourself or your loved ones whom you might be looking for hope. I have been recently diagnosis with metastatic prostate cancer at only 46 years of age. And have been looking for alternative treatments for the last 4 months.

I have been able to obtain DCA since I am a physician and have worked with off label medication for many years in my medical practice. I have made a personal decision that once I have had some experience using DCA on myself and find there to be no major issues .I will be glad to help other individuals whom are stage 4 cancer patients only whom visit with more for a initial consultation. I will give more details as I see how this progresses

Blessings,

Omega3


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Willis
Member since Feb-16-07
15 posts
Feb-20-07, 07:35 PM (PST)
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19. "RE: Intial DCA use"
In response to message #17
 
   Omega3, can you please register for the site so that I can send you a private message? I have been reading a lot on this stuff and think I have some useful information but I want to talk to a physician who has looked into DCA before I post it. I don't want to do more harm than good by misleading or misstating anything. If we are going to convince people as fast as possible we need to make sure we have separated the wheat from the chaff of information.


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Willis
Member since Feb-16-07
15 posts
Feb-20-07, 08:08 PM (PST)
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20. "RE: Intial DCA use"
In response to message #19
 
   Omega3, please disregard the registration since the personal messages may not be working. Please email me at willistblake@yahoo.com.


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Diana
unregistered user
Feb-25-07, 04:38 AM (PST)
 
31. "RE: Intial DCA use (How do I register for site)"
In response to message #19
 
   You know, initially I registered but I don't know how I lost or forgot how to get there. Any help Heather? (smile).

Diana



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Sandra
unregistered user
Feb-21-07, 09:08 AM (PST)
 
23. "RE: Intial DCA use"
In response to message #17
 
   I'm sorry to hear of your condition, Omega 3. I have stage 3 breast cancer and have been researching alternative treatments for a year, and I'm doing quite well. My father has prostate cancer and visited this clinic with very good results. Dr. Wheeler is a urologist who turned to natural treatments after seeing that cancer reoccured when treated conventionally.
http://www.ronaldwheeler.com/
http://peenuts.com/
http://www.theprostatecenter.com/

I wish you the best. Thank you for your posts.


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"Z"-RN in IN
unregistered user
Feb-27-07, 09:18 AM (PST)
 
40. "RE: Intial DCA use"
In response to message #23
 
   Sandra,
Are you on hi dose melatonin? 20,30,40mg q hs?
If not read up on that...talk to your doctor about it and/or use your best judgement.

Good luck to you!

"Z"


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Sandra
Member since Feb-27-07
481 posts
Feb-27-07, 06:02 PM (PST)
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42. "RE: Intial DCA use"
In response to message #40
 
You bet! 39mg. My background is engineering, so I enjoy researching and thanks for your excellent link www.grouppekurosawa.com/blog/ I also researched my life expectancy with conventional medicine - about a 37% for 7 years. I decided to pursue alternative after realizing that most people who are treated conventionally end up getting cancer again, usually one that is more resistant to chemo, plus their own immune system is ravaged. Glad to hear from people who, like me, believe there is science behind alternative medicine!

Look forward to reading your posts, "Z".

Sandra


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Sandra
unregistered user
Feb-21-07, 09:17 AM (PST)
 
24. "RE: Intial DCA use"
In response to message #17
 
   Something else you may be interested is a recent study on Omega 6 Omega 3 ratio. http://www.brianpeskin.com/efa-analysis.pdf

Another avenue I've been looking at is telomerase inhibitors http://www.geocities.com/prime3end/
http://www4.utsouthwestern.edu/cellbio/shay-wright/

And this looked interesting
http://www.stemtechhealth.com/FAQ.asp


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Diana
unregistered user
Feb-21-07, 06:58 PM (PST)
 
26. "RE: Intial DCA use DHEA HGH"
In response to message #17
 
   Dear sir,

I have been reading about bioidentical hormones, and how they help the immune system. Do you think DHEA and HGH are some hormones that can boost the immune system. Is there a difference in the homeopathic vs prescription type DHEA or HGH?

Thank you
Diana

>I am very saddened by the difficulty that everyone is having
>in obtaining DCA. But the use should really be restricted to
>individuals, which have no other alternatives cancer
>treatments left. Remember that there is still no confirmed
>evidence that the results from mice will translate over to
>humans. Also we don't really know how long treatment should
>be continued 1 month, 4 months, 6 month or forever. We don't
>even know what the ideal dose Dr. Michelakis in his filed
>use patent give a dosage range between 10-100 mg per
>kilogram of bodyweight. What will be the ideal dose?? How
>severe will the side effects manifest i.e. peripheral
>neuropathy, disturbed gait, and elevated liver functions and
>possible carcinogenicity. What reaction will this drug have
>on any other medication you are currently on? Many, many
>questions with no clear answer but a definite reason for
>hope. This new treatment may prove to be an effective way
>of treating various cancers and may become part of a new
>class of anticancer drugs based on the inhibition of tumor
>metabolism.
>
>That being said I can truly empathize with you since I am in
>the same position of many of you reading this message for
>yourself or your loved ones whom you might be looking for
>hope. I have been recently diagnosis with metastatic
>prostate cancer at only 46 years of age. And have been
>looking for alternative treatments for the last 4 months.
>
>I have been able to obtain DCA since I am a physician and
>have worked with off label medication for many years in my
>medical practice. I have made a personal decision that once
>I have had some experience using DCA on myself and find
>there to be no major issues .I will be glad to help other
>individuals whom are stage 4 cancer patients only whom visit
>with more for a initial consultation. I will give more
>details as I see how this progresses
>
>Blessings,
>
>Omega3


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Rose
unregistered user
Feb-21-07, 12:51 PM (PST)
 
25. "RE: Intial DCA use"
In response to message #0
 
   >This will be my first post an I hope to give a update to
>this post after taking Sodium DCA for several week. I am 46
>year old with metastatic Protsate Ca. I have aquired a
>supply of DCA through a pharmaceutical supply company here
>in the USA ,as of now the supply of DCA is back order so it
>may be more difficult to get a supply for at least a month.
>I attend to take 12.5mg per kg twice a day. I believe this
>will limit the degree of potential side effects from the
>DCA, I will be also be using thiamine 400mg or Benfotiamine
>600mg day which according to studies reduce the PN down
>significantly. For individual dealing with stage 4 cancer I
>can't see the down side of trying this relatively safe drug
>when compared to conventional chemo. You just must
>understand that many promising treatments throughout the
>years melted tumors in rats to then show minimal efficacy in
>humans. If this treatment translate over to humans I believe
>a new era in the treatment of Cancer shall begin and the
>signficance of the Warburg effect will be validated. God
>bless to all whom try this for if there is no hope then what
>do we have.
>
>Allyn


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Omega3
Member since Feb-15-07
15 posts
Feb-22-07, 03:53 PM (PST)
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27. "RE: Intial DCA use"
In response to message #25
 
   Diagnosis: Metatstaic Prostate Caner


Medication:
Lupron injections every three months
Sodium DCA 98% powder Ph 5.0 Dosage 25mg per kilogram bodyweight daily
powder placed into size "0" capsule at 500mg each=2 capsules twice a day

Supplementation:
Benfothiamine (lipid soluble thiamine) 150mg twice a day

Week 1
Have been using for one week NaDCA have noticed no side effects will get routine blood work done this week to check liver and kidney function, Will further check my PSA after being on NaDCA for two months since the lupron therapy has hit a plateau and current PSA is still very elevated if PSA comes down significantly effect would be atributed to DCA

Medical Disclaimer:
This information is for educational purposes only. It should not be used in place of a visit, call, consultation or the advice of your physician or other qualified health care provider. Always consult with your physician or other qualified health care provider before embarking on a new medical treatment, diet or fitness program.


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sanaa
unregistered user
Feb-23-07, 06:56 PM (PST)
 
29. "RE: Intial DCA use"
In response to message #27
 
   I hope that you are well 'omega3' and your treatment with DCA is going in the direction we are all hoping for. I would like to ask about the effect of DCA on the liver. My father has liver cancer, went through one session of chemoemobalization two months ago. He also has cirrhosis and active Hep.B. He is diagnosed with mexoyd chondra sarcoma in the lungs "like peppers on eggs" as his doctor put it. The sarcoma is also found on top of his kidnies and gallbladder. now he is urinating blood and he has to go to the hospital this coming monday for the doctor to look in his bladder and see what is causing the bleeding. Do you think that if my father used DCA it would affect his liver negatively as I heard, provided that the tumer in the liver decreased in size by two thirds. I have been giving him alternative treatments for some time now.
God bless you and everyone who contributs to this forum.


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Anechoic
unregistered user
Feb-25-07, 03:34 PM (PST)
 
32. "RE: Intial DCA use"
In response to message #27
 
   Good day to you all,

my brother Vincent (46 years old) has been diagnosed on the 14th of december 2006 with pancreatic cancer.

It was deemed inoperable and already at stage 4.

The initial scan showed that the cancer had spread to his liver,
and that most of his liver is covered with tumours. His chemotherapy
treatment started on the 17 of december and ended on February 7th after 6 treatments of gemcitabine (gemzar) - that he received every week for 30 minutes. After the initial chemotherapy treatment, Vincent had another scan that revealed that his tumours had somewhat progressed. The oncologists did not specify the extent of this progression, but stated that in their opinion, chemotherapy
treatments would not be useful and should be stopped!!! Oncologists in his province (Québec, Canada) are no longer in a position to help us since they have no additional treatments to offer.

This forum has provided some hope and some answers. Please keep up the good work.

Vincent wants to try DCA so we are in the process of trying to get some product and a physician to help monitor the treatment. Info on different current available sources would be very useful.

Any undated information as of the progress of your treatment and or suggestions if your initial dosage and vitamin suplement has not been successful.

Same thing about any clinical trials and or protocol (Indiana?) would also be very helpful.

Once Vincent will have started to use DCA we will report the process in this forum.

Thank you in advance for your much anticipated response.

God bless all.

anechoic2001@yahoo.ca


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Mike B.
unregistered user
Feb-27-07, 06:08 AM (PST)
 
37. "RE: Intial DCA use"
In response to message #32
 
   My brother (just turned 50) also has pancreatic cancer with mets to the liver - his was diagnosed in August. He may be involved with the Indiana protocol, if and when it begins. My advice to you would be 1) check with another oncologist who might be willing to try a chemo like Gemzar which appeared to be helping my brother while he was taking it (He took it with Tarceva and did eventually have a reaction, more likely to the Tarceva). Although it may not cure him, it may buy quality time. This time might also provide a chance for an opportunity for DCA or something else. Also, if you can wait a bit, the kinks in the DCA might get worked out (I'm not sure my brother has much time to wait). 2) Check into clinical studies. If you call the pancan.org people, they will help with this. 3) If you still want to pursue the DCA, I noted this reply on thedcasite.com under

"RE: Dr. Tim's reaction to DCA at ABC news website"
In response to message #22

Hi Loni: If you are still looking, I had two B.C. pharmacies say they could supply. waltgooder@nucleus.com

I cannot verify the availability. Wishing you all the best in our difficult situations.


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"Z" - RN in IN
unregistered user
Feb-27-07, 08:33 AM (PST)
 
39. "RE: Intial DCA use"
In response to message #37
 
   Hello Mike "B"
(It must be you. Yes, It's me, "Z" - your brother's RN )
My fellow paisan...whom i have heard of... but never yet met... its odd and interesting to meet up with you HERE in cyberspace. You're brother told me you were lurking about here on "The DCA SITE" - good for you!

See my post about Clinical Trials and keep up your concern, care and love for OUR #1 Paisan.

Molto molto piacere...

Ciao,
"Z"

PS sorry to everyone else about the personal post...


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Mike B.
unregistered user
Feb-27-07, 06:13 AM (PST)
 
38. "RE: Intial DCA use"
In response to message #32
 
   OOPS, in moving from place to place noticed that Vincent already received Gemzar. But I'd still try another oncologist for another possible chemo. You can get the information and then make a decision with as many choices as possible.


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Anechoic
unregistered user
Feb-27-07, 04:37 PM (PST)
 
41. "RE: Intial DCA use"
In response to message #38
 
   Hello,

thank you for responding.

Vincent is seeing his familly doctor today (tuesday) and will try to secure a prescription. I will be in Montreal tomorow to assist him in a meeting with a second opinion oncologist.

Vincent was not given Terceva with his 6 Genzar treatments, and the subsequent scan (after the treatment) showed that the tumors had not stabilized or shrunk.

No clear information was given though by his oncologist on the scope of the changes. I know he was in shock about the results and the fact that his doctors seemed to have given up.

He is now on another treatment of chemo which has a regimen of 5 Fluoro-uracile and folic acid. This since the 21rst of february every week for a duration of 30 minutes. Another scan might be done today.

He also has been fitted with a drain to get the fluids out of the abominal cavity.

We have his file with the results of the last two scans (the initial one and the one after the first chemo) but I have not seen the last one yet.

As you can imagine his spririt is beeing tested and my hope is that DCA will have a positive impact on his illness when we get it. Time however is not on his side.

Bless all who responded and are helping.

Anechoic



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Loni Labrum
Member since Feb-17-07
6 posts
Feb-26-07, 01:08 AM (PST)
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33. "RE: Intial DCA use"
In response to message #27
 
   Thank you so much for posting your progress and other helpful details. I am still holding a (month old) prescription that my pharmacist is trying to fill for me. He is really going the extra mile, but to no avail to date. I keep thinking that a manufacturer somewhere will have to begin production of DCA in great quatities because people are clamoring for it. Hopefully it will be available sometime soon.

All the best,
Loni


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john c.
unregistered user
Feb-26-07, 02:57 PM (PST)
 
35. "RE: Intial DCA use"
In response to message #33
 
   Lori:

I have posted the name and phone number of this pharmacy before to others and the pharmacists are saying they just need a 2 or 3 day turnaround (their supplier is in Texas). Then, if you prepay, they could airmail it to you in capsule form.
Here it is again:
J.E. Pierce Apothecary
Brookline, MA

Phone Number:
1-617-566-4080 (ask for Steve, the pharmacist).

You need to make payment arrangements and probably can fax your prescription to them.
Good luck. This might also be a good place to get your Thiamine supplement.



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lynie
unregistered user
Feb-27-07, 05:56 AM (PST)
 
36. "RE: Intial DCA use"
In response to message #27
 
   Omega3: I am looking forward to future posts regarding your progress. I pray the DCA works for you.


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michael Polak
unregistered user
Feb-23-07, 09:24 AM (PST)
 
28. "RE: Intial DCA use"
In response to message #0
 
   Dear Forum members,

Could you be so kind to help me with information how to obtain DCA for personal treatment.

thanking you in advance

michael

palmstree@googlemail.com


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joseph
unregistered user
Mar-05-07, 01:40 PM (PST)
 
45. "RE: Intial DCA use"
In response to message #0
 
   Hello and God Bless you - its so hard to watch my wife - all 4ft "9 of her struggle with the side effects of Tarceva and /or Lung Cancer. They send you home with a prayer and a maybe. What your doing is so Valiant and Brave and caring that my wife and I salute you. You see there are unsung heros everywhere and your one of them.

God Speed you on to success!

Joseph and Lien


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Anon
unregistered user
Mar-06-07, 04:09 AM (PST)
 
46. "RE: Intial DCA use"
In response to message #0
 
   My mother-in-law was sent home to die. Can you please post any updates you have about progress, I know it is early, but any info would be great.


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Lien
unregistered user
Mar-09-07, 00:02 AM (PST)
 
47. "RE: sent home to die ? no no - to LIVE! she can do it!"
In response to message #46
 
   Stable for 3 months on Omega-3's and budwig diet - then I stopped it all to join the tarceva clinical study. I was the picture of health with all the her1 and growth factor matches. It did not work and so my stable cancer became unstable and spread again.

I will go back on my budwig diet again starting today until something better comes along that I can get my hands on. Please do not be to dismayed and please know we are all with you and your Mother. God Bless D C A research and Gods Speed to those brave souls here helping us all.

L


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AUSRON
unregistered user
Mar-10-07, 04:47 AM (PST)
 
48. "RE: Intial DCA use"
In response to message #0
 
   My wife is Stage 4 metastatic Breast Cancer. Nearly 10 months ago she was told that she had 6 to 9 months. Up till last month she was on Taxotere but started having major complications. She just started on Xoloda. Her condition is detiorating, her doctor told us yesterday that she might have 2 months. When I asked him about DCA and said that it was being tested in Canada, he said that he had not heard of it. His nurse practioner/physicians assistance had not heard of it. They said that if I got them some info that they would look into it. I did, but I think the wheels are moving slowley if at all. The doctor went out of the country with his family today. He will be gone for a week.
We just heard that Michael Dell (Dell Computers) may fund DCA Cancer testing on humans. GOOD. GREAT!
My wife does not have time to wait. I need to find a prescriber and a source for DCA for her now. I am in Austin, Texas. I am desperate. Can someone help? Next week may be too late. Cell phone 512-657-6938 or gyrons@yahoo.com
Thank you, Ron


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Sandra
Member since Feb-27-07
481 posts
Mar-10-07, 05:42 AM (PST)
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49. "RE: Intial DCA use"
In response to message #48
 
Ron,
I emailed you,
Sandra


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Sandra
Member since Feb-27-07
481 posts
Mar-10-07, 06:38 AM (PST)
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50. "RE: Intial DCA use"
In response to message #48
 
Ron,
You may wish to also consider Burzynski's Clinic in Houston. They have had amazing successes.

http://www.burzynskiclinic.com/

I wish you and your wife the best,
Sandra


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sade00
Member since Mar-12-07
4 posts
Mar-13-07, 10:41 PM (PST)
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51. "RE: Intial DCA use"
In response to message #0
 
   Thank you so so much for sharing those so valuable information to us and much appreciated. I will pray for your jouney with my heart. God bless you.

I want to ask you guys one question about DCA. Where can i buy DCA in Nottingham(UK)?

My brother had liver transplant surgery in last July in hospital. Unfortunately, in last October when is just 1 months after his surgery, Unfortunately, in last October when is just 1 months after his surgery, there were some new active cancer cells found in his blood test. A cancer tumour was found in his adrenal gland after several months, the tumour size is 43mm+37mm+45mm, CT result is 65HU, and also there is some nodus in his lung. My whole family want to save his life as possible as we can.

I will pop up this chat forum everyday, thank you you guys great sharing.Thank you.


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Rafal
unregistered user
Mar-16-07, 10:51 AM (PST)
 
52. "RE: Intial DCA use"
In response to message #51
 
   Is it possible do buy DCA in the UK ????

rzrobecki@gmail.com


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Michael
unregistered user
Mar-16-07, 12:02 PM (PST)
 
53. "RE: Intial DCA use"
In response to message #52
 
   >Is it possible do buy DCA in the UK ????
>
>rzrobecki@gmail.com

You can get it from Pet DCA in the US. I paid £8.01 in customs
charges on 50 grams when it arrived. Takes about 2 weeks.

Good luck.

Michael


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Jerry
unregistered user
Mar-19-07, 10:43 PM (PST)
 
54. "RE: Intial DCA use"
In response to message #0
 
   I have a 43 year old daughter who has cervical cancer that has metaxasized into the lung. I started her on DCA in conjunction to her chemotherapy. She is now running a low red blood count, and I am worried that it is due to the DCA. Before I gave DCA to her, I conferred with her oncologist, and he said considering the relative small number of significant side effects, he say no reason why it was not worth a try. Have you had any low red blood counts?

Concerned Father


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squareb
Member since Feb-26-07
50 posts
Mar-19-07, 11:32 PM (PST)
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55. "RE: Intial DCA use"
In response to message #54
 
   My blood counts have been stable on three weeks of DCA at 25 mg/kg twice daily.


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***elliott***
unregistered user
Mar-21-07, 12:47 PM (PST)
 
56. "RE: Intial DCA use"
In response to message #55
 
   Anyone in the UK that knows where to purchase DCA and thiamine from please get in touch.. especially those in the UK using DCA would like to hear your story.

Thanks.


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***elliott***
unregistered user
Mar-21-07, 01:18 PM (PST)
 
57. "RE: Intial DCA use"
In response to message #56
 
   Just so you are aware I have created a UK room 'UK - DCA - UK' where people in the UK can share their stories. I hope to start a discussion regarding purchasing DCA in the UK and stories of people using the drug in the UK. The chat details our story so far...

Hope this brings support for people based over here. Seems harder to get information about the drug in UK than america and canada where it has been widely reported on.

Many Thanks

Elliott


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petesarto
unregistered user
Mar-21-07, 06:22 PM (PST)
 
58. "RE: Intial DCA use"
In response to message #57
 
   hi
I have prostate cancer. I have purchased DCA ( vet DCA) and will begin using it in the next day of two at the dosage of 15mg per kg. body weight. The only other medication i am on is casodex 150mg daily.
I intend to keep a journal of my DCA supplementation on a web site i have created.
Good luck everyone.
This could be the Best chance yet for us all.
peter
I live in the UK by the way.
www.sarto-health.co.uk


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