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DCA Discussion Forum
mdeadly
Member since Jun-28-07
4 posts |
Jun-28-07, 08:27 AM (PST) |
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"DCA and Ocular Melanoma"
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My wife has ocular melanoma. We had the tumor carefully measured using an echogram. She took DCA for 4 weeks. We had the tumor carefully measured again using an echogram. This experiment cost me about $700. The tumor was exactly the same size on the second measurement. Exactly. Her eye was enucleated two days ago. |
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oracle
Member since Mar-17-07
57 posts |
Jun-29-07, 04:32 PM (PST) |
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1. "RE: DCA and Ocular Melanoma"
In response to message #0
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Hang in there and kick the dosage up, check PH - read johns postings he has some good advice at times. THis site used to be pretty cool but has started to develop know it alls who base opinions on articles but you can still get some good data from the site if you ignore the admins and just read peoples testimonies like yours who actually have real life evidence about their conditions. I was thinking you should read the one posting salve applications of DCA. Maybe you could consider a mild saline solution - it really worked on skin and nose tumors. God Bless Oracle |
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asdfsadf1123
Member since Jun-29-07
2 posts |
Jun-29-07, 11:02 PM (PST) |
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4. "RE: DCA and Ocular Melanoma"
In response to message #1
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Hi Oracle, I have to agree with you - although I would go further to say that this forum is filled with too much anecdotal "evidence" to makes heads or tails of whether DCA is effective or not. BuyDCA.com needs to develop a more effective way of tracking the empirical feedback from it's customers (i.e. blood counts, scan evidence, etc.). MDeadly, Although not positive I must thank you for your dedication to getting real data - your post is one of the minority concrete examples worth referring to on this site. I'm sorry DCA didn't work out for you. assdfasdf1123 |
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mdeadly
Member since Jun-28-07
4 posts |
Jun-30-07, 08:25 AM (PST) |
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7. "RE: DCA and Ocular Melanoma"
In response to message #0
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It has been commended to us by some that we should have upped the dosage instead of giving up on the DCA, and pursuing the enucleation. Of course, it would be difficult for me to admit that we acted hastily, having only used the DCA for four weeks. However, NOT enucleating seemed to pose its own risks, especially because the vision in the eye was already lost due to, at least, a completely detached retina. There was imminent danger of he tumor penetrating the sclera and/or the cancer spreading along the optic nerve to the brain. However, high dosages and prolonged treatments are NOT the science behind the theory that DCA can remodel the metabolic and electrical targets in the tumor. The entire claim of Michelakis' work is that DCA can specifically target the mitochondria and electrical K+ channels in the tumor, even though operating centrally, thereby inducing apoptosis and subsequent tumor shrinkage in a very short period of time: as little as one week. We determined not to use a high dosage (we used 10mg/kg, then 15) so that in the event of apoptosis, metabolizing the dead cells would not be problematic. Specifically, Michelakis reported: "DCA's effects in the reversal protocols were immediate, with significant effects even after 1 week of treatment." We wanted to discover if this principle was operating. We did not want to simply add an "hope so" regimen of DCA into our lives. If the pathology reports show any indication whatsoever of cell apoptosis commencing in that tumor - and I will be certain to ask the pathologist this question very specifically and thoroughly - then I will also report that here. I want to be as complete as I can be with our experience, being an unscientific layman, because I read a great deal on these forums, and found most reports to be either off-target, unrealistic, evasive, incomplete, or all four of these characteristics. That's not what any of us need: we need facts. |
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cybernaut
Member since May-27-07
38 posts |
Jun-30-07, 11:06 AM (PST) |
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8. "RE: DCA and Ocular Melanoma"
In response to message #7
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I was sorry to hear of your wife's need for this traumatic treatment. Your decision making process seems to have been very sensible and I wish you both well for the long term outcome. Having adjusted to various treatment related unpleasantnesses I have every hope she will make a good accomodation. May I say I think your remarks about a necessary degree of rigour and formality to establish objective and complete reporting are excellent and absolutely "spot on". I too would like to see all individual DCA trials documented in some accessable fashion and with some structure. A searchable data base listing cases would make life better. Links to all related messages for a case, links to documents such as blood tests, scans, reports are pretty near essential as are details of medication and dosing schedule. Then we can really go data mining for insight and guideance. However, its really hard for people who have never had to do this to understand its usefulness or even how they should go about it. I suspect those of us who use these methods make progress by reading, hypothesising and checking data on our own. Others consult their local society for a clue and build up an opinion based on filtered anecdotal experience - its a very powerful mechanism but its not so helpful when trying to do really novel stuff with small data volumes. People aren't unwilling to learn but what is needed is a lead. The website needs to set out useful data collection and ask people to provide what they can. They certainly sent me an initial questionaire which would give a start but that needs to be extended by asking people to send, if they can, blood test results and reports together with dosing and clinical information. And then it needs to be available to users here. Clearly there are cost implications to this and maybe Jim et al feel this is a cost too far. There may be other issues. But I expect some of us could be harnessed to do a couple of hours a week analysing and linking reports to a DB, if it were necessary, on a pro bono basis. Kind regards - Ian |
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, Jul-03-07, 09:56 PM, (9)
