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Pavette
Member since Mar-5-07
25 posts
Mar-18-07, 03:40 PM (PST)
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"Articles this Past weekend in Edmonton Journal??"
 
   Does anyone have a comment on the articles in Edmonton Journal from this weekend?
There is a reference to this site , wich may cause more people to investigate the going ons.
The article focuses on the presentation of flow charts and stats to be presented?
Including taking quotes from Dr Strum's postings?


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Articles this Past weekend in Edmonton Journal?? [View All], Pavette, 03:40 PM, Mar-18-07, (0)  
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Sandra
Member since Feb-27-07
125 posts
Mar-18-07, 04:33 PM (PST)
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1. "RE: Articles this Past weekend in Edmonton Journal??"
In response to message #0
 
   Hi Pavette,
This is being discussed under the news thread
Thanks,
Sandra


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Patie
unregistered user
Mar-18-07, 06:21 PM (PST)
 
2. "RE: Articles this Past weekend in Edmonton Journal??"
In response to message #0
 
   The DCA article in Friday's paper really caught my interest. My father was diagnosed with lymphoma a year ago and has underwent radiation just before Christmas and at the end of Jan on 3 chemo pills per day. The chemo pills have made him very very sick and he is still battling the side effects of them which angers me to no end. My cousin told us about DCA in January and I didn't invetigate it any further as I doubted highly that his doctor would recommend it - however I have been searching the net for alternatives. We did find some of course. I also looked up 'chlorambucil' (the chemo pill which my father was on) in the net and the side effects are as long as my arm! It was mentioned in the first article in the Edm Journal that 'people could poison themselves by self-medicating with DCA'. Ha. And what about chemo pills - that's not poison?! After all the millions of $$$ that people have donated to cancer over the last 25 years or more - there should be cure by now. Instead the alternatives are: radiation or chemo. 'Cancer' is one helluva BIG BUSINESS. Why would they want to even find a cure. It make me sick.

So, yes .. I am very intersted in the DCA if anyone out there has any suggestions.

Thanks!
Patie (maxxe@telus.net)


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Diana
unregistered user
Mar-18-07, 07:56 PM (PST)
 
3. "RE: How to get DCA"
In response to message #2
 
   Hi

You may find the direct buy VET DCA useful to read. I did, and I have some "Vet" product. Having it on hand and ready is important. But I fully feel that there should be FULL medical supervision, not doing it yourself, or combining it with other treatments, as the no human studies have been done on humans, humans with cancer, humans with cancer and in late stage. There are so many variables. Call every doctor in town to see if you can get a doctor.

Diana


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GLENN
unregistered user
Mar-27-07, 04:25 PM (PST)
 
10. "RE: Articles this Past weekend in Edmonton Journal??"
In response to message #2
 
   MY SISTER HAS A FRIEND AGE 21 WITH LUNG CANCER THAT HAS LITTLE TIME LEFT TO LIVE. PLEASE, CAN ANYONE RECOMMEND A HEALTH CARE SPECIALIST THAT CAN PRESCRIBE DCA PROFFESIONALLY IN THE CORRECT DOSES OR RECOMMEND OTHER CURES. THE DOCTORS STATE THE CANCER IS TERMINAL WITH NOTHING ELSE LEFT TO DO. PLEASE CALL ME OR EMAIL AT GJBACKES@AOL.COM OR 321-663-7846.

THANK YOU VERY MUCH

GLENN 321-663-7846


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Chris
unregistered user
Mar-19-07, 02:51 AM (PST)
 
4. "RE: Articles this Past weekend in Edmonton Journal??"
In response to message #0
 
   In light of the current situation regarding DCA testing as reported in the press, informal testing will either validate or invalidate the efficacy of DCA long before any formal clinical trials ever even begin to produce results. Given that, it is time to see if there is perhaps some way to modify or complement the traditional research and trial methodology.

The DCA compound can be made easily and as result many people with little or nothing to lose can and will acquire DCA. In some instances high quality sodium / potassium DCA will be acquired and used. In addition in many instances the correct dosage and supplementation will be followed. Unfortunately in some instances this will not be the case and low quality DCA, incorrect dosing and supplementation will occur. In either case, many people will acquire DCA and self administer / test it. In some instances dire consequences could result.

On the other hand the traditional model of tightly controlled, scientifically rigorous clinical trials and testing may not be the most appropriate methodology to test DCA. The traditional testing and clinical trials approach would require millions of dollars and years of work. Given that no major pharmaceutical company or philanthropy has shown (to date) any interest at all in DCA, funding becomes an issue. The facts on this speak for themselves. The DCA story has been out for several months now, response to it has come from all over the world, yet a paltry $100,000 has been raised so far for testing. The potential is there for DCA to fall into the category of unproven alternative therapies.

Unlike traditional new drug development, DCA has been around for some time and some of the base information that is usually required for new development of new medications is already known and scientifically documented. Therefore again, some components of the traditional product development models are redundant.

In addition, the development of information exchange over the internet and through forums can greatly decrease the time for traditional research and information compilation and exchange. Expert advice and information is as quick as a mouse click away.

So, in this case we may need to adjust / complement the existing methodology to deal with this new and unique situation. Perhaps the solution is a global open source community trial.

Cancer patients that have decided to self administer DCA need access to high quality, DCA and correct dosing information. They need access to researchers and medical professionals for consultation. They are aware of the risks and are prepared to accept them. Many truly have nothing to lose. In return, their experiences could provide valuable documented evidence for DCA research.

The researchers and medical community need to track patient history and their expereience. They need to ensure and be ensured that the consistency of the quality of DCA, dosage and supplementation is being applied and controlled.

The answer seems apparent – put the two together. Medical practitioners, pharmacists, biologists, researchers and patients are all stepping up to volunteer their expertise, time and effort. This is truly an instance where some sort of “fast tracking” of research and development needs to and can be implemented. An onerous three-year study that nets a result with a report stating to the effect “while the results are encouraging, more studies are required” is not acceptable. Many other industries change the way they develop products as a result of changes in technology and society, why not in this case?

Let's take advantage of this unique situation where we have a compound we are already familiar with, where have the strength of the internet for instant communication to document DCA experiences globally, where we have lay people and professional standing together ready to get to work.

We may or may not be standing on the edge of a potentially world changing development. Everyone involved in this wants to work toward the common goal of destroying the devastating effects of cancer. Hopefully - profit has been ruled out of the equation. Let’s get going and find out if DCA will achieve our common goal.

The first step could be to get together to resolve outstanding issues such as obtaining consistent and high quality sources of the DCA, dosage, protocol, and the information that would be required to track the patient case history, etc. Those that are familiar with conducting formal clinical studies could lead in developing the plans for the global community open source testing. Physicians and pharmacists would step forward to assist patients in medicating. This type of testing could very well occur in parallel to, and complement the traditional approach.

Man’s innate nature is a will to survive. To this end, we must admit the reality that people will use DCA before the end of the clinical trials. Why not at least put these efforts to good use, try and benefit from them and at the same time give the patients the best opportunity to live. When you’ve been told you will be dead in 3 months – you get comfortable with assuming a little risk. Some will assume that risk. Through co-operation we can assist them and in return their experience will benefit all.

Hopefully those that are in a position to make this possible will put egos and agendas aside and work towards making this a reality.


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Sandra
Member since Feb-27-07
125 posts
Mar-19-07, 04:00 AM (PST)
Click to EMail Sandra Click to send private message to Sandra Click to view user profileClick to add this user to your buddy list  
5. "RE: Articles this Past weekend in Edmonton Journal??"
In response to message #4
 
   Hi Chris,
Wouldn't it be fantastic if a newspaper could print an intelligent, well written article like the one you just wrote! Perhaps you would consider writing the Editor of the Edmonton Journal?
Respectfully,
Sandra


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Cm
unregistered user
Mar-19-07, 08:42 PM (PST)
 
6. "RE: Articles this Past weekend in Edmonton Journal??"
In response to message #4
 
   Excellent post, Chris. Please write to any and all newspapers if you can.


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Al
unregistered user
Mar-20-07, 03:48 AM (PST)
 
7. "RE: Articles this Past weekend in Edmonton Journal??"
In response to message #4
 
   Do some research on the net. One study showed that at the end of two years all patients suffered from nuropathies and had stopped their medications (DCA). Dosage and length of time would have to be known but from what I have read, DCA certainly is not an innocuous drug. Polyneuropathies can be extremely painful.


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Sandra
Member since Feb-27-07
125 posts
Mar-20-07, 04:35 AM (PST)
Click to EMail Sandra Click to send private message to Sandra Click to view user profileClick to add this user to your buddy list  
8. "RE: Articles this Past weekend in Edmonton Journal??"
In response to message #7
 
   Check out chemo. Permanent peripheral neuropathy is a DOSE LIMITING side effect of some chemo drugs, and there are many others that are even worse. The PM associated with DCA is temporary.


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GLENN BACKES
unregistered user
Mar-27-07, 04:08 PM (PST)
 
9. "RE: Articles this Past weekend in Edmonton Journal??"
In response to message #4
 
   >In light of the current situation regarding DCA testing as
>reported in the press, informal testing will either validate
>or invalidate the efficacy of DCA long before any formal
>clinical trials ever even begin to produce results. Given
>that, it is time to see if there is perhaps some way to
>modify or complement the traditional research and trial
>methodology.
>
>The DCA compound can be made easily and as result many
>people with little or nothing to lose can and will acquire
>DCA. In some instances high quality sodium / potassium DCA
>will be acquired and used. In addition in many instances the
>correct dosage and supplementation will be followed.
>Unfortunately in some instances this will not be the case
>and low quality DCA, incorrect dosing and supplementation
>will occur. In either case, many people will acquire DCA
>and self administer / test it. In some instances dire
>consequences could result.
>
>On the other hand the traditional model of tightly
>controlled, scientifically rigorous clinical trials and
>testing may not be the most appropriate methodology to test
>DCA. The traditional testing and clinical trials approach
>would require millions of dollars and years of work. Given
>that no major pharmaceutical company or philanthropy has
>shown (to date) any interest at all in DCA, funding becomes
>an issue. The facts on this speak for themselves. The DCA
>story has been out for several months now, response to it
>has come from all over the world, yet a paltry $100,000 has
>been raised so far for testing. The potential is there for
>DCA to fall into the category of unproven alternative
>therapies.
>
>Unlike traditional new drug development, DCA has been around
>for some time and some of the base information that is
>usually required for new development of new medications is
>already known and scientifically documented. Therefore
>again, some components of the traditional product
>development models are redundant.
>
>In addition, the development of information exchange over
>the internet and through forums can greatly decrease the
>time for traditional research and information compilation
>and exchange. Expert advice and information is as quick as a
>mouse click away.
>
>So, in this case we may need to adjust / complement the
>existing methodology to deal with this new and unique
>situation. Perhaps the solution is a global open source
>community trial.
>
>Cancer patients that have decided to self administer DCA
>need access to high quality, DCA and correct dosing
>information. They need access to researchers and medical
>professionals for consultation. They are aware of the risks
>and are prepared to accept them. Many truly have nothing to
>lose. In return, their experiences could provide valuable
>documented evidence for DCA research.
>
>The researchers and medical community need to track patient
>history and their expereience. They need to ensure and be
>ensured that the consistency of the quality of DCA, dosage
>and supplementation is being applied and controlled.
>
>The answer seems apparent – put the two together. Medical
>practitioners, pharmacists, biologists, researchers and
>patients are all stepping up to volunteer their expertise,
>time and effort. This is truly an instance where some sort
>of “fast tracking” of research and development needs to
>and can be implemented. An onerous three-year study that
>nets a result with a report stating to the effect “while the
>results are encouraging, more studies are required” is not
>acceptable. Many other industries change the way they
>develop products as a result of changes in technology and
>society, why not in this case?
>
>Let's take advantage of this unique situation where we have
>a compound we are already familiar with, where have the
>strength of the internet for instant communication to
>document DCA experiences globally, where we have lay people
>and professional standing together ready to get to work.
>
>We may or may not be standing on the edge of a potentially
>world changing development. Everyone involved in this wants
>to work toward the common goal of destroying the devastating
>effects of cancer. Hopefully - profit has been ruled out of
>the equation. Let’s get going and find out if DCA will
>achieve our common goal.
>
>The first step could be to get together to resolve
>outstanding issues such as obtaining consistent and high
>quality sources of the DCA, dosage, protocol, and the
>information that would be required to track the patient case
>history, etc. Those that are familiar with conducting
>formal clinical studies could lead in developing the plans
>for the global community open source testing. Physicians
>and pharmacists would step forward to assist patients in
>medicating. This type of testing could very well occur in
>parallel to, and complement the traditional approach.
>
>Man’s innate nature is a will to survive. To this end, we
>must admit the reality that people will use DCA before the
>end of the clinical trials. Why not at least put these
>efforts to good use, try and benefit from them and at the
>same time give the patients the best opportunity to live.
>When you’ve been told you will be dead in 3 months – you get
>comfortable with assuming a little risk. Some will assume
>that risk. Through co-operation we can assist them and in
>return their experience will benefit all.
>
>Hopefully those that are in a position to make this possible
>will put egos and agendas aside and work towards making this
>a reality.


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