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Daffydwhite
Member since Dec-27-10
2 posts
Dec-27-10, 10:57 PM (PST)
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"many questions"
 
   I was diagnosed with a grade 4 glioblastoma multiforme in august of 2009, i had a craniotomy and the tumor was removed, and then started 12 weeks of radiation and 2 runs with temodar. A month ago a new tumor was found and I am desperate to get started with this DCA, as the doctors are already just talking about "controlling my symptoms" and "making me comfortable". The 2 new chemo drugs they want me to try have never been used for brain cancer and even the doctors say probably wont do anything for me. They wont say a number, but have said the word "months" many times in the last few weeks. I will be ordering DCA within the next 2 weeks and starting my own "clinical trials", i have never had to do anything like this before but i am going to do the best i can to be here 10 years from now, i have never had to measure anything in kg before and there is so much information here, my head is pounding after just a few minutes.....can anyone help me figure out the dosage i should start at? i am 40 yrs old, 250 lbs, i have read not to drink any caffeine while in treatment and from what i have read, i can just measure the powdered DCA with 1/8 tsp as a dose twice a day.....is this accurate?


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many questions [View All], Daffydwhite, 10:57 PM, Dec-27-10, (0)  
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parachuteadmin
Member since Mar-20-07
71 posts
Dec-28-10, 01:16 PM (PST)
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1. "RE: many questions"
In response to message #0
 
   Darrell,

I know there's a lot of information to absorb and you're probably feeling under the gun for time. I found a few notes here which may help get you started:

http://dca-information.pbworks.com

What size is the recurrent tumor? One wants to be careful of DCA dosage with brain tumors because of risk of Tumor Lysis Syndrome. The larger the tumor, the greater the volume of toxins released as DCA shrinks the tumor. Suggest you be conservative at the outset and increase dose gradually.

Diet and exercise are also important. You have the positive attitude and that's priceless.

Keep us up to date, okay?

Best wishes to you,

Randy



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dustin
Member since Sep-13-10
23 posts
Dec-28-10, 02:32 AM (PST)
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2. "RE: many questions"
In response to message #1
 
   Hi,

looks like you are just hoping to find someone with a similar situation, tell you what they are doing and help you measure? If so, maybe I can help....I will share what we are doing to achieve some decent results. HOWEVER, I must say...this protocol may have helped my wife greatly, but it also helped her TOO much and she learned that this therepy has caused TLS (Tumour breaks down too fast and enters the blood stream)...lil bastard is in her kidney so we're going to fight the little shite there too!!

Diet/supplements:
NO CAFFIENE
NO SUGGGGGGGGAR...NO SUGAR ...NO SUGAR....NO SUGAR......FRUCTOLOSE ONLY.......very liitle or no fruit....EAT LIKE A RABBIT!!!!!
VIT C
Pommegranate extract
"greens"
Green tea extract (has trace amounts of caffiene....yours sounds advanced and may not be a great idea!!)


*****250 lbs equals 113.6 KG****
my wife was given 16mg/kg so for you that equals 1818 MG or 1.8 grams per day......that sounds like a lot though? Maybe try the math yourself and see if it jives.

250 lbs devided by 2.2 equals113.6 KG
16 (MG) times 113.6 equals 1818 mg
1818 devided by 1000 (1000 MG per gram) equals 1.8 grams

Although the U of A study has shown efficacy with as low as 6mg/kg?? That would be .6 of a gram.....i would try 1 gram per day (morning) and go from there....if you start throwing up it likely means its working!

Buy a scale though!!!! PLEASE dont assume a tablespoon is accurate enough. You can go to any head shop and buy one (a place where you buy pot, pipes ect....thats a head shop)

Good luck stranger and dont stop fighting....when you think its down keep swinging!!!!!


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Daffydwhite
Member since Dec-27-10
2 posts
Dec-29-10, 02:10 PM (PST)
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3. "RE: many questions"
In response to message #2
 
   Thanks for the information.....I will buy a scale and start out slowly.....LOL at throwing up means its working. My first tumor was 3cmx2.5cm in August 2009 and was located just above and behind my right ear. After a craniotomy, 12 weeks of radiation and 6 months on Temodar, all of my MRI's came back clear until about 4 weeks ago and they found another one right next to the original site, although its about half the size of the first, they predict it is going to grow rapidly and only want to discuss "quality of life" and "being comfortable". The only drugs they want to offer me have never been used for brain cancer and they cant even say if they will do anything at all for me besides make me sick......all the data i have read about dca is 100 times better as far as results are concerned. Has anyone found any info about anyone trying hemp oil along with dca? i have seen some videos online about it it looks a bit promising too....maybe ill start drinking aloe vera too LOL


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dustin
Member since Sep-13-10
23 posts
Dec-29-10, 10:22 PM (PST)
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4. "RE: many questions"
In response to message #3
 
   LOL...Aloe Vera just might make your poopy soft and smell like roses

I read an article that say's excessive pot use alters your DNA so when a cell goes screwy it will actually eat itself. As, we all know DCA turns the mitocondia back on and than the cell commits suicide...but apparently canabis use alters your DNA and the result is that the mitocondria doesn't get the chance to turn off (or its irrelevant) because the cell turns into its own cannibal? Not sure how accurate that is. I did see the same story abot the hemp oil and I'm pretty certain that guy is trying to sell you drugs and calling it medicinal. Although, to play devils advocate, my wifes doctor told her to start consuming canabis. We do use it for the following reasons (which her doctor told us about and we have learned to be true)
- your body can't really be hungry and nauseas at the same time...so pot will sort out your stomach real fast and allow you to keep food down while offering better quality of life
- puts MOST people in a better state of mind so they can process and fight back better
- helps relax your muscles

....body, mind and spirit...


i wouldn't suggest oil though...it's dirty and has chemical remains!! We use a vaporizor....no carbons, chemicals ect....

You sound like a fighter?...LOVE it! Keep smashing it and only use words like WHEN...not IF!!

Dustin


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robmx
Member since May-25-09
63 posts
Dec-29-10, 10:22 PM (PST)
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5. "RE: many questions"
In response to message #3
 
   don't forget the B-1, maybe 500 mg per day. And maybe a B complex also.

I take one/eighth tsp per day at 180 lbs. I DIDN'T take B-1 and got a good case of peripheral neuropathy in the first three months.

Take lots of B-1 right from the start.

And if you want DCA right away ask for special shipment from the UK. I just got my last order and it took three weeks.


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james
Member since Dec-29-10
1 posts
Dec-29-10, 10:22 PM (PST)
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6. "RE: many questions"
In response to message #2
 
   >Hi,
>

>NO SUGGGGGGGGAR...NO SUGAR ...NO SUGAR....NO
>SUGAR......FRUCTOLOSE ONLY.......very liitle or no
>fruit....EAT LIKE A RABBIT!!!!!
>VIT C
>Pommegranate extract
>"greens"

I have a quick question. Is a low fruit diet recommended for all types of cancer or mainly glioblastomas? I started my mother-in-law on DCA on Dec. 2nd and have restricted her diet to veggies and fruit. She has been battling stage four colon and ovarian cancer with mets to her liver for 3 yrs now. After much chemo and quite a few operations, she has said no more chemo. I have been reading as much as I can about alternative therapy and diet but I would appreciate any help. I've gained a lot of information from this site. I consulted with her oncologist before I started the DCA and he had no objections. I'm following the DCA caffeine protocol since her cancer hasn't spread to her brain. She seems to be responding well so far and her appetite has improved greatly.


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