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oracle
Member since Mar-17-07
68 posts
May-11-07, 04:39 PM (PST)
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"Not one CT result on this site that shows reduction?"
 
Maybe I am crazy but it seems like every time I ask this question the admin removes it - if not then where is the question I asked last time?

I am asking this Question -

Do we want to know or not? is this a site for lies or truth? I have DCA and I also sent money in for the clinical trials as well as having my wife dealing with stage four lung cancer currently stable with antioxident regimens. Today we go in with DCA to see if her oncologist will support her using it.

Some news here would sure be great but NO ONE who has been CT scanned after using DCA for a couple months is talking or coming back except for squareb who gave us bad news. What is going on here? are we participating in a venting session where these folks are linked with those folks selling us DCA? what exactly is going on - our lives and our loved ones lives are on the line and not ONE CT SCAN in 4 months!!!! or the TRUTH is being removed from the site and people who had scans did post bad results so it was also removed like my questions are.

I am not happy about this admin - gee sorry I lost everything sorry - what? didn't this happen last month on another persons testimony who DIED!! while using DCA. Something is definitely missing here and I am starting to think its THE TRUTH.

I believe in DCA but I am starting to think these admins are manipulating the information to suit them which is pretty typical for us trying to survive to run into. Sorry but these admins need to either post it ALL or explain why they are not allowing CT scan results to be listed on this site. Folks just think about it - Jan, Feb, March, April and now May - 4 months and nothing - come on folks lets get real here - do you really think its a coincidence?.

Oracle

Oracle


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oracle
Member since Mar-17-07
68 posts
May-11-07, 05:45 PM (PST)
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1. "reduction?"
In response to message #0
 
>I am asking this Question -

I have DCA and I also sent money in for the clinical trials as well as having my wife dealing with stage four lung cancer currently stable with antioxident regimens. Today we go in with DCA to see if her oncologist will support her using it.

Some definitely clear news here would sure be great but it seems that NO ONE who has been CT scanned after using DCA for a couple months is talking or coming back except for squareb who gave us bad news.

I am not happy about this but I believe in DCA but I think we need to see posts that are bad as well as good - we need it ALL. CT scan results should be listed by folks who start on this site.

Folks just think about it - Jan, Feb, March, April and now May - 4 months and very little or just a little bit - but no WOW! other than what squareb posted and that was definitely a wow. Come on folks lets post it good or bad.

Oracle

Oracle


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Sandra
Member since Feb-27-07
380 posts
May-11-07, 05:52 PM (PST)
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3. "RE: reduction?"
In response to message #1
 
>
>Folks just think about it - Jan, Feb, March, April and now
>May - 4 months and very little or just a little bit - but no
>WOW! other than what squareb posted and that was definitely
>a wow. Come on folks lets post it good or bad.
>
>Oracle

FYI - DCA has NOT been in use for 4 months - try more like 2 months. I had a prescription, and I only got it March 2nd. The majority of people have been using it for a shorter period of time than that even.


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Sandra
Member since Feb-27-07
380 posts
May-11-07, 06:07 PM (PST)
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4. "RE: reduction?"
In response to message #1
 
other than what squareb posted and that was definitely
>a wow. Come on folks lets post it good or bad.
>
>Oracle

Also FYI - Squareb had squamous cell cancer, a type that DCA may not be very effective on. See post by Willis http://www.thedcasite.com/dcaforum/DCForumID1/79.html and supporting documentation http://www.pnas.org/cgi/reprint/79/17/5292 page 5.



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ipevery
Member since May-1-07
2 posts
May-12-07, 03:18 AM (PST)
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10. "RE: reduction?"
In response to message #4
 
   >Also FYI - Squareb had squamous cell cancer, a type that DCA
>may not be very effective on. See post by Willis
>http://www.thedcasite.com/dcaforum/DCForumID1/79.html and
>supporting documentation
>http://www.pnas.org/cgi/reprint/79/17/5292 page 5.

Hi Sandra,

As I'm not medically inclined, could you point me to the part that indicate that DCA will not work on squamous cell? I've also re-read squareb post and few time but didn't catch the portion that he mention that he has squamous cell. Did I miss something? Thanks.

http://www.thedcasite.com/dcaforum/DCForumID2/4.html

The reason why I'm interested is I'm currently contemplating to start DCA for my wife who has squamous cell NSLC. So any information on this is useful.


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Sandra
Member since Feb-27-07
380 posts
May-12-07, 04:38 AM (PST)
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11. "RE: reduction?"
In response to message #10
 
>>Also FYI - Squareb had squamous cell cancer, a type that DCA
>>may not be very effective on. See post by Willis
>>http://www.thedcasite.com/dcaforum/DCForumID1/79.html and
>>supporting documentation
>>http://www.pnas.org/cgi/reprint/79/17/5292 page 5.
>
>Hi Sandra,
>
>As I'm not medically inclined, could you point me to the
>part that indicate that DCA will not work on squamous cell?
>I've also re-read squareb post and few time but didn't catch
>the portion that he mention that he has squamous cell. Did I
>miss something? Thanks.
>
>http://www.thedcasite.com/dcaforum/DCForumID2/4.html
>
>The reason why I'm interested is I'm currently contemplating
>to start DCA for my wife who has squamous cell NSLC. So any
>information on this is useful.

In Willis' post he mentions DCA possibly working by normalizing the mitochondrial potential. Rhodamine 123 is a positively charged dye, so if it is not taken up well, indicated by the number 60 (for squamous cell lung cancer) in the chart (right hand side) on page 5, that may mean that DCA does not work well in that type of cancer. (Sorry, couldn't find the post on Squareb's cancer type, but will keep looking.) I'm not saying DCA will not work, but it may not be as effective on that type of cancer as it seems to be on others like adenoma.

Perhaps you should look into TM for your wife. Or even TM with DCA.
http://www.thedcasite.com/tetrathionmolybdate_treatment.html

Take care,
Sandra


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ipevery
Member since May-1-07
2 posts
May-14-07, 11:27 AM (PST)
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18. "RE: reduction?"
In response to message #11
 
   >In Willis' post he mentions DCA possibly working by
>normalizing the mitochondrial potential. Rhodamine 123 is a
>positively charged dye, so if it is not taken up well,
>indicated by the number 60 (for squamous cell lung cancer)
>in the chart (right hand side) on page 5, that may mean that
>DCA does not work well in that type of cancer.

Sorry for a naive question, isn't the A549 NSCLC tested by Dr.Michelakis also have a value of 60? Any idea why the difference?

http://thedcasite.com/the_michelakis_paper_dca.html
"We studied DJm in three human cancer cell lines: A549 (non-small-cell lung cancer), M059K (glioblastoma), and MCF-7 (breast cancer), and compared them with healthy, noncancerous human cell lines: small airway epithelial cells (SAEC), fibroblasts, and pulmonary artery smooth
muscle cells (PASMC). All cancer cell lines had significantly more hyperpolarized DJm compared to normal cells (increased fluorescence of the DJm-sensitive positive dye tetramethyl rhodamine methyl ester; TMRM)."


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Sandra
Member since Feb-27-07
380 posts
May-12-07, 05:16 AM (PST)
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12. "RE: reduction?"
In response to message #10
 
It seems I was mistaken - Squareb's cancer was sarcoma - but any cancer cell line that is not very hypoxic is less likely to be affected by DCA.


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Sandra
Member since Feb-27-07
380 posts
May-11-07, 05:47 PM (PST)
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2. "RE: Not one CT result on this site that shows reduction"
In response to message #0
 
Your question is posted under 'DCA Research'. I don't believe it's been moved as you stated. However double posts, like this one, usually are removed to save space on the forum.

If you read the testimonials, there is at least one scan showing DCA's efficacy. Remember, DCA has only been in use for a month or two. Still VERY early to expect many scan results. Add to that, the fact that for the most part, the medical system has ABANDONED anyone who wants to use it. That would mean less access to scans by those who are using DCA - I count myself amoung those people.


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Sandra
Member since Feb-27-07
380 posts
May-11-07, 06:24 PM (PST)
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5. "RE: Not one CT result on this site that shows reduction"
In response to message #0
 
>Some news here would sure be great but NO ONE who has been
>CT scanned after using DCA for a couple months is talking or
>coming back except for squareb who gave us bad news. What is
>going on here? are we participating in a venting session
>where these folks are linked with those folks selling us
>DCA? what exactly is going on - our lives and our loved ones
>lives are on the line and not ONE CT SCAN in 4 months!!!! or
>the TRUTH is being removed from the site and people who had
>scans did post bad results so it was also removed like my
>questions are.

To whom exactly are you making this accusation!? Just so you know - not that I have to defend myself, but I'm bristling at your statements right now - I live in Edmonton, Alberta, Canada. The DCA 'people' are located in Sonora, California. I have never met them, nor do I 'work' for them. I suggest you owe them and other members on this forum an apology!

>I am not happy about this admin - gee sorry I lost
>everything sorry - what? didn't this happen last month on
>another persons testimony who DIED!! while using DCA.
>Something is definitely missing here and I am starting to
>think its THE TRUTH.

The section that was supposedly 'lost' on the forum, namely the Clinical Trials, never had any information in it. As for your other accusation about a death, yes, people have died. For some people, their cancer is just too advanced, they would have died without DCA too. But many people are getting better who would likely be dead - read the thread by Joy in Testimonials http://www.thedcasite.com/cgi/dcboard.cgi?az=read_count&om=38&forum=DCForumID2&viewmode=threaded


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satx
Member since May-9-07
72 posts
May-11-07, 07:29 PM (PST)
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6. "RE: Not one CT result on this site that shows reduction"
In response to message #0
 
   Oracle,

All of us with cancer, or supporting family,friends with cancer are walking on egg shells and emotionally distraught. So I have plenty of patience and empathy with your tirade and impatience.

We all want to see hard results from hard techology like imaging, palpable tumors and biomarkers diminishing/disappearing, PSA numbers stagnating and decreasing, etc.

I agree with Sandra that we don't have 4 months you claim for imaging to have been performed, but only 1 or 2 months, maybe even less, of DCA experience. Stopping progression of the disease is first phase, ie, little or no new tumor growth. Then for the exisiting tumor cells to expire and not to be replaced, could take months, not weeks, imo.

If DCA is working for some people, I expect hard results to arrive in the next couple months. I have no pretensions that DCA will work for everybody, since every person's physiological health, immune capacity, inherited genetics, cancer type, disease stage, diet, supplements, genetic expressions render responses to any treatment different from person to person.

Len


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adminadmin
Member since Feb-7-07
115 posts
May-11-07, 07:53 PM (PST)
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7. "RE: Not one CT result on this site that shows reduction"
In response to message #0
 
LAST EDITED ON Jul-10-07 AT 09:53 PM (PST)
 
Oracle,

Jim and I are the only ones who can remove posts from this site, so if you have questions feel free to email/private message us.

I never remove posts unless they are double postings or spam or outright derogatory/abusive. I sometimes MOVE them to another thread where they are more appropriate. If you ask a question, it may be moved to the Q&A section. I alerted members to this in the section DCA Forum FAQs.

We have had some problems and lost a few messages (and the entire Clinical Trials section) last week due to an attack by spammers. I apologize for any inconvenience.

Heather
TheDCASite Forum Moderator


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MZ
Member since Mar-19-07
24 posts
May-11-07, 10:02 PM (PST)
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8. "RE: Not one CT result on this site that shows reduction"
In response to message #0
 
   Oracle,

My dad has stage 4 non-small cell lung cancer. He will have CT sometime next week. He took DCA for 25 days, stopped on May 10 for a reason. The CT next week will tell something, but will not be a black or while answer. I will let every body know when I got the result.

I read almost all the posts every early when this forum just started. I did not see any valuable results being removed by the owner of this forum.

I got to go now. I will be back tomorrow if you have any questions for me.

MZ


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dillon
Member since May-8-07
11 posts
May-11-07, 10:46 PM (PST)
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9. "RE: Not one CT result on this site that shows reduction"
In response to message #8
 
   MZ -
My dad has stage 4 nsclc as well. Good luck with your scan next week . I agree though, that you won't have a black and white answer though unless your Dad had a scan on the day he started DCA. Can you tell me what other drugs he is on?? Just trying to gage if any people are having any reactions. Again-best of luck with his scans...


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MZ
Member since Mar-19-07
24 posts
May-12-07, 10:58 AM (PST)
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13. "RE: Not one CT result on this site that shows reduction"
In response to message #9
 
   When my dad was taking DCA, he took Tegafur for cancer, L-dopa for Parkinson's disease, a drug for prostate problem (not prostate cancer), a drug for managing cough, and some supplements. His nsclc type is adenocarcinomas.

In terms of drug interaction, he did not feel it. he felt tired and had "Diarrhoea" for a week from the first day when he took DCA and some supplements, including omega 369, multi-vitamins, noni, CoQ10 etc. he had soft stool 4~5 times a day, small amount each time, and later changed to 2 times a day, finally one time each day.

He started DCA on 4/15. His dose of DCA was 6.25mg/kg/day for the first 4 days, then doubled to 12.5mg/kg/day, dissolved in water, twice a day.

On May 8 he went to pee at night 6 times, the following night 7 times (every hour), and out of breath when he went back to bed. He felt very tired, had difficulty moving his steps, and sweated a lot.

Worrying he may experience Tumor lysis syndrome (but did not looked like the typical TLS, plus he has Parkinson's disease), I asked him to reduce DCA by half on May 9, and stopped on May 10.

After taking some drugs and had IV, he is stablized now. his CT was scheduled on May 11 but due to his body condition, it is changed to next week, providing his body condition is keeping the some as now.

MZ


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MZ
Member since Mar-19-07
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May-12-07, 11:28 AM (PST)
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14. "RE: Not one CT result on this site that shows reduction"
In response to message #13
 
   One more info on the dose of my dad's DCA.

From 4/15 to 4/25, his dose of DCA may not be accurate.

I prepared DCA in capsules for him to start with(410mg/capsule). I put 80 capsules in a used vitamin bottle and mailed him. he was supposed to take one capsule in the morning and one at night.

The city he lives in is very humit. when my mom openned the bottle, the capsules were stuck to each other (melted in fact), and hard for her to seperate them (the bottle is the type that kids cannot open but not air sealed, plus DCA can catch moisture from air easily). so the dose in the first 10 days could be more or less then what I said above, I suspect it could be less, way less.

When I visited my dad on 4/26, I took the DCA powder with me and started to measure DCA with a scale for him. so I can tell the DCA dose for the last 14 days are accurate.

MZ


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satx
Member since May-9-07
72 posts
May-12-07, 01:33 PM (PST)
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15. "RE: Not one CT result on this site that shows reduction"
In response to message #0
 
   I've been amazed at how blind urology is in staging prostate cancer initially. State-of-the-art is PostaScint, $3200 a pop. And even then less infor repeatedly staging it through treatment.

It seems that for many urologists, the decision is binary: you don't have prostate cancer, or you do. If you do, more of the same binary brutality: cut it out or ablate it. Almost no urologists want to get involved, time-intensive, in "managing" the disease, or even involved with the patient.

The key question for people trying to manage cancer is "How am I doing?" The question is easy, the answer isn't.

Here's an abstract that mentions biomarkers for apoptosis:

"Research Highlights
Nature Clinical Practice Urology (2007) 4, 236
doi:10.1038/ncpuro0770

Apoptosis biomarkers could aid prediction of outcome after surgery for bladder cancer

This article has no abstract so we have provided the first paragraph of the full text.

Karam et al. investigated whether expression of four apoptosis-related biomarkers (Bcl-2, p53, caspase 3 and survivin), alone or in combination, could aid prediction of outcome after radical cystectomy for bladder cancer. Conventional prognostic features (tumor stage, grade, and lymph-node metastasis) are not accurate enough to predict outcomes after radical cystectomy, because patients with similar disease features experience varied outcomes."

=============

These aren't biomarkers for bladder cancer, AFAIK, but cancer. And they could be useful after surgery, or after a period of managed treatment.

I think we're pretty much condemned to fly blind, with no cheap or easy way to know in detail what is going on.



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satx
Member since May-9-07
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May-12-07, 03:07 PM (PST)
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16. "RE: Not one CT result on this site that shows reduction"
In response to message #15
 
   correction: ProstaScint

The message EDIT function always fails.


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incomingduck
Member since May-4-07
50 posts
May-13-07, 00:10 AM (PST)
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17. "RE: Not one CT result on this site that shows reduction"
In response to message #0
 
   I know for a fact that one of your posts was not deleted because I noticed it and responded to it on 08-May, to wit:

http://www.thedcasite.com/dcaforum/DCForumID4/55.html

Also, here's where someone posted a message which pertained to positive scan results.

http://www.thedcasite.com/dcaforum/DCForumID2/83.html

Hint to everyone: If you're looking for a snatch of information on the "thedcasite" site but have forgotten exactly where it's located, Google is sometimes the best way to find it. For example, if you type in "squareb" and "sarcoma" Google will respond with relevant hits. There's one caveat to this method, i.e., it can take a few days for Google to "spider" the post and get it onto the Google servers.

(FWIW, It's my gut feeling, and nothing more, that the contents of this site are not being manipulated by the administrators.)


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oracle
Member since Mar-17-07
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May-14-07, 03:52 PM (PST)
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19. "reduction - Retraction - I was not able to remove ;-("
In response to message #0
 
I am asking this Question -

Do we want to know or not? Well I took it myself to show my wife it was safe but she still waited to hear it from the doctors first and she did last week. Stage IV Lung Cancer Lymphoma needs a little DCA in my book. A very experienced oncologist told her if a baby can take it you sure can! we laughed a bit and moved on. I found out our area here in has more cancer than any other in the US due to a lack of Vitamin D. The body will produce about 8,000 units of it in a day of sun so folk in areas like ours need to take at least that a day if they have cancer. I will post a testimonials every week. I already sent an email to the admins even before they saw my post and want to appologizee to the admins again - been a bad few months.

This week my wife will start DCA under a naturopath and a oncologists supervision. They were both very positive and upbeat about supporting us and they have "many others" they provide support to as well - wow is that cool or what!.

One of the things that really blew me away was that they actually went out and found a supplier that tried to sell it to them for thousands of dollars - like about 11,000.00 for a months supply and they are doctors! They of course declined but kept it as an option just in case.

So there are some big fakers out there once again I want to apologize.

Oracle

Oracle


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Sandra
Member since Feb-27-07
380 posts
May-14-07, 05:51 PM (PST)
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20. "RE: reduction - Retraction - I was not able to remove ;"
In response to message #19
 
Thanks Oracle,

Sorry I took your comments so personally - I'd also had a rough week, my German Shepherd of 11 years died and my 17 year old son and girlfriend were in a motorcycle accident (cut-off by a truck, bike is a write-off). They're both not hurt badly, but still, it'd been a tough week.

Wish you and your wife the best - you are both very fortunate to have supporting doctors involved in her care.

Sandra


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incomingduck
Member since May-4-07
50 posts
May-15-07, 01:23 AM (PST)
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21. "RE: reduction - Retraction - I was not able to remove ;"
In response to message #19
 
   Wow, $11,000.

Isn't that about what it found the Pentagon was paying, at one point, for toilets?

Is it any wonder that health-insurance premiums keep skyrocketing?

Greedy bastards.

Kind of puts things in perspective vis-a-vis the accusations that Jim Tassano is a "profiteer" ....


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