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Conferences Support Forum Topic #71
Reading Topic #71, reply 7
candydog
Member since May-6-08
21 posts
Jun-13-08, 11:16 PM (PST)
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7. "RE: Our journey"
In response to message #6
 
   Thankyou for your advice. I forgot to mention the other stuff.
Following his second surgery Graham was great. Talking and congnitivley well. His neuraligia was also gone. We all sighed a big relief. The surgery was done to buy time to get chemo. He had at most 6 weeks to go.
Ten days following surgery he went badly down hill. Developed the tremors, couldn't remember his sisters names, talked less, and said things that did not make sense. And Slept!!!
He was transferred to rehab. I remember walkimg into rehab. and he had wet himself, was trying to eat yoghurt and was shaking so much that he couldn't get the spoon to his mouth and was covered in yoghurt. That day I started him on a B17 drink of apricot kernels,flax seed oil,whey protein, psyllium husks, barley grass powder and soy milk. Within a week the tremours had subsided and some thinking had returned. He scored higher that week on his cognitve tests and they said it was because he was not as tired.
The next week I found our new doctor and he started Vitamin C once a week megadose and valtrex. Valtrex is a herpes anti viral drug. It was reported that 90% of GBMs have a herpes type virus in them. So the new doctor said we should cover that angle.
And then the DCA was started thanks to a script from the new doctor.
Last Friday we finally had the okay from the oncologist for chemo. Up to now he has been refused treatment as he was considered not well enough to take it. So he has also had 5 days of Temodal and is now on the off phase.
Only the new GP is aware of all of it. Graham is actually complaininng about all the drugs he has to take. This is new for he has been very complient till now. I fear for any interactions and have not told the oncologist of any of it.
But rest I cannot. For just this morning he asked after his daughter using his sisters name. Straight away anxiety from me. Then I also realised that he said it really clearly and that the speech was back. So also is his neuraligia but I am trying acupuncture for it.


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 Our journey [View All], candydog, 04:25 AM, Jun-01-08, (0)  

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