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DCA Discussion Forum
JudyDowell
Member since Apr-6-08
57 posts |
Jun-02-08, 05:58 PM (PST) |
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"Non-Hogekins Lymphoma Mantle cell using DCA"
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Hello all, I am a 52 year old female with mantle cell cancer. I have Non-hogekins, B cell sub category mantle cell Lymphoma with bone marrow involvement, stage IVe. (stage 4E). Prognosis was made on Feb. 1st, 2007, and they said I had 6 months to 18 months, and to get my affairs in order, so after Aug. 2008, I will be on borrowed time. It is a slow dividing cell, so chemo is not an option since chemo only kills rapid dividing cells. My oncologist will not help me with DCA,(he really hates to even hear of alternative things that offer hope, He even cusses saying BS, but hey, he could loose his well paying job when people cure themselves and have no need for his chemo) but my regular MD said he is 100% behind me on this, so I am open with him about my use of DCA. I obtained sodium DCA, and I am taking 1/8 teaspoon daily now. I have to drink purified water to keep things alkaline, and I am avoiding meat and cooked foods, eating raw veggies, as well as some low fat cottage cheese with flax seed oil mixed into it, and salsa. Mighty tasty!Reminds me of Lasagna without noodles. I am also taking Green Tea extract, 315mg. twice a day, plus Vit B1 (500mg daily), Curcumin (900mg 4X a day) plus my chinese herbs from my chinese alternative med Dr. Peter Sheng in Cincinnati. I wear a 50mcg Fentanyl Patch for pain and take 5mg oxycodone for any break through pain. Any additional suggestions will be appreciated. After the first 5 days on DCA, I took a few days off, and WOW, I noticed a Big difference in my energy. While taking it, I wasn't taking enough B1, and I wasn't sleeping at nights, but then after being off of the DCA for a few days, I was sleeping like a baby and appetite was great, everything was great. I did notice less trips to the bathroom, so maybe taking a water pill on the off days would be a smart thing to keep the kidneys flushed out? I have started my second week taking the 1/8 teaspoon of DCA daily for now.Judy |
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Non-Hogekins Lymphoma Mantle cell using DCA [View All],
JudyDowell, 05:58 PM, Jun-02-08, (0)
- RE: Non-Hogekins Lymphoma Mantle cell using DCA,
admin
, Jun-03-08, 07:27 AM, (1)
- RE: Non-Hogekins Lymphoma Mantle cell using DCA,
JudyDowell, Jun-04-08, 10:38 PM, (2)
- RE: Non-Hogekins Lymphoma Mantle cell using DCA,
dimitrisk
, Jun-05-08, 09:15 AM, (3)
- RE: Non-Hogekins Lymphoma Mantle cell using DCA,
JudyDowell, Jun-06-08, 04:22 PM, (7)
- RE: Non-Hogekins Lymphoma Mantle cell using DCA,
paradox224, May-11-09, 02:15 AM, (15)
- RE: Non-Hogekins Lymphoma Mantle cell using DCA,
lsk5689, May-11-09, 05:26 PM, (16)
- RE: Non-Hogekins Lymphoma Mantle cell using DCA,
JudyDowell, Jan-26-10, 07:54 PM, (19)
- RE: Non-Hogekins Lymphoma Mantle cell using DCA,
JudyDowell, Jan-26-10, 07:54 PM, (20)
- RE: Non-Hogekins Lymphoma Mantle cell using DCA,
JudyDowell, Jan-27-10, 01:07 PM, (21)
- RE: Non-Hogekins Lymphoma Mantle cell using DCA,
admin
, Jan-27-10, 06:39 PM, (22)
- RE: Non-Hogekins Lymphoma Mantle cell using DCA,
oracle, Feb-05-10, 02:38 AM, (23)
- RE: Non-Hogekins Lymphoma Mantle cell using DCA,
JudyDowell, Mar-02-10, 10:35 AM, (24)
- RE: Non-Hogekins Lymphoma Mantle cell using DCA,
chrisz, Mar-02-10, 09:54 PM, (25)
- RE: Non-Hogekins Lymphoma Mantle cell using DCA,
JudyDowell, Mar-18-10, 08:21 PM, (26)
- RE: Non-Hogekins Lymphoma Mantle cell using DCA,
BOBBY, Mar-19-10, 04:27 AM, (27)
- RE: Non-Hogekins Lymphoma Mantle cell using DCA,
admin
, Mar-19-10, 11:36 AM, (28)
- RE: Non-Hogekins Lymphoma Mantle cell using DCA,
chrisz, Mar-19-10, 00:34 AM, (29)
- RE: Non-Hogekins Lymphoma Mantle cell using DCA,
JudyDowell, Apr-07-10, 11:05 AM, (30)
- RE: Non-Hogekins Lymphoma Mantle cell using DCA,
JudyDowell, Mar-19-11, 09:37 PM, (32)
- RE: Non-Hogekins Lymphoma Mantle cell using DCA,
JudyDowell, Apr-15-11, 01:10 AM, (34)
- RE: Non-Hogekins Lymphoma Mantle cell using DCA,
domik007, Apr-19-11, 01:02 PM, (35)
- RE: Non-Hogekins Lymphoma Mantle cell using DCA,
JudyDowell, Sep-26-12, 02:02 PM, (37)
- RE: Non-Hogekins Lymphoma Mantle cell using DCA,
lsk5689, Aug-31-11, 07:38 AM, (36)
- RE: Non-Hogekins Lymphoma Mantle cell using DCA,
kmpatterson, Oct-08-12, 11:16 AM, (39)
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dimitrisk
Charter Member
204 posts |
Jun-05-08, 09:15 AM (PST) |
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3. "RE: Non-Hogekins Lymphoma Mantle cell using DCA"
In response to message #0
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Keeping urine PH > 7.1 is also very important, especially for kidneys. You need also to add R+lipoic Acid, Acetyl-L-carnitine, and CoQ-10 that are synergatic with DCA and boost its effectiveness. I would advise to take a look at this list of sumpplements: http://www.thedcasite.com/dcaforum/DCForumID10/32.html There are a lot of excellent stuff that could also add, like Resveratrol, DHA, Capsibiol-T, Kyolic 103, Selenium, and maybe Artemisin. Study well this list with associated links. I always find something new to add. My best wishes, Dimitris |
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oracle
Member since Mar-17-07
417 posts |
Jun-05-08, 03:24 PM (PST) |
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4. "RE: Non-Hogekins Lymphoma Mantle cell using DCA"
In response to message #3
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Does anyone know why no more posts are on the site? its been a long time since anyone sent an email to jim on this protocol using tea. The last update was last month! I wantdd to also comment that I think its better to not load up on to many different supplments - your system has to process all of this stuff and your liver as well as immune system could suffer from to much work processing to much health goodies. We did a lot of suppliments but are down to the basics now and it seems to be much easier for Liens system and her reponse has been great so far. If you are not sure about what the interaction is withe dca and other critical vities I would not venture there again. We ended up with to much and finally her system started to become very tired. The flax, melatonin, fresh veggies and fruits along with a few other critical supplements is all we do now. Its really not a crap shoot and if we stay focused this cancer will be beaten. I believe in the folks here and their ablity to beat cancer. NO ONE NEEDS TO DIE ANYMORE! WE WILL BE VICTORIOUS! I BELEIVE IN EVERY ONE OF YOU AND LOVE YOU ALL SO MUCH Never quit and God Bless O Oracle |
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dimitrisk
Charter Member
204 posts |
Jun-05-08, 11:21 PM (PST) |
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5. "RE: Non-Hogekins Lymphoma Mantle cell using DCA"
In response to message #4
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@Oracle I respect your opinion very deeply and I read carefully every new post praying for a full remission for Lien, and I see she's very close to it. I am also sceptic about all these sumplements, and I try to collect the best ones. I think these are the basics for DCA+caffeine+B1 protocol: PH > 7.1 R+lipoic Acid Acetyl-L-carnitine CoQ-10 And of course, fress lemon juice 10 minutes before DCA dose. Resveratrol and DHA are also too good to igonre. I am not sure about Melatonin. Evrything else in Sandra's list has its exceptional value, and we can try occasionally. What do you think about this minimum list? |
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oracle
Member since Mar-17-07
417 posts |
Jun-06-08, 01:43 AM (PST) |
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6. "RE: Non-Hogekins Lymphoma Mantle cell using DCA"
In response to message #5
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I agree and thinnk your list is good. PH > 7.1 - if you can do it - this helps a lot! R+lipoic Acid - Yes Acetyl-L-carnitine - this rocks! CoQ-10 - of course at least 400 mg twice a day And of course, fress lemon juice 10 minutes before DCA dose. Resveratrol and DHA - yes we do this as well. The melatonin is specifically for Lung Cancer - or based on lung cancer studies. The lemon is awesome and you are doing MMS? I want Lien back on it - it increases white blood cell counts. Good stuff! God bless O Oracle |
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dustin
Member since Sep-13-10
26 posts |
Oct-01-10, 00:08 AM (PST) |
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31. "RE: Non-Hogekins Lymphoma Mantle cell using DCA"
In response to message #4
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Hi Oracle, My wife was diagnosed with a "small" brain tumour three months ago and thank god we live in Edmonton so she is part of the current clinical trials. The trial, for her, is over in a month and we arent sure what their plan for her is after that. She has only been given DCA and over the counter vitamines. So far we have seen a 20% reduction and now it is stabalized. I don't know what to do if they decide to discontinue DCA and opt for the standard treatments...should we continue DCA on our own, with our own researched protocols?....how could we know what to do?! After I learned that she was on DCA, I found this site and I found your story. Thank you Oracle for sharing your and Liens story with all of those who want to hear it. It has helped me greatly learning of the good fight you two put on and I salute you man!! I can only hope that I find the strength that you so clearly demenstrated so we can beat the snot out of this ugly little thing (and we will!). I'm sure your story has impacted MANY people out there and for that you will be reunited with your beuatiful girl in time.. Thank you again! "Dustin" Edmonton, Alberta |
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JudyDowell
Member since Apr-6-08
57 posts |
Jun-06-08, 04:22 PM (PST) |
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7. "RE: Non-Hogekins Lymphoma Mantle cell using DCA"
In response to message #0
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Second week on DCA Update: I took the DCA last week with 2 1/2 days off and then resumed the 500mg daily. I am taking 1/2 in the morning and 1/2 in the evening. I drink black tea (about 2 large mugs full) as well as 3 to 4 cans of coca-cola (can't live without my sugar rush, shame on me). I smoke (get over it). I eat 1/4 cup of lowfat cottage cheese with 2 tbsp. flax seed oil and 2 tbsp salsa mixed in. I have recently bought organic cereal and have that some mornings with soy milk. I noticed a bit of nasal congestion while on the DCA so I took a benedril to help that. It helped (one night I resorted to afrin). I also take 25mg of zinc presently 4 times to 6 times a day (depends on how my stomache feels),Five vit. B1=500mg a day, curcumin 900mg six times a day. One Omega 3 oil cap a day, and an occasional stool softner from wal-mart. I must admit, I will occasionally eat a cinnamon bun (L'oven Fresh brand if my sweet tooth is really bugging me). I recall seeing a post where someone was asking about chocolate, well, I eat a few M&Ms every day, been doing that forever and If I quit, I'd probably loose weight that I need to keep. Basically, I am human and I have a sweet tooth that won't quit. I sometimes tell myself it's the cancer asking for food, but I don't listen to that (again, shame on me), However I quit putting a huge scoop of sugar and milk in my hot tea, so I am making changes. I now dread the cup of tea, but tolerate it. The report from last week is: No night sweats (or morning sweats), no numbness, no itching, no bea sting sensations, no white noise in my ears at night, no smells (I was able to smell my own cancer as well as any smells, it kept me awake), I slept well, I did urinate a lot daily and by the end of the week, I was nearly incontinent but made it to the bathroom in time to urinate, my energy is better, my apetite is up, I am on my feet more planting flowers outside and socializing more. Second week has come near an end now (second round of 5 days on DCA) and I can say I've maintained the same results. I think I should increase my water intake Plus I did add a bottle of alkaline water Ph10 to my daily routine. That is to offset the acid from the coca-cola. Hope it works. I drink purified water. My energy has continued to climb up. I feel I am getting better. I will keep you posted.Judy |
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satx
Member since May-9-07
232 posts |
Jun-06-08, 05:27 PM (PST) |
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8. "RE: Non-Hogekins Lymphoma Mantle cell using DCA"
In response to message #7
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"I feel I am getting better." I feel great, better than in decades, in superb shape, no excess weight, but I still have cancer, which has (secret) feelings and objectives of its own. Staging it is possible with the latest discoveries, but nobody in town uses those discoveries. So I'm pretty much flying blind. Apart from your feelings, are there any objective measures for monitoring your disease? 2 weeks is pretty short for definitive progress but it sounds like you're moving in the right direction. Congrats and good luck. To fight you your carb addiction, I suggest the Rosedale Diet as anti-cancer nutrition. $7 used on Amazon. |
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JudyDowell
Member since Apr-6-08
57 posts |
Jun-16-08, 11:57 PM (PST) |
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9. "RE: Non-Hogekins Lymphoma Mantle cell using DCA"
In response to message #8
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I have cut out all the meats, breads, cakes, crust, and so on. I just eat raw veggies, lots of carrots & celery juiced, and a few peas, corn, potatoes, but tru to stick to leafy green stuff. I am taking zinc (I hear it's best to do a copper to zinc ratio and it should be 1-5 with copper being one) so keep the copper down and zinc up!!! This was info given to me from one of the head Doctors at the Canada trials from Medicorp. I was told to get copper out of your body, to use TM compounded by a pharmacy (it gets the copper out of your body). I was the skinny girl who turned heads, and still am. I have a rough time with the sugar issue, but I have lowered the amount of sweets I consume. The coca-cola is the roughest one, I will have my cokes if nothing else, so I am drinking the same amount of cola as I do alkaline water. I am buying alkaline water with a pH of 10 to counter balance the acidic sugary drink I can't seem to live without. I am drinking less cokes, about half as much. I recently started drinking lemonaid, fresh squeezed, and I like it tart. I also added Mega Benfotiamine 250mg. twice a day, the zinc, about 50mg. is all I can handle a day or it makes me queezy, my curcummin and B1, plus the green tea extract. I am really feeling the energy folks, I almost feel better than before I was diagnosed! I can't wait till I go for my next CT scan. I am so curious as to how I am doing. This past month has been wonderful, I have regained my strength and I've lost all those nasty side effects! That's worth writing home about! I will fill you in with more as time goes by. Judy |
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satx
Member since May-9-07
232 posts |
Jun-17-08, 01:42 AM (PST) |
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10. "RE: Non-Hogekins Lymphoma Mantle cell using DCA"
In response to message #9
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"corn, potatoes" corn/corn oil is high pro-inflammatory omega-6, cut it out. Several other plant oils are the same. pototoes are essentially high-glycemic, low-value carbs, pretty much like white sugar for salad "filler", try garbanzo beans, kidney beans, but read the label since the Bush Beans brand seems to add lots of sugar, stupid cheap trick. "my cokes" just as long that you are aware that sh!t is acidic poison, even the diet stuff. really, really nasty. synthetic chemicals, all of it. "acidic sugary drink I can't seem to live without." bite the bullet, bow your neck and go no/low carbs, as if your life depended on it. after a few days, the carb addiction is conquered. I'm not convinced that "metabolic typing" can mean some people are stuck on high-carb diets genetically. Cancer lives on glucose, so the less glucose, the better. A ketogenic diet is a good cancer diet. also check on natural glucose stabilizer/suppressors, like cinnamon, fenugreek, etc. "I am so curious as to how I am doing. This past month has been wonderful"
living with cancer is often an emotional rollercoaster. Read the reviews of the Rosedale Diet on Amazon. Explains about the insulin, grehlin, leptin, glucose and how to beat it, with recipes. Sounds like you're doing great. |
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JudyDowell
Member since Apr-6-08
57 posts |
Jun-18-08, 03:05 AM (PST) |
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12. "RE: Non-Hogekins Lymphoma Mantle cell using DCA"
In response to message #10
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I'm still doing the cottage cheese (low fat) with salsa and 2 to 3 tbsp flax seed oil in it, mixed up good. I like to eat that daily, just forgot to list that. I will eventually cut down to one coke a day. I am drinking more water and lemonaid so I drink less coke. I started using ice in it, so it's getting watered down some and lasting longer. I have been drinking cokes for 50 years now, no way I can go cold turkey when I always drank Just Coca-cola, nothing else except an occasional coffee or tea. So, you see, my coca-cola addiction is something to be reckoned with. I realize it's acidic and sugary, but hey, no one is perfect and I just like it and will continue to drink them, but trying to cut it back. I am patting myself on the back for the great changes I have made, and I stopped my cancer by going alkaline as much as I have. I am growing my container garden so I can control the PH of each plant that I will be eating. I bought all my seeds from the Amish, they are all organic with no chemicals or hormones. I would say that has a lot to do with diseases in America. Hormones in the meats. Just from my cutting out meats completely, that was the only change I had originally made to my diet when I had the CT scan that showed my cancer had stopped growing! ALL I DID WAS CUT OUT ALL MEATS! Very Important to exclaim that, because I hadn't gone alkaline yet. I was still drinking 6 cokes a day, but I stopped eating meat! Meats slow down your digestion, leaving all those toxins in your intestines, and that is how I was living, with a slow metabolism, but since I am not eating meats, the food process flows through me fast, getting the toxins out. If I was going to advise anyone on what to do, or what not to do, I'd say cut out the meats, we don't need meat in our diet (and I love my steak, but hey, I'm getting better without it). Now to get completely off the sugar and High fructose corn syrup that seems to be in all foods except organic foods. I have been buying only organic foods lately. It's more expensive, but life is worth every penny! Judy |
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oracle
Member since Mar-17-07
417 posts |
Jun-17-08, 02:19 PM (PST) |
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11. "RE: Non-Hogekins Lymphoma Mantle cell using DCA"
In response to message #9
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Great post Judy and keep it up. Its great to see you doing so well and inspired. Check your PH - it will be keep you in check diet wise. There is no way around it - low ph - danger and room for metastasis - high ph /alkaline and send me the old shoe to eat if anyone has ever had cancer spread with a PH in the 7.5 or greater range. I did not see you pushing the flax zone and think you should - 3 - 5 tablespoons with lignans, bluebrries and low fat cottage cheese blended up every morning or night one hour before or after eating. Remember this stuff is non toxic so you dont have to deal with bad things if you do to much. This lack of danger gives you the opportunity to saturate your system with that slippery heavy hitting Omega-3-suphuric-blast! Picture cancer trying to grab on to tissues and slipping off into the waste basket ok its silly I know - but it is pretty tough for cancer to form on saturated tissues of omega-3 oils with swirling empowered t cells all over the place. I put out challenges to anyone including any oncologist to provide proof of metastasis on any patient who had a constant high ph level and was alkalined. Green veggies, lemons - green veggies - lemons on everything you eat is what I say Rock on Judy. Maybe I might end up eating a nasty old boot - YIKES! - NOT - its simply one of those challenges that will never be lost - cancer cannot live in high alkaline environments and its cannot spread either or at least its been two years for Lien and its stayed exactly where it was found or died but never spread and that is a real factoid! Judy see links: http://microwaterman.com/Microwater/Alkaline_Microwater_Cancer.htm http://www.angelfire.com/az/sthurston/Killing_Cancer_Cells_with_High_pH_Therapy.html Note: DO NOT TRY cesium without a professional doctor applying it - this stuff is powerful and will LEACH your bones of potasium without proper protasium supplimentation. I used potasium to counter cesium but it did not work - bad news and now I think it needed magnesium as well which actually creates potasium as a by product. God bless O Oracle |
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satx
Member since May-9-07
232 posts |
Jun-18-08, 12:47 PM (PST) |
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13. "RE: Non-Hogekins Lymphoma Mantle cell using DCA"
In response to message #11
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Yes, the alkalizing minerals Mg, K, Caesium, Calcium do compete and interact to the detriment of skeletal/dental calcium. Boron and chromium help the maintenance and uptake of calcium. Chromium also helps with glucose and insulin. Finally, bones uptake calcium when stressed, making them stronger and more supple/less fragile. The best way to stress bones is through exercise. I wasn't taking Mg or K. Last October, I had lower-leg edema. Not excessive, but I couldn't see any veins or my ankle bones. In the evening, taking off my socks, there was a huge difference between the area under my socks and the bloated area just above the sock line. Edema in extremities can have many causes. One is absence/imbalance of Mg and K. So I bought a bottle of each. All my edema was gone within 3 days. For alkalizing, I'm not ready to go Caesium. I'm putting 2 lemons/day in my iced drinking water. I also make my vinaigrette on the vinegar-y side with Bragg's Organic Unfiltered Apple Cider Vinegar, plus mustard, both alkaline-forming. Also taking a packet of Picot brand antacid which is 2.5 g sodium bicarbonate + 2 g citric acid + 0.2 g tartaric acid, and importantly has no 325 mg aspirin as all Alka-Seltzer varieties seem to have. |
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lsk5689
Member since Mar-31-08
11 posts |
May-11-09, 05:26 PM (PST) |
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16. "RE: Non-Hogekins Lymphoma Mantle cell using DCA"
In response to message #15
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Reply to Judy and Paradox, et. al., I have "conventionally incurable" mantle cell lymphoma - indolent, slow growing. November 07 -visible swollen lymph nodes right cervical. Stabilized prior to DCA October 08 - visible swollen lymph nodes left cervical. Stabilized prior to DCA December 08 - visible swollen lymph nodes left jaw. Grew larger through February 09. Began DCA March 31, 2009. May 2009 - lymph nodes on left jaw reduced 50% by sight and touch. Cervical nodes remain stable with no increase or reduction in size. Make of it what you will. I am hopeful. Dosages: DCA - 10 mg/kg body weight, 1 x day with coca cola R + Alpha Lipoic Acid - 100mg, 3 x day Magnesium - 500mg 1 x day Vitamin B1 (Benefotiamine) - 150mg, 3 x day Vitamin B's-100mg - 3 x day Other Supps - LDN - 4.5mg, 1x day (immune system) Beta Glucan - 1000mg, 1 x day (immune system) Pancreatic Enzymes - 2 -3 x day (empty stomach) Lactoferrin - 500mg, 1 x day (anti-fungal, bacterial) FIsh Oil - caps or liquid, 3 x day Will probably go back on Artemisinin soon. DCA caused nausea initially. Started 2 days on - 2 days off for 2 weeks. Presently DCA causing poor appetite. 3 weeks on - 1 week off for one month to present. Will continue DCA again for 3 weeks and then go 5 days on - 2 days off for couple months. Hope this helps someone. Thank you Jim and Heather for everything. Regards, Larry
larry |
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lsk5689
Member since Mar-31-08
11 posts |
May-11-09, 05:31 PM (PST) |
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17. "RE: Non-Hogekins Lymphoma Mantle cell using DCA"
In response to message #16
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Addition to my above post. I also take 300 mg Caffeine daily. I found a product called "Buzz Bites". It's a small chocolate cube containing 100 mg caffeine. Look up Buzz Bites on web. Very easy and economical way to ingest caffeine, especially for non-tea and coffee drinkers. Larry larry |
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Mack
Member since Jan-9-09
62 posts |
May-12-09, 01:22 AM (PST) |
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18. "RE: Non-Hogekins Lymphoma Mantle cell using DCA"
In response to message #17
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Larry, did you consider adding the green tea extract that Tim McGough used in his protocol? I think it was 1000mg. Like you, he washed down the dca with a soft drink Mountain Dew, a citric acid/caffeine containing high fructose soft drink, plus 1000mg of Vitamin B1. By his last update via his fiance in May he remains in remission. I was also going to add that either coke or diet coke contains phenylalanine (might just be in the diet coke in the artificial sweetner) which is converted to tyrosine and that prolonged use of dca can reduce the effectiveness of the tyrosine catabolic pathway which can in some cases result in dca acquired tyrosinemia. All the best Mack |
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JudyDowell
Member since Apr-6-08
57 posts |
Jan-26-10, 07:54 PM (PST) |
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19. "RE: Non-Hogekins Lymphoma Mantle cell using DCA"
In response to message #15
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In November 2008, I had run out of DCA. By the end of November, I noticed a new lymph node in my neck (way to close to my head) so I went to a new oncologist, One who knew about DCA and liked it's potential. He suggested a bone marrow transplant via stem cells. When they checked my bone marrow (it previously was 50% compromised with cancer) it was clear, no cancer in my bone marrow. The new lymph node did show up, so I was right about my cancer spreading in the 2 month period that I went without the DCA however, all my pain symptoms, the tenitis in my ears, and some swelling had stopped from the DCA. I then realized the DCA was busy working at the root of the problem, cleaning up the cancer cells in my bone marrow. By Dec 5th, 08, I began 4 rounds of R-CHOP chemo. It wasn't too bad even tho my hair did fall out on the 18th of Dec. (I still miss it, it was down to my rear) but I bought a Full Lace Wig on ebay, Remy hair (100% human hair, remy is like caucasion hair or european hair, silky straight) and vapon no tape liquid glue to hold it on. Amazingly enough it looked real! No one could tell I had a wig on, even my oncologist said "You still have your hair?" and I laughed and said Bought and paid for. LOL Anyway, I did get more DCA after I had begun the R-CHOP. The rounds of chemo were nearly a month apart. Then, near the end of spring in April, I went into the hospital for a 6 month doseage in 2 days of Cytoxin. That hit me hardest, but by the 4th day I was fine and released to go home. Then came May...I would go to the hospital, in the bone marrow transplant ward where I would get extensive chemo and the BMT.At first I was getting all along these shots to produce stem cells, sometimes on a daily basis. They harvested my stem cells, and they add a citrate solution to your blood to keep it from clotting while it travels through the machine and I'm telling you, that was the first time I lost my appetite. The smell bothered me, but it was pretty painless. They then gave me Ara-c, VP-16, Carmustine and melphalan (one chemo drug at a time over about a weeks time)to totally kill off my lymphatic system, my immune system, the cancer cells, and saliva glands dried up, too. Then a few days later, my stem cells were returned to me. They just hooked up the bag like an IV and it went into my port. That night, while I was sleeping, the stem cells began to graft and grow, and the next day, my doctor was amazed at how quickly my body responded! I have to blame the DCA for my fast recovery! My BMT Dr. had no idea I was using the DCA, He wasn't one of the oncologists on board for DCA, so I just didn't tell him. It worked, I listened to my body, I took DCA, I ended up with the chemo and full lace remy wig from ebay, and a Bone Marrow transplant and I am still alive, CANCER FREE, and doing fine. At my heaviest, I weighed 140 pounds and I am 5 foot 6 inches tall. I am presently at 120 pounds (and loving it). The lease I weighed through this was 119 pounds. 21 pound loss alltogether, but hey, I'm alive, I did great, and I would advise anyone with mantle cell lymphoma (the worst type to have by the way) to do DCA and follow up with an oncologist for possible lighter types of chemo, or even the full BMT that I went through. Your future life IS worth it. As far as pain? I had worse pain when I got dentures, ate less when I had the dental work back in the 1970's, so chemo wasn't so bad. The worst part was loosing my hair, but hey, I'm a female and I overcame that by taking a chance on buying a $300.00 Remy silky straight blonde 24 inch long full lace wig and some glue and glue remover. If put on correctly, they stay on for 6 weeks, you can swim in them, shower and shampoo just like it was your real hair. Elite Lace wigs in Houston, Texas put one on professionally for me (my second wig) and only cost me $299.00 plus it was an education. I learned what I had been doing wrong, and learned how to get it right! I asked them how much it would cost to have it put back on after the 6 weeks, and they told me $60.00 so go figure, that is like ten bucks a week to look great! When you look good, you feel better. If I would have had to face my hairlessness on a daily basis, I would have been overcome by depression, so the hair seriously helped. Also, I could not find any place in Ohio to buy a full lace remy wig, so I asked at Elite full lace wigs. She said to check in the ghetto in my town. I laughed and explained, we don't have a ghetto, we're all poor and just getting by! I suggest ebay. I found some online like alibaba, and other places but they were all monofiliment wigs, not lace wigs as they said. They were all companies in China offering lace wigs for $10.00 to $75.00 and shipping was always more than the order, and then the wigs were cheap crappy monofiliment or worse and even tho you can complain and get your money back, you don't get the postage back, and like I said, they charged more for shipping than the order so beware, avoid alibaba/China sales. I feel great kids. Here it is January and my birthday is approaching quickly (Feb.1) so for me, it's been 3 years I will never forget! CANCER FREE! and I have a small stash of DCA left to use if I need it. Makes me feel secure (like when you quit smoking and have one lone cigarette in a glass tube, in case of emergency. LOL Live life to it's fullest. I had the paperwork all ready for my make a wish for adults, but never mailed it in. I just wasn't ready to give up! I wanted to pan for gold somewhere, but back then, I didn't have the energy, so I fought to live instead. The gold will come later. LOL Judy |
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JudyDowell
Member since Apr-6-08
57 posts |
Jan-26-10, 07:54 PM (PST) |
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20. "RE: Non-Hogekins Lymphoma Mantle cell using DCA"
In response to message #15
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The DCA eliminated all the symptoms of the cancer as it cleaned up my bone marrow making it possible for me to be my own stem cell donor. I had tenitis in my ears, it sounded like chain saws buzzing all night, or like mini bikes, anyway, the DCA made that go away. The bone pain went away, the swelling went down, I was hungry enough to eat, and I had the Bone marrow transplant (Stem cell transplant) and survived. The DCA took care of the bone marrow in a 4 month time period. My bone marrow was 50% cancer when I first started DCA, in 4 months my bone marrow had no lymphoma in it, so the DCA cleared the cancer out of my bone marrow. I believe whole heartedly in DCA, both alone (if you have time, stage 1 or 2) and with mild chemo as well! It will be 3 years on Feb.1 2010 since my diagnosis on Feb. 1 2007 and I am Cancer free. I was stage 4E in 2007, now I am Cancer free! Judy |
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JudyDowell
Member since Apr-6-08
57 posts |
Jan-27-10, 01:07 PM (PST) |
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21. "RE: Non-Hogekins Lymphoma Mantle cell using DCA"
In response to message #20
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VERY IMPORTANT! PLEASE READ THIS! I noticed in the beginning, remember I said I quit eating meats and my cancer quit growing? This is so true. I ate Beef daily or at least 3 times a week on a regular basis. I quit all meat products, corn (due to genetic changes in corn, I refuse to eat that, they feed it to cattle and wha-lah, the perfect storm for cancer). HERE IS WHY I QUIT Meat and Corn: Cancer cells excrete lactic acid. Lactic acid is it's Pooh, OK? That travels through your body and goes to the liver for processing. The liver processes the lactic acid and turns it into sugar! The liver then puts the sugar back into the blood stream and wha-lah, the cancer has more food! With cancer, the DNA sequence is altered. Instead of reading 9,10,11,12,13,14, it may read 9,10,14,12,13,11! The DNA is changed from your normal cell DNA. I bet if the DNA sequence was done on corn and beef, they would find that they have genetically altered these things to where the DNA is wrong, and cancerous. I found DCA because of Lactic Acid. I wanted to get rid of my lactic acid. I found cerecine (spelling might be off) which was an orphaned drug. The contents of ceressine was dichloroacetate, or DCA. Then I found the DCA site (here) and began to read. From Feb 1, 07 until my first post, I had been studing my cancer, day and night, sometimes 16 to 18 hours before taking a break. I was scared out of my mind with no appreciation for the medical field, or the FDA (I despise the FDA). Go alkaline as best you can, cut out red meats and corn, and you are on your way to better health. Just remember Lactic acid is fuel for cancer. They utilize lactic acid and even produce it for future use, so avoid Lactic acid! Just one of those things that was bugging me that I forgot to mention. Judy Alive and Cancer free after Mantle cell lymphoma stage 4E tried to eat me up!Judy |
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